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Tag Archives: invisible disabilities

Weekend Recap February 4-8, 2019

 

 

 

 

 

 

Here is a rundown of this week’s articles!

Read what you missed and share what you liked!

 

 

 

 

 

Love is Stupid

In this article, Donna helps us overcome our insecurities and to recognize that we are worthy of being loved. Click here to read.

 

 

 

 

 

 

I Don’t Believe in That Disease

Have you ever had a doctor who didn’t believe in your chronic illness?  I have.  Having doctors who either didn’t believe that fibromyalgia was a real disease or that were totally uneducated in this disease put my life at risk when I was faced with an unrelated life threatening health issue.  Click here to find out what happened.

 

 

 

 

 

The Benefits of Charcoal Soap

My daughter and I have recently started washing our faces with charcoal soap.  Her for acne and eczema, and I for psoriasis and smoother, tighter skin.  Click here to find out what benefits there are to washing with charcoal soap and which brand we recommend.

 

 

 

 

 

 

Online Medical Marijuana Recommendations: Convenient or a Waste of Time?

Have you heard of doctors offering online medical marijuana recommendations?  I didn’t until last year!  Click here to learn about my experience and to see if this service is available in your area.

 

 

 

 

 

Why a Diagnosis is a Reason to Celebrate!

No one in their right mind would celebrate receiving a diagnosis of a disease that is incurable, right?! Or should they??!!!  Click here to find out why each of mine were a reason to celebrate.

 

 

 

 

 

28 Ways to Practice Self-Care

Click here for 28 ideas to help you love yourself this month!

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

PEMF therapy with Oska Pulse has taken my pain management plan to a whole new level! Click here to see how it has improved my chronic life and click here to learn more about the device and how it may help you too! BTW My discount code DIVA will save you $55.00 when entered at checkout!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Weekend Recap Jan 27- Feb 1, 2019

 

 

 

 

 

 

 

 

Weekly recap for Jan 27 – Feb 1, 2019

Two Simple Ways to Use CBD Isolate

28 Ways to Practice Self-Care

Love Every Move and Stretch You Make

Love Yourself Enough to Schedule a Rest Day

The Disabled Diva’s Review of Earthley Elderberry Elixir

 

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

This drug free pain relief device has take my chronic pain management plan to a new level of awesomeness! Click here to see how and click here to learn more about this life changing piece of technology.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Life can be tough, but so are you!

 

 

 

 

 

 

 

 

Life with one or more chronic illnesses is tough.

Life with chronic pain is tough.

Life, whether you are chronically ill or not, is tough.

But I have news for you! You are tougher!!!!

Yes, that is right.  I know that there are times when you don’t feel tough.  I also know that there are days when you truly lack physical strength, but that doesn’t mean that you aren’t tough.

As long as you are fighting for your life, looking for ways to improve it, finding joy in every day, and not giving up, YOU ARE TOUGHER THAN YOUR ILLNESS OR CHRONIC PAIN!

I know that taking a nap may feel like your illness has won, but it isn’t true.  You win when you acknowledge that your body needs to rest.  It takes guts to do what your body demands of you, instead of forcing your body to follow your desires.  It takes immense strength to go to physical therapy, to keep trying new treatments, to change your lifestyle, to make healthier choices, and most importantly accept that all these things must be done in order for you to remain strong enough to survive.

Here are three  examples to help you build and maintain the emotional strength that is necessary for living with a chronic illness or pain.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

 

 

 

 

 

 

 

 

 

 

 

 

Number One: Spend more time with people who lift you up and less with those who bring you down.

Those who constantly remind you of your limitations or are always bringing up your shortcomings, are only going to weaken you.  People who point out your strengths, help you find alternative ways to do things, or just cheer you on when you try something new will build your confidence.  Who are you spending most of your time talking to?

My life isn’t filled with people who understood how difficult living with fibromyalgia, psoriatic arthritis, psoriasis, endometriosis and its fallout, degenerative disc disease, and coccydynia is.  The difference between my life then and now is that I choose not to spend much time with those whose favorite word is CAN’T.  The more I hear that I can’t do something, the more I believe that I can’t do anything.  I may not be able to do everything the way I used to, but I CAN find new ways to do what I want.

