Pain induced anxiety

The waiting continues

As I shared in my post “The Waiting Game” I have been suffering from some nasty GI issues for quite some time.  I am still without answers but my doctors are getting closer.  The ultrasound they ordered revealed something that neither I or my doctors expected.  They called the following day and told me thatContinue reading “The waiting continues”

One hit wonder

Those who know me personally know that I don’t enjoy cooking.  I love eating and trying new foods, but the physical energy and mental concentration that is needed for cooking is too much for me.  Life would be awesome if we could survive on take-out or convenience foods, but that is not realistic.  The problemContinue reading “One hit wonder”

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In My Dreams

I have a question for my chronically ill and disabled friends.  Are you ill or disabled in your dreams?   I have been living in pain and with limitations for over a decade.  During this time my illnesses and limitations have never entered my dreams.  That is until this week.  For the first time everContinue reading “In My Dreams”

The Waiting Game

Waiting for answers is frustrating.  Having a body that refuses to cooperate is maddening. As I mentioned in a prior post, I have been slammed with some nasty digestive issues lately and shared my symptoms and concerns with my doctor last Friday.  Hopefully I will have some answers as well as a solution as soonContinue reading “The Waiting Game”

Not so Paranoid

Every time someone says that I am paranoid something happens to prove that  what seems to be paranoia to them is actually justified fear on my part. Last Friday I went to see my doctor about a GI problem that has wormed its way into my life.  I decided to make use of my timeContinue reading “Not so Paranoid”

30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know 1. The illness I live with is: Psoriatic Arthritis, Degenerative Disc Disease, Fibromyalgia, nerve damage from surgery,  and possibly MS 2. I was diagnosed with it in the year: I was diagnosed with Fibro at age 33, PA at 34, DDD at 44. Nerve damageContinue reading “30 Things About My Invisible Illness You May Not Know”

My fashion secret

Chronic pain has changed my life.  It has altered the way I do things.  It has meant giving up old hobbies and trying new things.  It has completely changed the way I view life.  The one thing I didn’t expect to change was my wardrobe.  My wardrobe overhaul began prior to my first diagnosis 12Continue reading “My fashion secret”

Not just the blues

My mind has been consumed with thoughts about Robin William’s suicide.  Most of us living with chronic pain know depression way too well, and although I posted about his death yesterday, I feel the need to expand upon it.  First let me share that I don’t normally get caught up with the latest celebrity deathContinue reading “Not just the blues”

Are you my doctor?

Why do people feel the need to share how they think I should be treating my conditions?  Is is really so hard to just express a little bit of sympathy and then go about their regularly scheduled lives?  It doesn’t matter if it is someone I just met or someone who has been a partContinue reading “Are you my doctor?”

Foggy Days

The oh  NOT so lovely brain fog has come for an extended visit.  Fatigue along with nerve and/or muscle pain that is stems from my spine and neck will cause my head to feel like it is filling with sand, feeling heavy, and makes concentrating on anything almost impossible.  Imagine walking through a foggy forest,Continue reading “Foggy Days”

Wet’N’Wild Palm Springs

My first visit to a California water park with chronic pain! See if Wet’n Wild in Palm Springs was worth the visit! I must admit my experience with water parks is extremely limited. As a teen, I frequented Big Surf in Tempe, AZ. At that time all they had was the large wave pool andContinue reading “Wet’N’Wild Palm Springs”

Lies, lies, lies

Liar, lies, lies The song “Lies” by the Thompson Twins comes to mind every time someone offers to help me.  It is not because I think all people are liars or that there aren’t any good people in the world.  Instead it’s based upon past experiences.  A perfect example happened years ago when my husbandContinue reading “Lies, lies, lies”

When someone sees thru my mask

The world is filled with people that have no understanding what it is like to live with chronic pain.  There are also some that sympathize, even though they can’t imagine what people like me are going through.  I consider that small group to be angels, coming to us when we most need them.  While chattingContinue reading “When someone sees thru my mask”

My song

What “Let it Go” means to me         Some think I am a bit off my rocker for being so obsessed with Frozen. Those who know and accept my being a Disney addict are not surprised. It is those who don’t get my love of Disney that think I am crazy. IContinue reading “My song”

Assumptions

You know the saying, “When you assume you m ake an ass out of you and me”? Assumptions can cause unnecessary resentment, stress, jealousy, and unjust judgment upon those that assumptions are being made on. Recently a friend shared that a mutual acquaintance asked her why I needed my wheelchair. My friend replied by namingContinue reading “Assumptions”

Not so Invisible

Because most of the symptoms that stem from my conditions are invisible to the naked eye, I have often wished that there was some way for others to be able to see my pain without me having to say that I am in pain. A week ago I was reminded that I do have aContinue reading “Not so Invisible”

Rocked my Disney Side

Approximately  two weeks ago  my family and I rocked our Disney Sides at the 24 hour party.   The first I had ever heard about Disney’s 24 hour parties was a month prior to this one.  Being the Disney Geek that I am, my first thought was “Heck ya”!!   My enthusiasm waned as IContinue reading “Rocked my Disney Side”

Validated

From my prior posts you know that I have been dealing with a mystery back pain.   This pain has come and gone, lasting only a day or two at the most for many years.  A year and a half ago it struck and stuck!  When I informed my doctor of this pain last yearContinue reading “Validated”

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