Recognizing when to speak and when to be silent.

Those of you that follow me know that I have been spending most of my energy and time with my dear friend that is nearing the end of her battle with cancer.  Read Beating the Odds to learn more about Pam, my miracle friend.  Since my last post, my friend has suffered a seizure thatContinue reading “Recognizing when to speak and when to be silent.”

Thanks a lot Mother Nature!

Once upon a time I enjoyed and welcomed changes in the weather, but now I dread them.  It’s not that I hate rain, snow, or sunny days, it is how they affect my body that displeases me.  I began noticing how the weather affected my body a few years prior to my Fibromyalgia diagnosis.  OverContinue reading “Thanks a lot Mother Nature!”

Celebrating another year

Today, November 12, is my birthday.  As a child I always looked forward to my special day, but as I grew older I began dreading it.  In a way I am like Peter Pan, I don’t want to grow up.  Well, that’s not necessarily true.  I don’t mind being an adult, I just didn’t likeContinue reading “Celebrating another year”

Beating the odds

I have been busier than usual for the past five weeks.  Because of this I haven’t had the time or energy to post as often as I would like.  My dear friend is dying from cancer.  I will be sharing Pam’s story with you in the future because there is so much we can allContinue reading “Beating the odds”

My Second San Francisco Adventure

As someone that suffers from several chronic illnesses, I have had to learn to be flexible when vacationing.  I have learned that I won’t always get to do everything I want to and that my body may need more rest than normal.  I am writing this post is to share my adventure and to showContinue reading “My Second San Francisco Adventure”

Welcoming Fall with mixed emotions

Someone forgot to inform Mother Nature that today was is the first day of fall, because it still feels like summer in sunny Southern California!  However there is a touch of fall in the air as our nights have been cooler and I am physically feeling the benefits of the shift in seasons.  Fall andContinue reading “Welcoming Fall with mixed emotions”

Protected: My two year MMJ anniversary.

There is no excerpt because this is a protected post.

The Pain Coma

Painsomnia has an evil sibling, the Pain Coma.  Unlike a real coma, I am not completely comatose, but my physical and cognitive abilities are drastically reduced.  In some ways it resembles a real coma as in no matter how hard I “will” my body to move, it won’t, it’s paralyzing.  Then there is the feelingContinue reading “The Pain Coma”

What the rides at Disneyland have taught me about my conditions

This morning someone sent me an analogy on Twitter comparing having Fibromyalgia and riding Space Mountain.  They tweeted that having Fibromyalgia and riding Space Mountain are the same as there are lots of ups and downs, tight curves, but no way to see them coming.  This is spot on!! However it is how we choose to face those ups, downs,Continue reading “What the rides at Disneyland have taught me about my conditions”

Painsomnia, like insomnia but worse

            We all know what insomnia is, but what is painsomnia? Painsomnia is when your pain(s) keep you from falling asleep or from reaching a restorative sleep level.  With normal insomnia I would just get up and make good use of the time that should have been spent sleeping.  UnfortunatelyContinue reading “Painsomnia, like insomnia but worse”

Sootheze Toasty Spa Friends Product Review

I was recently asked to review a Toasty Spa Friend from Sootheze.  The Spa Friend I chose was the Smooth Kitty Collar.  I chose this particular one for two reasons.  The first is that I love cats and the second is that this kitty looks just like my cat Dr. Rocky. Disclaimer: “I have beenContinue reading “Sootheze Toasty Spa Friends Product Review”

When my mind and body are at out of sync

I honestly don’t know which is worse….. when my mind and body are both exhausted and useless or when my body is out of commission yet my brain is working overtime!  Sometimes I prefer when my body and mind are both wiped out.  Although nothing gets accomplished, at least I don’t become anxious about all theContinue reading “When my mind and body are at out of sync”

Funky Town

Welcome to Funky Town, the place no one wants to go and has to fight like heck to get out of.  I should be pleased that it has been quite some time since my last visit to Funky Town, but I am not.  What is Funky Town?  It’s that horrible mental space that sucks theContinue reading “Funky Town”

Not enough time to manage. Part 2

This week I want to expand upon what it is like to have less time to manage.  In part one I explained how having less time to manage makes someone who used to manage their time very well, appear as though they need to go back to school. Today I will address the frustration ofContinue reading “Not enough time to manage. Part 2”

Not enough time to manage. Part 1

Do you often feel like there aren’t enough hours in a day to do everything that you wanted to accomplish?  You are not alone.  Many ordinary folk have the misconception that the chronically ill just don’t know how to manage their time.  The truth is that we don’t have enough time to manage. I was aContinue reading “Not enough time to manage. Part 1”

Redefining pain levels

This morning I became aware that I have redefined my pain scale without realizing it.  I was texting with my best friend when she asked how I was feeling.  I told her that I was thrilled that I was doing fairly well considering how intense my pain level was over the weekend.  She replied withContinue reading “Redefining pain levels”

Healing days

What the heck is a healing day?  I refer to the days when my body has had enough and forces me to rest.  Sometimes these days follow a day or period of time spent pushing past my limits, and sometimes it is just my body’s way of saying “I am tired”. A healing day orContinue reading “Healing days”

Live the life you have

Someone very near and dear to me has been living with various undiagnosed chronic pains and symptoms of many chronic pain conditions for close to two years.  There was a time when she and everyone else, including me, had hoped that she had something that was temporary or that could be cured.  But that doesn’tContinue reading “Live the life you have”

Cut it out!

Living in pain for as long as I have has redefined how I categorize my different pains.  There are the constant pains that I have just gotten used to and fully accept that they aren’t leaving.  Then there are the pains that come and go in extremes.  These are the ones that make me want toContinue reading “Cut it out!”

Imprisoned

This has been one of the craziest weeks of my life. Read Finding myself in his shoes to understand how it started.  This all began around 3AM on Tuesday and by Thursday we still were without answers as to why my husband was coughing up blood.  Thursday was not a good day.  Physically I wasContinue reading “Imprisoned”

Skip to content
This Website is committed to ensuring digital accessibility for people with disabilitiesWe are continually improving the user experience for everyone, and applying the relevant accessibility standards.
Conformance status