The waiting continues

As I shared in my post “The Waiting Game” I have been suffering from some nasty GI issues for quite some time.  I am still without answers but my doctors are getting closer.  The ultrasound they ordered revealed something that neither I or my doctors expected.  They called the following day and told me thatContinue reading “The waiting continues”

One hit wonder

Those who know me personally know that I don’t enjoy cooking.  I love eating and trying new foods, but the physical energy and mental concentration that is needed for cooking is too much for me.  Life would be awesome if we could survive on take-out or convenience foods, but that is not realistic.  The problemContinue reading “One hit wonder”

Protected: SensiChew Insomnia

There is no excerpt because this is a protected post.

Not so Paranoid

Every time someone says that I am paranoid something happens to prove that  what seems to be paranoia to them is actually justified fear on my part. Last Friday I went to see my doctor about a GI problem that has wormed its way into my life.  I decided to make use of my timeContinue reading “Not so Paranoid”

30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know 1. The illness I live with is: Psoriatic Arthritis, Degenerative Disc Disease, Fibromyalgia, nerve damage from surgery,  and possibly MS 2. I was diagnosed with it in the year: I was diagnosed with Fibro at age 33, PA at 34, DDD at 44. Nerve damageContinue reading “30 Things About My Invisible Illness You May Not Know”

Are you my doctor?

Why do people feel the need to share how they think I should be treating my conditions?  Is is really so hard to just express a little bit of sympathy and then go about their regularly scheduled lives?  It doesn’t matter if it is someone I just met or someone who has been a partContinue reading “Are you my doctor?”

Foggy Days

The oh  NOT so lovely brain fog has come for an extended visit.  Fatigue along with nerve and/or muscle pain that is stems from my spine and neck will cause my head to feel like it is filling with sand, feeling heavy, and makes concentrating on anything almost impossible.  Imagine walking through a foggy forest,Continue reading “Foggy Days”

My song

What “Let it Go” means to me         Some think I am a bit off my rocker for being so obsessed with Frozen. Those who know and accept my being a Disney addict are not surprised. It is those who don’t get my love of Disney that think I am crazy. IContinue reading “My song”

Not so Invisible

Because most of the symptoms that stem from my conditions are invisible to the naked eye, I have often wished that there was some way for others to be able to see my pain without me having to say that I am in pain. A week ago I was reminded that I do have aContinue reading “Not so Invisible”

Napping Guilt

How many times have you been woken from a nap by a phone call, text, or a knock at the front door, only to have the person who disturbed your slumber to remark how jealous they were that you were napping.  Jealous???!!! Well this is what I think when they say…….. “I wish I hadContinue reading “Napping Guilt”

Validated

From my prior posts you know that I have been dealing with a mystery back pain.   This pain has come and gone, lasting only a day or two at the most for many years.  A year and a half ago it struck and stuck!  When I informed my doctor of this pain last yearContinue reading “Validated”

Finding relief again

Last December I posted about experimenting with THC as a way to cope with my pain.  The results were so amazing that I knew I would someday want to take this route full-time.  Nine months later I did just that.  Saturday morning, before going to the beach, we set out to get my Medicinal MarijuanaContinue reading “Finding relief again”

Oh what a relief it was!

For the past two weeks I had been using THC in various forms to combat my pain.  It reduced my pain in a way that I have never experienced thru prescription medications.  No it didn’t cure me, but I felt alive and was able to do more than I had been able to do inContinue reading “Oh what a relief it was!”

I am in Pain. Are you listening?

Dear Doctors of the world, What part of I am in pain do you not understand? This past year I was in so much pain that I couldn’t even try to pretend that I was alright. I not only cried after every appointment, I also cried during them. Why? Because my pain level was offContinue reading “I am in Pain. Are you listening?”

Glad you could be here today

Hello friends, I have had the best two weeks (that is physically). I can’t remember another time in the past ten years that I have had so many good hours or days so close together. I will share why I have been feeling better later this week. But for now I want to share whatContinue reading “Glad you could be here today”

When all else fails, BREATHE

I went to bed last night feeling like the dark cloud hovering over me was growing larger.  Woke up this morning feeling defeated.  That is until I checked my Twitter feed.  I want to thank my sweet spoonie friends that rallied the troops to suggest a good Rheumie in my area.  I can’t tell you how much thisContinue reading “When all else fails, BREATHE”

The Appointment

So today was the big day.  I had to wait for over 2 months for this appointment with a Rheumatologist.  During this time I was holding on to some hope that this doctor would be able to help me with not only my muscle and nerve pain but also the not so lovely pain in myContinue reading “The Appointment”

Skip to content
This Website is committed to ensuring digital accessibility for people with disabilitiesWe are continually improving the user experience for everyone, and applying the relevant accessibility standards.
Conformance status