 

 

 

 

 

 

 

 

 

 

Number Two: Seek counseling

I am not talking about joining a social media support group.  Those are okay to meet other people who “get” it, but not for truly dealing with your fears and life choices.  Nor is it fair to expect your family or spouse to be the ones to counsel you.  There are many options available for counseling depending upon your needs.

 If You Need A Crisis Hotline
The National Suicide Prevention Lifeline – 1-800-273-8255
SAMHSA (Substance Abuse and Mental Health Services Administration) – 1-800-662-4357
RAINN (Rape, Abuse, and Incest National Network) – 1-800-656-4673

Lifeline Crisis Chat
Veterans Crisis Line – 1-800-273-8255 (Press Option #1)
National Domestic Violence Hotline – 1-800-799-7233
MentalHelp.net (An American Addiction Centers Resource) – 1-866-308-2184
NAMI Helpline (National Alliance on Mental Illness) – 1-800-950-6264

And for those wanting regular therapy with a licensed therapist, but either have crappy healthcare coverage or none, and have either transportation issues or are just in too much pain to travel one or more days a week, Online-Therapy.com offers therapy when and where you want it.

My readers save 20% when they enroll via my affiliate link.  Click here to check them out and enroll.

 

 

 

 

 

 

 

 

Number Three: Start envisioning your future WITH your chronic illness.

I know that you are hoping and praying for a cure. I am too…. But the reality is that our chronic illnesses are most likely going to be with us for the rest of our lives, especially for those of us over 50. If your chronic illness isn’t included in all of your future dreams and plans, your future will be filled with disappointment. Not only that you, but you will be unprepared for the hard times that await you. Sorry to sound like a Debbie downer, but living with your head in the clouds waiting for life to magically be transformed will only lead to more heartbreak.

When you envision a future that includes your chronic illness, you aren’t giving up. Instead you will grow stronger because your mind will be focused on figuring out what you will be able to do, making alternative plans, or finding a different way to do what you had originally planned for. Will things go wrong? Of course they will! Do you know anyone who hasn’t had anything go wrong in their life? I don’t! The difference is that you will be better prepared.

I know you are tough, because if you weren’t you wouldn’t be reading this blog post. If you are feeling like you are stuck in your life, take a deep breath, assess your situation, make plans to move forward, and never forget that you are a warrior!

Therapy when you need it, where you want it…. ****** Save 20% when you click here to enroll.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Three ways I relieve chronic pain at Disneyland

 

 

 

 

 

 

 

 

After California legalized cannabis for recreational use in January of 2018, (it has been legal for medicinal use since 1996), Disneyland added marijuana and CBD to its list of items not permitted into their theme parks.  I will share my thoughts on this subject another day, but for today I want to share what I bring with me to get through a day in the parks without medical marijuana or CBD products.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Whether I was sitting in my wheelchair all day or walking everywhere as I do now, my spine takes a beating and must be tended to all day long.  To minimize swelling around my spine and in my hips I use a drug-free pain-relief device called Oska Pulse.  This little beauty is what made it possible for me to retire my wheelchair last year. It uses pulsed electromagnetic fields to reduce inflammation and pain like nothing I have ever tried.   While there are many PEMF therapy products available, this is the only one that is portable and safe to use wherever and whenever you want.  Click here to learn more about Oska Pulse.  FYI: As an Oska Pulse affiliate, I am able to offer you a discount of $55.00 when you enter my promotional code DIVA at checkout!

Click here to discover all the different pains and symptoms that this device has either greatly reduced or eliminated. Click here to visit Oska Wellness.

 

 

 

 

 

 

 

 

 

 

 

 

 

The downside to only treating pain with Oska Pulse is that when I am in the parks, I need to address pain in more than one area of my body.  When my lower back and knees flare at the same time, I often (especially in the cooler months) place my PEMF device above the worst knee and a Thermacare heat wrap at the base of my spine.  In warmer months I will place my Oska Pulse near my spine and use icepacks on my knees.  Heat wraps help relax my back muscles and provide comfort and relief.

 

 

 

 

 

 

 

 

 

 

Last, but not least, I bring along a blend of essential oils formulated for pain relief such as Mend.  While not as powerful as my CBD infused oils, they do help relax muscles and reduce pain well enough to keep me from having to leave earlier than I had planned.

