Valentine’s day is a time for expressing love to your special someone. It is not a day to go broke or to trigger chronic pain. If your celebration depletes both your bank account and energy supply, you are defeating the purpose of the day.
Do you or someone you love live with a mental illness? Do you struggle to communicate with your friends and family? You are NOT alone!
Has your chronic illness taken over your life? Find out how you can get back into the driver’s seat and start dominating your chronic life!
Find out how I became The Disabled Diva, accepted my conditions, and more in this piece I wrote for Healthline. If anyone would have told me in my 20’s that I’d be writing about living with multiple chronic illnesses in my 40’s I would have laughed. I’ve been experiencing various symptoms since the age ofContinue reading “Why I call myself The Disabled Diva”
Are you a Super Mom or a Super Pooped Mom? Chronic illnesses make life difficult. Those of us who suffer from one are always feeling like we are swimming against the stream. My illnesses are always getting in the way of what I want and need to do. Instead of doing the dishes my bodyContinue reading “Super Mom or a Super Pooped Mom”
I have always struggled with asking for help. Because of this, there have been times in my chronic life that I have felt like it was me against the world. I would like to say that I have improved and have become better at asking for assistance, but that would be a lie. I stillContinue reading “Taking off the mask and getting by with a little help from my friends”
The super power I really wish for. Admit it; at some point in your life you have wished that you possessed a super power. Some wished for the power of flight, invisibility, the ability to walk through walls, and more. As a child my super power wish was for the power of invisibility. The reasonContinue reading “The Super Power I Really Wish For”
Originally this post was going to be called “Living a double life”, but then I realized that I don’t just lead two lives, I live multiple lives. What I mean by this is that my life when going through a flare is totally different than when my Psoriatic Arthritis is in remission and my remissionContinue reading “Living multiple lives.”
Happy New Years? What? Everyone is done celebrating the New Year? Unlike everyone who celebrated the New Year on the first of January, I wasn’t physically or mentally up for celebrating it until last weekend. Just before Christmas my psoriatic arthritis started coming out of remission. At the same time a few of my otherContinue reading “Starting the New Year a little later than I had planned”
Someone forgot to inform Mother Nature that today was is the first day of fall, because it still feels like summer in sunny Southern California! However there is a touch of fall in the air as our nights have been cooler and I am physically feeling the benefits of the shift in seasons. Fall andContinue reading “Welcoming Fall with mixed emotions”
Painsomnia has an evil sibling, the Pain Coma. Unlike a real coma, I am not completely comatose, but my physical and cognitive abilities are drastically reduced. In some ways it resembles a real coma as in no matter how hard I “will” my body to move, it won’t, it’s paralyzing. Then there is the feelingContinue reading “The Pain Coma”
Yesterday I received news that a relative of someone I love was killed in a car accident. My heart hurts for the family and their loss. I think about the relatives that I love deeply and shudder to think about how devastating this must be for the person I love and her family. It wasContinue reading “A reminder that things could be worse.”
Welcome to Funky Town, the place no one wants to go and has to fight like heck to get out of. I should be pleased that it has been quite some time since my last visit to Funky Town, but I am not. What is Funky Town? It’s that horrible mental space that sucks theContinue reading “Funky Town”
Do you often feel like there aren’t enough hours in a day to do everything that you wanted to accomplish? You are not alone. Many ordinary folk have the misconception that the chronically ill just don’t know how to manage their time. The truth is that we don’t have enough time to manage. I was aContinue reading “Not enough time to manage. Part 1”
This morning I became aware that I have redefined my pain scale without realizing it. I was texting with my best friend when she asked how I was feeling. I told her that I was thrilled that I was doing fairly well considering how intense my pain level was over the weekend. She replied withContinue reading “Redefining pain levels”
Someone very near and dear to me has been living with various undiagnosed chronic pains and symptoms of many chronic pain conditions for close to two years. There was a time when she and everyone else, including me, had hoped that she had something that was temporary or that could be cured. But that doesn’tContinue reading “Live the life you have”
Living in pain for as long as I have has redefined how I categorize my different pains. There are the constant pains that I have just gotten used to and fully accept that they aren’t leaving. Then there are the pains that come and go in extremes. These are the ones that make me want toContinue reading “Cut it out!”
It has been a crazy week for my family. It all started on Friday evening when my husband hurt his back while loading my wheelchair into our SUV. Thankfully I have been feeling relatively better than normal and was able to care for him over the weekend. Thankfully his back was feeling better by Monday,Continue reading “Finding myself in his shoes”
I have no idea what is going on with me, but I have had the best week ever!!! It has been a long time since I have felt this good. I know it won’t last, but I am making sure to enjoy every moment until then. Then again maybe it will… who knows…. I hadContinue reading “Filled with joy and guilt”
Have you struggled with explaining how it emotionally feels to live with chronic pain? In the past I have referred to the Spoon Theory to explain how physically exhausting it is. But that wasn’t enough. Chronic pain also beats me up emotionally. The best description I can give to explain how it feels emotionally is to askContinue reading “Daily Betrayal”