I feel like dancing!

When my chronic illnesses first stole my ability to hit the dance floor, I didn’t really think much about what I had lost…. Then last year a burning desire to move my feet ignited……..

The Super Power I Really Wish For

The super power I really wish for. Admit it; at some point in your life you have wished that you possessed a super power.  Some wished for the power of flight, invisibility, the ability to walk through walls, and more.  As a child my super power wish was for the power of invisibility.  The reasonContinue reading “The Super Power I Really Wish For”

Living multiple lives.

Originally this post was going to be called “Living a double life”, but then I realized that I don’t just lead two lives, I live multiple lives.  What I mean by this is that my life when going through a flare is totally different than when my Psoriatic Arthritis is in remission and my remissionContinue reading “Living multiple lives.”

The joy of a normal bowel movement

Update is at the end of the post. Warning this post is full of crap!  Do not continue reading if talking about diarrhea and poop makes you uncomfortable!  With that out of the way, it’s time for some potty talk! I have been living with my chronic illnesses for 16 years.  Prior to that IContinue reading “The joy of a normal bowel movement”

Spoonies are like snowflakes, each has a different story to tell

Recently a fellow spoonie posed a question online.  She asked if she should share the details of her struggle because some people have rudely questioned her disability.  They say that she is just fishing for attention.  Anyone who suffers from chronic conditions like Fibromyalgia, Psoriatic Arthritis, Lupus, Lymes, MS, Endometriosis, etc… knows that the struggleContinue reading “Spoonies are like snowflakes, each has a different story to tell”

Why I would suggest Disneyland over Disney World to someone who suffers from chronic pain.

It is no secret that I love Disneyland.  Besides the magical memories made with family and friends, Disneyland provides me with physical and mental therapy.  Because of this I never hesitate to suggest a Disneyland vacation to my friends that suffer from chronic pain.  However, I am not as quick to suggest they go toContinue reading “Why I would suggest Disneyland over Disney World to someone who suffers from chronic pain.”

Doctor Appointments That Do More Harm Than Good

    Whether someone suffers from chronic pain or not, I feel it is safe to assume that most people see their doctors for two reasons.  The first is to stay healthy and the second is to find answers and get well.  The last thing we expect is to leave that appointment physically feeling 10XContinue reading “Doctor Appointments That Do More Harm Than Good”

Insult or Compliment?

When someone says “You don’t look sick“, do you take it as an insult or a compliment?  Personally I take it as an insult and here is why. 1. “You don’t look sick” is an accusation, not a compliment.  Those words accuse the person in pain of being a liar.  If people who haven’t aContinue reading “Insult or Compliment?”

What they don’t see

After almost two weeks of suffering from my muscles attacking my spine and neck, last night I felt like I was finally on the upswing.  I could feel my muscles relaxing and my joints popped whenever I moved my body.  I sounded like a bowl of rice krispies.  With less pressure on my neck, my brainContinue reading “What they don’t see”

Time-Out

It’s been a rough day.  I was woken up this morning by intense abdominal, leg, and back muscle spasms.  Tears rolled down my cheeks as each wave of spasms squeezed tightly.  As the day progressed, their frequency decreased, which has allowed me to rest.  In addition to this my stomach feels as though it isContinue reading “Time-Out”

Tips for staying warm when the weather outside is not

As my mobility decreased over the years I had to find new ways to stay warm, whether I was inside and outside. Because I am physically moving less than I did before I find myself feeling cold more often, even in temperatures that never bothered me in the past.  Because I am unable to walk brisklyContinue reading “Tips for staying warm when the weather outside is not”

Sometimes it is worth pushing past limits and facing fears.

Yesterday I returned home after spending five days at Disneyland.  This was a big deal for me as I haven’t spent five consecutive days in the park since 2009!  Since then my longest stretch in the park has been three days.  Typically I go for a day and occasionally two in a row.  As thisContinue reading “Sometimes it is worth pushing past limits and facing fears.”

Reasons to give Thanks

This Thanksgiving I am reminded of all that I have to be thankful for.  My dear friend Pam has reached her final days and for all I know today may be the last time I see her on earth.  I will be away for two days this week to celebrate Thanksgiving with my family atContinue reading “Reasons to give Thanks”

Celebrating another year

Today, November 12, is my birthday.  As a child I always looked forward to my special day, but as I grew older I began dreading it.  In a way I am like Peter Pan, I don’t want to grow up.  Well, that’s not necessarily true.  I don’t mind being an adult, I just didn’t likeContinue reading “Celebrating another year”

Protected: My two year MMJ anniversary.

There is no excerpt because this is a protected post.

The Pain Coma

Painsomnia has an evil sibling, the Pain Coma.  Unlike a real coma, I am not completely comatose, but my physical and cognitive abilities are drastically reduced.  In some ways it resembles a real coma as in no matter how hard I “will” my body to move, it won’t, it’s paralyzing.  Then there is the feelingContinue reading “The Pain Coma”

What the rides at Disneyland have taught me about my conditions

This morning someone sent me an analogy on Twitter comparing having Fibromyalgia and riding Space Mountain.  They tweeted that having Fibromyalgia and riding Space Mountain are the same as there are lots of ups and downs, tight curves, but no way to see them coming.  This is spot on!! However it is how we choose to face those ups, downs,Continue reading “What the rides at Disneyland have taught me about my conditions”

When my mind and body are at out of sync

I honestly don’t know which is worse….. when my mind and body are both exhausted and useless or when my body is out of commission yet my brain is working overtime!  Sometimes I prefer when my body and mind are both wiped out.  Although nothing gets accomplished, at least I don’t become anxious about all theContinue reading “When my mind and body are at out of sync”

Funky Town

Welcome to Funky Town, the place no one wants to go and has to fight like heck to get out of.  I should be pleased that it has been quite some time since my last visit to Funky Town, but I am not.  What is Funky Town?  It’s that horrible mental space that sucks theContinue reading “Funky Town”

Not enough time to manage. Part 2

This week I want to expand upon what it is like to have less time to manage.  In part one I explained how having less time to manage makes someone who used to manage their time very well, appear as though they need to go back to school. Today I will address the frustration ofContinue reading “Not enough time to manage. Part 2”

Skip to content
This Website is committed to ensuring digital accessibility for people with disabilitiesWe are continually improving the user experience for everyone, and applying the relevant accessibility standards.
Conformance status