 

 

 

 

 

 

 

 

 

 

 

Leave all CBD and cannabis products at home, in your car, or hotel room.  It is my hope that one day, as long as the guest can provide their medical marijuana certification, guests may be allowed to medicate with it in the parks, with the exception of flower because there are alternatives.  But until then, let’s respect Disneyland’s policy and find other ways to keep our pain levels low.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Twelve Ways to Improve Your Chronic Life

 

 

 

 

 

 

Twelve Ways to Improve Your Chronic Life

Every year I see hundreds if not thousands of posts on social media from people with chronic illnesses wishing for a better new year.  Their wishes for less pain, more energy, and for an easier life are not unreasonable.  The problem is that they are just that, wishes……..   Today I am going to share 12 ways to make them a reality.

*Disclosure: I am NOT a medical professional and am NOT issuing medical advice.  I am sharing my opinions, thoughts, and experiences. You should always confer with a medical professional when considering changes to your medical or pain management plan.  This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook Groups.

1.  Identify dietary triggers

You may have heard about keto, paleo, low fodmap, and other diets, but there is not a one size fits all diet that helps reduce pain from your particular chronic illness.  You may not need to cut out an entire food group, instead you may find that it is a certain ingredient or additive that you need to avoid.  I tried and failed to experience relief from multiple diets.  What helped me find my triggers was to journal what I ate and drank and compared that information to how I was feeling.  You can find details about how I did this in my eBook Make Pain Your Bitch: How to Dominate Your Chronic Life.

2. Move your body

I know being told to exercise is the last thing you want to hear, but as I have learned, lack of movement only increases chronic pain in my hips and spine.  Movement really is necessary.  Now before you close this tab, hear me out….. I am in no way suggesting that you begin with intense workouts at the gym or going for 5 mile walks every day.  What I am suggesting is that you find ways to move your body that doesn’t increase your pain.  Before I was able to walk for miles, I had to start with what I was able to do, which at that time was one or two five minute walks a day.  There is nothing wrong with having to do seated yoga, tai chi, or simple stretches.  Click here to discover another fun way to incorporate movement into your life.

 

 

 

 

 

 

 

 

3. Listen to your body

Do you feel like you spend all of your time recovering from every activity or outing?  Listening to your body could decrease that time.  Rest when your body wants to rest.  Unless you have to keep a set schedule, nap and sleep when your body demands.  Pace yourself by breaking large tasks down into sets of smaller amounts of time.

 

 

 

 

 

4. Utilize mobility aids

If walking or standing for extended periods of time are forcing you to stay home instead of going out, it is time to start using a mobility aid.  Seriously, get over yourself and do something your body will thank you for.  Click here to read about what helped me get past the stigma of using a mobility aid.

 

 

 

 

 

 

 

 

 

 

 

 

5.  Ask for help

Put your pride aside and ask for assistance!!! Stop assuming that people know your needs.  Just as difficult as it is for our friends and family members to understand our complex chronic illnesses, it is just as difficult to know how to help us.  Most don’t want to insult us, while others truly have no clue, so do everyone a favor and speak up!

 

 

 

 

 

 

 

 

 

6. Plan with your chronic illness/pain in mind

Always consider your chronic illness and pain when scheduling appointments, outings, and social events.  I like to think of mine as invisible traveling companions.  Click here to see how this mindset helps me plan, prepare, and enjoy traveling with my chronic illnesses.

7. Stop living your old life

If you haven’t made changes to how you live your life, it is time to do it!  I know you want to show your chronic illness who is in charge and that you are hopeful that you’ll be cured in the near future, but let’s get real, it is NOT going to happen.  I too want a cure, but not making changes to how I lived until that day comes would be a huge mistake.  The only thing living my life the way I did before becoming chronically ill only resulted in more pain and less time enjoying life.  Putting my pride aside and making changes decreased my pain level and allows me to spend most of my time seeking adventure.  Need help recognizing the changes you need to make?  Check out my eBook to figure out what they are and be challenged to made them.

 

 

 

 

 

 

 

 

 

8. Stop comparing yourself to others

How often do you find yourself comparing your life to others?  STOP!!! There is no comparison.  Even if you are comparing yourself with people who have the same chronic illness, there is no comparison.  Another person you may not have realized that you are comparing yourself to is the old you….. Life changes whether you like it or not, get over it, adjust, and move on.

