What the rides at Disneyland have taught me about my conditions

This morning someone sent me an analogy on Twitter comparing having Fibromyalgia and riding Space Mountain.  They tweeted that having Fibromyalgia and riding Space Mountain are the same as there are lots of ups and downs, tight curves, but no way to see them coming.  This is spot on!! However it is how we choose to face those ups, downs,Continue reading “What the rides at Disneyland have taught me about my conditions”

Painsomnia, like insomnia but worse

            We all know what insomnia is, but what is painsomnia? Painsomnia is when your pain(s) keep you from falling asleep or from reaching a restorative sleep level.  With normal insomnia I would just get up and make good use of the time that should have been spent sleeping.  UnfortunatelyContinue reading “Painsomnia, like insomnia but worse”

Healing days

What the heck is a healing day?  I refer to the days when my body has had enough and forces me to rest.  Sometimes these days follow a day or period of time spent pushing past my limits, and sometimes it is just my body’s way of saying “I am tired”. A healing day orContinue reading “Healing days”

Psoriatic Arthritis and Me.

I am not shy when it comes to how I treat my chronic conditions with marijuana or my  disgust over the prescription medications that are available.  Recently someone asked me about how I treated my Psoriatic Arthritis prior to switching to medical marijuana.  This is not a question that I can answer within the reply sectionContinue reading “Psoriatic Arthritis and Me.”

Filled with joy and guilt

I have no idea what is going on with me, but I have had the best week ever!!! It has been a long time since I have felt this good.  I know it won’t last, but I am making sure to enjoy every moment until then.  Then again maybe it will… who knows…. I hadContinue reading “Filled with joy and guilt”

When the body craves deep sleep and the brain only wants a cat nap!

 Living with chronic pain is exhausting.  Although I have conquered my night time sleeping battle, I still battle daytime fatigue, just not as often as I used to.  Pain related fatigue comes in many forms.  There are days when I am lucky if I am able to stay awake for an hour or two.  SomeContinue reading “When the body craves deep sleep and the brain only wants a cat nap!”

Daily Betrayal

Have you struggled with explaining how it emotionally feels to live with chronic pain?  In the past I have referred to the Spoon Theory to explain how physically exhausting it is.  But that wasn’t enough.  Chronic pain also beats me up emotionally.  The best description I can give to explain how it feels emotionally is to askContinue reading “Daily Betrayal”

Peekaboo

I’ve been debating whether or not to share my most recent chronically ill related embarrassing moment.  I was so humiliated that I swore my husband and daughter to secrecy the moment it happened.  As days passed I realized that this is not the worst that has happened to me and that I have shared muchContinue reading “Peekaboo”

Mind Games

In my post To make or not to make, I shared how my bed must be made if I want to be productive.  Well this week I had to trick my brain into giving my body the rest it required.  The week started out with my head feeling like it was filled with sand.  IContinue reading “Mind Games”

Snail speed

On a “good” day I move at the speed of a snail.  Because of my chronic conditions I function at 20 to 30% of what an average person does.  During an intense flare I am lucky if I function at 10%.  Throw in an illness like Bronchitis and my functioning level plummets to zero.  This is why I amContinue reading “Snail speed”

On the mend

This past week I discovered what was making me so sleepy the week prior.  Long story short, it turns out I have Bronchitis.  Nine days since it smacked me down and I am finally feeling like I am improving.  No where near “normal”, but there is definite improvement.  I would like to thank you allContinue reading “On the mend”

Under a sleep spell

I feel like I have been put under a sleeping spell, like Sleeping Beauty.  But unlike Sleeping Beauty, I don’t know what will break my spell.  It has been a while since I have been this sleepy.  I forgot how much I despise feeling so tired all the time.  I forgot just how much extremeContinue reading “Under a sleep spell”

Can’t win them all

No matter how someone treats their chronic conditions, we can all agree that there are good days and there are bad.  Then there are the days that have us feeling as though we are being physically tortured.  Overall this has been the best winter that I have ever experienced.  Not too cold, not too hot,Continue reading “Can’t win them all”

My San Francisco Adventure

Having never been to San Francisco I was more than excited to join my husband on his business trip.  Because this was a business trip I knew there wouldn’t be much time for site seeing, but I didn’t care.  I am just thrilled to have had the opportunity to see and taste as much ofContinue reading “My San Francisco Adventure”

The Year of Christmas

**UPDATE** October, 31, 2016 While my friends and family are stressing over trying to figure out when they are going to have either or both the time or energy to put up their trees and decorate for Christmas, I am relaxed and ready to partake in loads of holiday fun!  The year of Christmas hasContinue reading “The Year of Christmas”

One flare at a time

Living with chronic pain is not easy.. Some days are better than others, those are my good days. Those were the days when I would run myself ragged trying to catch up on and do all that I was unable to do while stuck in bed due to a severe flare. My down days were spent feeling guiltyContinue reading “One flare at a time”

Month of Thanksgiving

All over social media people are sharing what they are thankful for each day during the month of November.  Because I always forget to post what I am thankful for and then feel the need to throw a bunch into one post, I decided that the easiest way would be to post all 30 daysContinue reading “Month of Thanksgiving”

More tests, less answers

The quest to figure out what is causing the pain in my belly is taking much longer than I had expected.  Of course not being able to poop in a timely manner didn’t help either.  So far an ultrasound revealed a mass in my liver.  Then like magic, the mass was no where to beContinue reading “More tests, less answers”

Test, wait, get results, repeat…

Tests, wait, get results, repeat…. This has been my life since going to my doctor last month seeking relief from horrible pain in my abdomen.  Unfortunately I think this is going to be my life for quite some time. Yesterday afternoon I received a message from my doctor saying that my MRI results were normal. Continue reading “Test, wait, get results, repeat…”

Will my phone ever ring???

I don’t know which is worse…. Dealing with ever increasing symptoms along with my normal pains or waiting for my test results.  Although I am not a patient person, I have learned to practice some patience throughout my journey with pain.  Never have I wanted or needed test results so badly.  Last night I toldContinue reading “Will my phone ever ring???”

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