Pharmaceutical narcotics, damned if we do, damned if we don’t

Pharmaceutical narcotics, damned if we do, damned if we don’t The healthcare providers in America need to decide where they stand in regards to treating patient’s pain with narcotics.  As it stands now, we are damned if we use them and damned if we don’t. When I first became chronically ill, I never had anContinue reading “Pharmaceutical narcotics, damned if we do, damned if we don’t”

What has happened to our healthcare system?

This is part of a series of posts chronicling my quest to receive relief from abdominal adhesions. Click here to read from the beginning  Previous post < > Next post When did it become acceptable to not help patients?  When did drugging them become the go to plan?  When did doctors start giving up onContinue reading “What has happened to our healthcare system?”

Protected: Medicating with Marijuana isn’t as expensive as I thought it would be.

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Time-Out

It’s been a rough day.  I was woken up this morning by intense abdominal, leg, and back muscle spasms.  Tears rolled down my cheeks as each wave of spasms squeezed tightly.  As the day progressed, their frequency decreased, which has allowed me to rest.  In addition to this my stomach feels as though it isContinue reading “Time-Out”

Celebrating another year

Today, November 12, is my birthday.  As a child I always looked forward to my special day, but as I grew older I began dreading it.  In a way I am like Peter Pan, I don’t want to grow up.  Well, that’s not necessarily true.  I don’t mind being an adult, I just didn’t likeContinue reading “Celebrating another year”

Welcoming Fall with mixed emotions

Someone forgot to inform Mother Nature that today was is the first day of fall, because it still feels like summer in sunny Southern California!  However there is a touch of fall in the air as our nights have been cooler and I am physically feeling the benefits of the shift in seasons.  Fall andContinue reading “Welcoming Fall with mixed emotions”

Protected: My two year MMJ anniversary.

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The Pain Coma

Painsomnia has an evil sibling, the Pain Coma.  Unlike a real coma, I am not completely comatose, but my physical and cognitive abilities are drastically reduced.  In some ways it resembles a real coma as in no matter how hard I “will” my body to move, it won’t, it’s paralyzing.  Then there is the feelingContinue reading “The Pain Coma”

What the rides at Disneyland have taught me about my conditions

This morning someone sent me an analogy on Twitter comparing having Fibromyalgia and riding Space Mountain.  They tweeted that having Fibromyalgia and riding Space Mountain are the same as there are lots of ups and downs, tight curves, but no way to see them coming.  This is spot on!! However it is how we choose to face those ups, downs,Continue reading “What the rides at Disneyland have taught me about my conditions”

Painsomnia, like insomnia but worse

            We all know what insomnia is, but what is painsomnia? Painsomnia is when your pain(s) keep you from falling asleep or from reaching a restorative sleep level.  With normal insomnia I would just get up and make good use of the time that should have been spent sleeping.  UnfortunatelyContinue reading “Painsomnia, like insomnia but worse”

Healing days

What the heck is a healing day?  I refer to the days when my body has had enough and forces me to rest.  Sometimes these days follow a day or period of time spent pushing past my limits, and sometimes it is just my body’s way of saying “I am tired”. A healing day orContinue reading “Healing days”

Live the life you have

Someone very near and dear to me has been living with various undiagnosed chronic pains and symptoms of many chronic pain conditions for close to two years.  There was a time when she and everyone else, including me, had hoped that she had something that was temporary or that could be cured.  But that doesn’tContinue reading “Live the life you have”

Cut it out!

Living in pain for as long as I have has redefined how I categorize my different pains.  There are the constant pains that I have just gotten used to and fully accept that they aren’t leaving.  Then there are the pains that come and go in extremes.  These are the ones that make me want toContinue reading “Cut it out!”

Psoriatic Arthritis and Me.

I am not shy when it comes to how I treat my chronic conditions with marijuana or my  disgust over the prescription medications that are available.  Recently someone asked me about how I treated my Psoriatic Arthritis prior to switching to medical marijuana.  This is not a question that I can answer within the reply sectionContinue reading “Psoriatic Arthritis and Me.”

Filled with joy and guilt

I have no idea what is going on with me, but I have had the best week ever!!! It has been a long time since I have felt this good.  I know it won’t last, but I am making sure to enjoy every moment until then.  Then again maybe it will… who knows…. I hadContinue reading “Filled with joy and guilt”

When the body craves deep sleep and the brain only wants a cat nap!

 Living with chronic pain is exhausting.  Although I have conquered my night time sleeping battle, I still battle daytime fatigue, just not as often as I used to.  Pain related fatigue comes in many forms.  There are days when I am lucky if I am able to stay awake for an hour or two.  SomeContinue reading “When the body craves deep sleep and the brain only wants a cat nap!”

Daily Betrayal

Have you struggled with explaining how it emotionally feels to live with chronic pain?  In the past I have referred to the Spoon Theory to explain how physically exhausting it is.  But that wasn’t enough.  Chronic pain also beats me up emotionally.  The best description I can give to explain how it feels emotionally is to askContinue reading “Daily Betrayal”

Peekaboo

I’ve been debating whether or not to share my most recent chronically ill related embarrassing moment.  I was so humiliated that I swore my husband and daughter to secrecy the moment it happened.  As days passed I realized that this is not the worst that has happened to me and that I have shared muchContinue reading “Peekaboo”

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