9. Try something new

For twelve years I did everything the same and for twelve years the quality of my life plummeted. It wasn’t until I allowed myself to try new ways to combat chronic pain that I finally experienced a lower level of pain.  By permitting myself to do things differently than I did in the past I opened the door to a new and better life.

 

 

 

 

 

 

 

 

 

 

 

 

10. Don’t give up

I see too many people give up after they discover that they are unable to do something the same way that they did before becoming chronically ill.  Stop it!!! Don’t give up! Get creative and find new ways to do what you love.  Need help?  Click here!

11. Embrace the tools available

There are so many different tools and devices to make our lives easier.  Stop resisting them and put them to use.  Whether it be a mobility aid or assistive devices to make getting around your home safer, be thankful that they are available to use.

 

 

12. Take care of your mental health

Living with a chronic illness or in constant physical pain takes a toll on your mind as well as your body. I am no stranger to therapy and highly recommend seeing a therapist if you are struggling.  Our illnesses and pain often trigger bouts of anxiety and depression.  Let us not forget the fact that we need to mourn our old life and figure out a future that includes our illnesses/pain. The good news is that you don’t have to do it on your own. If pain or lack of insurance coverage is keeping you from seeing a therapist, you may be interested in Online-Therapy.comOnline-Therapy.com is a service that gives you more access to a therapist for less than what it would cost under many insurance plans.  Caring for your emotional health is the most important thing you can do to improve your life.

 

Don’t travel this holiday season if……

 

 

 

 

 

Just because everyone you know is traveling home for the holidays, it doesn’t mean you have to.  Too often I see people do things they really don’t want to do or have the emotional or physical strength to do in order to please family members or to keep up appearances.  Today I want to tell you that it is okay to not be okay with traveling during the holiday season!  And here are a few reasons why!

Don’t travel this holiday season if the pain you will experience afterwards will disrupt your life.

If traveling triggers a flare from your chronic illnesses, you should rethink packing your bags.  Pleasing family shouldn’t come at the expense of not being able to function when you return home.  Traveling during the holiday season exposes you to more people and germs than if you traveled in a less busier time of year.  Winter weather also increases your chance of becoming ill.  Having a chronic illness doesn’t mean that you can’t travel at all, but rather you should travel during seasons when you experience less pain and will be exposed to fewer germs.

Disclosure: I am NOT a medical professional and I am not issuing medical advice. This post contains some affiliate links. Meaning that, at no additional cost to you, I earn a commission from sales. The proceeds offset the expense of operating this site and fund the giveaways for my Facebook groups.

Don’t travel this holiday season if family drama makes you anxious.

Those of you who suffer from anxiety, know how debilitating it can be.  In fact if not managed well, it can literally paralyze us.  If spending time with family during the holidays increases your level of anxiety or triggers attacks, do yourself a favor and stay home! Don’t look at it as letting your obnoxious or manipulative family members win, think of it as winning by valuing your mental health.  However, I do suggest that you find a therapist to help you work through your emotions and possibly prepare you for dealing with those family members in the future should you decide to visit.  Online-Therapy.com is therapy that available when you need it and there is no need to drive across town.  My readers save 20% when they register through my link.  Click here to check them out.  Instead of putting yourself through an emotional battlefield, make plans to visit the relatives that you really want to spend time with during a time that wouldn’t warrant the whole family getting together.

 

 

Don’t travel this holiday season if you don’t want to…

Seriously, do NOT travel if you do not want to.  If the cost of travel, the wear and tear on your body, and mental exhaustion have your stomach in knots and you haven’t even booked your ticket, stop!! Again, seek therapy to find out if your fears are rational or not! Do not make a bad situation worse by forcing yourself to do something that will have a negative impact on your finances, or mental/physical health.

 

On the other hand, if traveling home for the holidays is really important to you, do it! But don’t act surprised or get upset about any additional pain you may experience or the time your body will need to recover after you return home.  Unless you are newly diagnosed, you know by now that living with a chronic illness changes everything.  You also know who a disrupted emotional state can increase and trigger flares as well.  What you decide to put your body through during the holiday season is up to you and only you are can decide what it is best.  With that said, will you be traveling this holiday season?  What steps will you be taking to reduce your odds of returning home in more pain?  Not sure?  Then check out my chronic travel trips!

