Being a patient means having to practice patience

Being a patient means having to practice patience <Previous post   Next post> This is part three in my quest for abdominal pain relief. Missed a post? Click here to start from the beginning. My appointment with the general surgeon went better than I expected.  The main reason for this was that he actually listened.  NotContinue reading “Being a patient means having to practice patience”

The Disabled Diva’s Unofficial Disneyland Vacation Planning Guide

Are chronic conditions or disability keeping you from planning a Disneyland vacation? Guests of Disneyland should enter the gates ready to have fun, not fretting over trying to figure out what they will be able to do or how to navigate Disneyland’s handicapped system. Disneyland’s handicapped system was frustrating even before they made it moreContinue reading “The Disabled Diva’s Unofficial Disneyland Vacation Planning Guide”

Realistic Expectations

When making plans it is important to keep our conditions and limitations in mind at all times.   It took me close to 10 years to accept my conditions and to begin planning my daily life around them and a few more years until I began planning outings and vacations with them in mind.  Here are a few tips to help you plan your next getaway:

Vacation Downtime

In the past, I was on the go from the moment I left home to go on vacation until the moment I arrived home.  After chronic illnesses entered my life, I began scheduling downtime prior to and following my trips.  However, this was not enough after my conditions progressed. In the past year, I haveContinue reading “Vacation Downtime”

The Super Power I Really Wish For

The super power I really wish for. Admit it; at some point in your life you have wished that you possessed a super power.  Some wished for the power of flight, invisibility, the ability to walk through walls, and more.  As a child my super power wish was for the power of invisibility.  The reasonContinue reading “The Super Power I Really Wish For”

Living multiple lives.

Originally this post was going to be called “Living a double life”, but then I realized that I don’t just lead two lives, I live multiple lives.  What I mean by this is that my life when going through a flare is totally different than when my Psoriatic Arthritis is in remission and my remissionContinue reading “Living multiple lives.”

The joy of a normal bowel movement

Update is at the end of the post. Warning this post is full of crap!  Do not continue reading if talking about diarrhea and poop makes you uncomfortable!  With that out of the way, it’s time for some potty talk! I have been living with my chronic illnesses for 16 years.  Prior to that IContinue reading “The joy of a normal bowel movement”

Starting the New Year a little later than I had planned

Happy New Years? What? Everyone is done celebrating the New Year?  Unlike everyone who celebrated the New Year on the first of January, I wasn’t physically or mentally up for celebrating it until last weekend.  Just before Christmas my psoriatic arthritis started coming out of remission.  At the same time a few of my otherContinue reading “Starting the New Year a little later than I had planned”

Spoonies are like snowflakes, each has a different story to tell

Recently a fellow spoonie posed a question online.  She asked if she should share the details of her struggle because some people have rudely questioned her disability.  They say that she is just fishing for attention.  Anyone who suffers from chronic conditions like Fibromyalgia, Psoriatic Arthritis, Lupus, Lymes, MS, Endometriosis, etc… knows that the struggleContinue reading “Spoonies are like snowflakes, each has a different story to tell”

Why I would suggest Disneyland over Disney World to someone who suffers from chronic pain.

It is no secret that I love Disneyland.  Besides the magical memories made with family and friends, Disneyland provides me with physical and mental therapy.  Because of this I never hesitate to suggest a Disneyland vacation to my friends that suffer from chronic pain.  However, I am not as quick to suggest they go toContinue reading “Why I would suggest Disneyland over Disney World to someone who suffers from chronic pain.”

Doctor Appointments That Do More Harm Than Good

    Whether someone suffers from chronic pain or not, I feel it is safe to assume that most people see their doctors for two reasons.  The first is to stay healthy and the second is to find answers and get well.  The last thing we expect is to leave that appointment physically feeling 10XContinue reading “Doctor Appointments That Do More Harm Than Good”

Insult or Compliment?

When someone says “You don’t look sick“, do you take it as an insult or a compliment?  Personally I take it as an insult and here is why. 1. “You don’t look sick” is an accusation, not a compliment.  Those words accuse the person in pain of being a liar.  If people who haven’t aContinue reading “Insult or Compliment?”

Tips for staying warm when the weather outside is not

As my mobility decreased over the years I had to find new ways to stay warm, whether I was inside and outside. Because I am physically moving less than I did before I find myself feeling cold more often, even in temperatures that never bothered me in the past.  Because I am unable to walk brisklyContinue reading “Tips for staying warm when the weather outside is not”

Sometimes it is worth pushing past limits and facing fears.

Yesterday I returned home after spending five days at Disneyland.  This was a big deal for me as I haven’t spent five consecutive days in the park since 2009!  Since then my longest stretch in the park has been three days.  Typically I go for a day and occasionally two in a row.  As thisContinue reading “Sometimes it is worth pushing past limits and facing fears.”

What if you never knew what it was like to live without physical pain

Imagine never knowing what it felt like to live without chronic pain.  For those of us living with chronic pain this is quite easy, we remember our lives before our chronic illness took over our bodies. We can remember running, dancing, or just being able to sit up without pain.  We not only remember whatContinue reading “What if you never knew what it was like to live without physical pain”

Reasons to give Thanks

This Thanksgiving I am reminded of all that I have to be thankful for.  My dear friend Pam has reached her final days and for all I know today may be the last time I see her on earth.  I will be away for two days this week to celebrate Thanksgiving with my family atContinue reading “Reasons to give Thanks”

Recognizing when to speak and when to be silent.

Those of you that follow me know that I have been spending most of my energy and time with my dear friend that is nearing the end of her battle with cancer.  Read Beating the Odds to learn more about Pam, my miracle friend.  Since my last post, my friend has suffered a seizure thatContinue reading “Recognizing when to speak and when to be silent.”

Thanks a lot Mother Nature!

Once upon a time I enjoyed and welcomed changes in the weather, but now I dread them.  It’s not that I hate rain, snow, or sunny days, it is how they affect my body that displeases me.  I began noticing how the weather affected my body a few years prior to my Fibromyalgia diagnosis.  OverContinue reading “Thanks a lot Mother Nature!”

Celebrating another year

Today, November 12, is my birthday.  As a child I always looked forward to my special day, but as I grew older I began dreading it.  In a way I am like Peter Pan, I don’t want to grow up.  Well, that’s not necessarily true.  I don’t mind being an adult, I just didn’t likeContinue reading “Celebrating another year”

My Second San Francisco Adventure

As someone that suffers from several chronic illnesses, I have had to learn to be flexible when vacationing.  I have learned that I won’t always get to do everything I want to and that my body may need more rest than normal.  I am writing this post is to share my adventure and to showContinue reading “My Second San Francisco Adventure”

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