Filled with joy and guilt

I have no idea what is going on with me, but I have had the best week ever!!! It has been a long time since I have felt this good.  I know it won’t last, but I am making sure to enjoy every moment until then.  Then again maybe it will… who knows…. I hadContinue reading “Filled with joy and guilt”

When the body craves deep sleep and the brain only wants a cat nap!

 Living with chronic pain is exhausting.  Although I have conquered my night time sleeping battle, I still battle daytime fatigue, just not as often as I used to.  Pain related fatigue comes in many forms.  There are days when I am lucky if I am able to stay awake for an hour or two.  SomeContinue reading “When the body craves deep sleep and the brain only wants a cat nap!”

Daily Betrayal

Have you struggled with explaining how it emotionally feels to live with chronic pain?  In the past I have referred to the Spoon Theory to explain how physically exhausting it is.  But that wasn’t enough.  Chronic pain also beats me up emotionally.  The best description I can give to explain how it feels emotionally is to askContinue reading “Daily Betrayal”

Peekaboo

I’ve been debating whether or not to share my most recent chronically ill related embarrassing moment.  I was so humiliated that I swore my husband and daughter to secrecy the moment it happened.  As days passed I realized that this is not the worst that has happened to me and that I have shared muchContinue reading “Peekaboo”

Mind Games

In my post To make or not to make, I shared how my bed must be made if I want to be productive.  Well this week I had to trick my brain into giving my body the rest it required.  The week started out with my head feeling like it was filled with sand.  IContinue reading “Mind Games”

My Inner Princess

Out of all the Disney Princesses, Cinderella is the one that I relate to the most.  We were both abused.  Yet neither of us ever complained or told anyone else.  Instead we sang songs that made our hearts feel lighter.   Not that I condone not speaking up, because I do believe that people should reach outContinue reading “My Inner Princess”

Letting go and going with the flow.

The most important advice that I have to share with people living with chronic pain or new to the pain game is this:  Learn to let go of preconceived notions of how something should be done, let go of traditions that you are physically no longer able to keep up with, and appreciate what youContinue reading “Letting go and going with the flow.”

On the mend

This past week I discovered what was making me so sleepy the week prior.  Long story short, it turns out I have Bronchitis.  Nine days since it smacked me down and I am finally feeling like I am improving.  No where near “normal”, but there is definite improvement.  I would like to thank you allContinue reading “On the mend”

Under a sleep spell

I feel like I have been put under a sleeping spell, like Sleeping Beauty.  But unlike Sleeping Beauty, I don’t know what will break my spell.  It has been a while since I have been this sleepy.  I forgot how much I despise feeling so tired all the time.  I forgot just how much extremeContinue reading “Under a sleep spell”

Can’t win them all

No matter how someone treats their chronic conditions, we can all agree that there are good days and there are bad.  Then there are the days that have us feeling as though we are being physically tortured.  Overall this has been the best winter that I have ever experienced.  Not too cold, not too hot,Continue reading “Can’t win them all”

Show me some love.

When I think of February I think of love.  On February 14, many will celebrate love by doing something special for the one they love and adore.  Most have no problem showing their love and affection to others, but not themselves.  When you live with chronic pain, it is hard to love ourselves, especially ourContinue reading “Show me some love.”

Recovering from a nonexistent workout

  You know or remember the feeling you had after a really intense workout?  The aching muscles, sore joints, and fatigue?  Imagine feeling like just because there was a shift in the weather.  Welcome to my week.  Weather plays an important role in my physical comfort.  A change in the weather can cause more pain to my bodyContinue reading “Recovering from a nonexistent workout”

My San Francisco Adventure

Having never been to San Francisco I was more than excited to join my husband on his business trip.  Because this was a business trip I knew there wouldn’t be much time for site seeing, but I didn’t care.  I am just thrilled to have had the opportunity to see and taste as much ofContinue reading “My San Francisco Adventure”

Just in time for Christmas

Wouldn’t it be great if we knew when a flare was going to hit and how long it was going to last?  But that’s not the reality that my chronically ill friends and I live with. As I write this we are 11 days from Christmas and my spine is throbbing with pain. I shouldContinue reading “Just in time for Christmas”

More tests, less answers

The quest to figure out what is causing the pain in my belly is taking much longer than I had expected.  Of course not being able to poop in a timely manner didn’t help either.  So far an ultrasound revealed a mass in my liver.  Then like magic, the mass was no where to beContinue reading “More tests, less answers”

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