Whether you choose to travel or not, I wish you a happy holiday season and a pain-free new year!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Diagnosed with a case of the no nos!

 

 

 

 

 

 

I have been diagnosed with a case of the no nos!!  And I don’t like it one bit!!!

Over the Thanksgiving holiday I came down with what I had hoped to be a simple chest cold.  Well, that simple chest cold quickly turned into bronchitis.  It has been over two years since bronchitis disrupted my life.  It has been two years since saying no was a part of my self care plan.  The improvements I have experienced in regards to my chronic pain has made saying yes to everything I want to do possible.  In a way I figured I’d never have to say no again, guess I forgot that chronic pain isn’t the only thing that can knock one down……

Hanging out with Walt the day after Thanksgiving

 

 

 

Disclosure: I am NOT a medical professional and I am not issuing medical advice. This post contains some affiliate links. Meaning that, at no additional cost to you, I earn a commission from sales. The proceeds offset the expense of operating this site and fund the giveaways for my Facebook groups.

The hardest part

Saying no really isn’t that hard for me.  As someone who has been living with chronic pain for over 20 years, I had make saying no part of my life or I wouldn’t have had the energy to do anything.  There were times when I could only commit to doing one activity a month.  Instead of being excited over choosing an activity, I would get depressed thinking about who I would have to let down.  But through the years I got better at juggling people and expressing why I had to space getting together farther out than if I wasn’t chronically ill.  Since the age of saying yes arrived, I forgot what it was like to let someone else down, what it is like to miss out on something, and how much having to rest impacts my daily life.  But that still isn’t the hardest part of saying no and having to rest, the hardest part is not allowing my dark friend depression con me into thinking that this period of recovery is where I will remain for the rest of my life.

 

Game of association

I associate time spent in bed and resting with all the years that I was in too much pain to leave my bed. In the past two years of feeling almost as good as I did before any diagnosis, I have struggled to give my body the time it needs to rest while recovering from a cold or injury.  I become anxious if I have to sit still for more than one day.

Fighting fear

I am at war.  Not only am I doing everything possible to get through this bout of bronchitis, I am fighting to remember that I have come a long way in the past few years and one case of the crud isn’t going to ruin that.  Sure I may have adjust my physical expectations until I am fully back to normal, but I don’t have to give up.  I have had to cancel a lot of plans since Thanksgiving weekend, this has been easier than I thought it would be.  But I remembered that pushing myself will only make things worse.  As I begin to improve, my biggest battle is to utilize my chronic pain tool kit in order to get out and live before I am 100%.  This means that not feeling ashamed or disappointed for having to use a wheelchair.  As I write this, (a few days before being published) walking for an extended amount of time or at a normal pace triggers coughing fits and pain in my chest and sets me back in my recovery.  My family and I have plans to do something that we have never done together this coming weekend and I am not going to let my pride stop it from happening.  If walking is still a problem, I will use my wheelchair and accept that I am doing what is best for my body that day.  And that by doing that I am not giving up.  I also have to remember that this is only an illness.  Yes, it may last for a month or two, but it hasn’t and won’t change the progress I have made in the past two years in regards to my chronic illnesses.  I can still walk without pain in my feet or back.  I can still spend my day out bed and work from my desk.

Not the same game

This bout of bronchitis is much different than any I have had in the past.  In the past, my ribcage and chest would hurt terribly from all the coughing.  This time I am experiencing no pain in either area thanks to my drug-free pain-relief device Oska Pulse (see picture below for more information).  It is also helping me sleep at night and it is breaking up my phlegm.  Another difference is that I am not experiencing a fibromyalgia or psoriatic arthritis flare.  Typically I have always experienced an increase of chronic pain when I am battling another illness.  I have hope that I will be able to cure my case of the no nos sooner than my case of bronchitis, but it will never happen if I don’t give my body the rest and care that it requires today.

Do you struggle with needing more downtime when you become ill?  Why or why not?

PEMF therapy has been a game changer in all aspects of my health, not just my chronic pain. Click here to learn about all the different ways it has improved my health. Want to learn more about this fantastic device? Click here to visit Oska Wellness and should you decide to give it a try, remember that my promo code DIVA will save you $55.00

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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