Living multiple lives.

Originally this post was going to be called “Living a double life”, but then I realized that I don’t just lead two lives, I live multiple lives.  What I mean by this is that my life when going through a flare is totally different than when my Psoriatic Arthritis is in remission and my remissionContinue reading “Living multiple lives.”

What they don’t see

After almost two weeks of suffering from my muscles attacking my spine and neck, last night I felt like I was finally on the upswing.  I could feel my muscles relaxing and my joints popped whenever I moved my body.  I sounded like a bowl of rice krispies.  With less pressure on my neck, my brainContinue reading “What they don’t see”

Time-Out

It’s been a rough day.  I was woken up this morning by intense abdominal, leg, and back muscle spasms.  Tears rolled down my cheeks as each wave of spasms squeezed tightly.  As the day progressed, their frequency decreased, which has allowed me to rest.  In addition to this my stomach feels as though it isContinue reading “Time-Out”

Celebrating another year

Today, November 12, is my birthday.  As a child I always looked forward to my special day, but as I grew older I began dreading it.  In a way I am like Peter Pan, I don’t want to grow up.  Well, that’s not necessarily true.  I don’t mind being an adult, I just didn’t likeContinue reading “Celebrating another year”

My Second San Francisco Adventure

As someone that suffers from several chronic illnesses, I have had to learn to be flexible when vacationing.  I have learned that I won’t always get to do everything I want to and that my body may need more rest than normal.  I am writing this post is to share my adventure and to showContinue reading “My Second San Francisco Adventure”

My Abominable Abdominal Adhesions

Abdominal adhesions began wreaking havoc in my life back in 2004 after having surgery to remove a giant cyst.  Some, myself included wanted to blame the type of surgery performed for the adhesions, being that prior to having laparoscopic I had two C-sections without developing adhesions.  But in my case it wasn’t the type ofContinue reading “My Abominable Abdominal Adhesions”

Welcoming Fall with mixed emotions

Someone forgot to inform Mother Nature that today was is the first day of fall, because it still feels like summer in sunny Southern California!  However there is a touch of fall in the air as our nights have been cooler and I am physically feeling the benefits of the shift in seasons.  Fall andContinue reading “Welcoming Fall with mixed emotions”

Staying afloat

Ugh!! Today is one of those days in which I feel like I am sinking.  There are a few things I need to accomplish today but with each attempt I feel like I am sinking further behind.  Is it really too much to ask that my body cooperate for just a few hours?  The frustratingContinue reading “Staying afloat”

Protected: My two year MMJ anniversary.

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The Pain Coma

Painsomnia has an evil sibling, the Pain Coma.  Unlike a real coma, I am not completely comatose, but my physical and cognitive abilities are drastically reduced.  In some ways it resembles a real coma as in no matter how hard I “will” my body to move, it won’t, it’s paralyzing.  Then there is the feelingContinue reading “The Pain Coma”

What the rides at Disneyland have taught me about my conditions

This morning someone sent me an analogy on Twitter comparing having Fibromyalgia and riding Space Mountain.  They tweeted that having Fibromyalgia and riding Space Mountain are the same as there are lots of ups and downs, tight curves, but no way to see them coming.  This is spot on!! However it is how we choose to face those ups, downs,Continue reading “What the rides at Disneyland have taught me about my conditions”

Painsomnia, like insomnia but worse

            We all know what insomnia is, but what is painsomnia? Painsomnia is when your pain(s) keep you from falling asleep or from reaching a restorative sleep level.  With normal insomnia I would just get up and make good use of the time that should have been spent sleeping.  UnfortunatelyContinue reading “Painsomnia, like insomnia but worse”

When my mind and body are at out of sync

I honestly don’t know which is worse….. when my mind and body are both exhausted and useless or when my body is out of commission yet my brain is working overtime!  Sometimes I prefer when my body and mind are both wiped out.  Although nothing gets accomplished, at least I don’t become anxious about all theContinue reading “When my mind and body are at out of sync”

Funky Town

Welcome to Funky Town, the place no one wants to go and has to fight like heck to get out of.  I should be pleased that it has been quite some time since my last visit to Funky Town, but I am not.  What is Funky Town?  It’s that horrible mental space that sucks theContinue reading “Funky Town”

Redefining pain levels

This morning I became aware that I have redefined my pain scale without realizing it.  I was texting with my best friend when she asked how I was feeling.  I told her that I was thrilled that I was doing fairly well considering how intense my pain level was over the weekend.  She replied withContinue reading “Redefining pain levels”

Healing days

What the heck is a healing day?  I refer to the days when my body has had enough and forces me to rest.  Sometimes these days follow a day or period of time spent pushing past my limits, and sometimes it is just my body’s way of saying “I am tired”. A healing day orContinue reading “Healing days”

Live the life you have

Someone very near and dear to me has been living with various undiagnosed chronic pains and symptoms of many chronic pain conditions for close to two years.  There was a time when she and everyone else, including me, had hoped that she had something that was temporary or that could be cured.  But that doesn’tContinue reading “Live the life you have”

Cut it out!

Living in pain for as long as I have has redefined how I categorize my different pains.  There are the constant pains that I have just gotten used to and fully accept that they aren’t leaving.  Then there are the pains that come and go in extremes.  These are the ones that make me want toContinue reading “Cut it out!”

Psoriatic Arthritis and Me.

I am not shy when it comes to how I treat my chronic conditions with marijuana or my  disgust over the prescription medications that are available.  Recently someone asked me about how I treated my Psoriatic Arthritis prior to switching to medical marijuana.  This is not a question that I can answer within the reply sectionContinue reading “Psoriatic Arthritis and Me.”

Imprisoned

This has been one of the craziest weeks of my life. Read Finding myself in his shoes to understand how it started.  This all began around 3AM on Tuesday and by Thursday we still were without answers as to why my husband was coughing up blood.  Thursday was not a good day.  Physically I wasContinue reading “Imprisoned”

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