Tag Archives: health and wellness

Hospital Horrors Part 2: Desperate to be heard!

 

 

 

 

 

 

 

 

In last week’s blog post Why I fear hospitals, doctors, and test results I shared some of the ways that the medical profession has failed me and in some cases almost cost me my life.  Yesterday, just a few days after posting it,  I shared how was once again mistreated and misdiagnosed. Today I am sharing how the rage that filled me and the pain that consumed me helped get the answers I needed.  There was also a little bit of luck involved, but you will have to continue reading to find out what that was……

Continue reading

Hospital Horrors: Leaving in more pain than I arrived in

Hospital Horrors. I went in for pain relief and answers and left with more questions and pain

 

 

 

 

 

 

 

 

In last week’s blog post Why I fear hospitals, doctors, and test results I shared some of the ways that the medical profession has failed me and in some cases almost cost me my life.  Who knew when I scheduled that post that I would once again be mistreated and misdiagnosed just a few days later…..

Continue reading

Chronic Life: Does the waiting ever end?

 

chronic life does the waiting ever end

 

 

 

 

 

 

#CHRONICLIFE

Does the waiting ever end?

Living with one or multiple chronic illnesses involves a LOT of waiting.  We wait for doctor appointments, test results, pain relief, cures, diagnoses, people to understand, and so much more….  But does it ever end?  There is no simple answer for this question.

My chronic illnesses which include but are not limited to, fibromyalgia, psoriatic arthritis, psoriasis, degenerative disc disease, abdominal adhesions (from endometriosis and surgical scarring), and coccydynia, have all forced waiting periods into my life when I would have rather not been sitting around waiting.  The problem with all the waiting that has to be done is that waiting then becomes a way of life.  However, as I discovered after the first 12 years after my first diagnosis, there are some things that we shouldn’t be waiting for, like living.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

What are you waiting for?

My early chronic years were spent waiting for answers, test results, and most of all pain relief.  Even though I heard my doctor say “There isn’t a cure, but we can treat the symptoms”, I wasn’t able to accept that I would never be 100% pain free.  I kept waiting for that unattainable dream of waking up without pain and being able to do whatever I wanted.

Although I had no choice but to wait for test results, to recover from surgeries, and for treatments to begin to working, my life was meant to be lived.  Waiting to live caused me to miss out on a lot.  I missed out on many opportunities to grow as an individual, to spend with others, to make memories with my family, and so much more.

In my eBook Make Pain Your Bitch: How to Dominate Your Chronic Life, I share how to live a good life despite your chronic illnesses.  My life didn’t change overnight, it took time, patience, and hard work to create a life that I am passionate about.  Nor did I wait until my pain level became manageable, no I began carving out my new life while flat on my ass in one of the darkest periods of my chronic life.

Chronic pain or any new twists or turns that my chronic illnesses want to take will never hold me back again.  Why? Because I won’t let them.  If my body won’t let me do things one way, I will find another.  If I have learned one thing throughout 20 years of living with my chronic illnesses it is that life should never be put on hold, no matter what I am waiting for.

Waiting room meditations. Buy book

 

 

 

 

 

 

 

 

 

Why are you waiting?

I vividly remember the day in 2013 when I realized that I had been waiting to live.  That I had done nothing with my life since my symptoms began disrupting it.  That, when you think about it, I had lost over a decade of my life.  The heartbreaking part was that I was also raising children who were watching me wait.  Existing was the last thing I wanted my kids to do.

When I realized that I had been waiting to live, I had to ask myself why I did it.  The answer came easily, I was waiting to be healed, even though I knew that would never happen.  Why did I wait so long for something I knew would never occur?  Because, being healed would make what I wanted to do so much easier…….  Friends, that hit me like a ton of bricks….. I wanted life to be easy.

Life isn’t easy for anyone, even those who aren’t chronically ill have their challenges.  Reaching my goals would never be easy or pain free, but instead they would require a lot of hard work and sacrifice.

Take a chance, don’t let the unknown diagnosis or unexpected flare stop you from creating a life that is filled with passion and purpose.

Girl, Stop Apologizing: A Shame-Free Plan for Embracing and Achieving Your Goals

 

 

 

 

 

 

 

 

 

 

What can be done while waiting?

I will be the first to confess that it is extremely difficult to think about the future while waiting on a medical test result or diagnosis.  If you are like me, your mind goes to all the worst case scenarios and not one of them includes a future you can bare to think about.  But we can’t allow the unknown to control our destiny.

Instead of continuing to allow my life to abruptly come to a halt, I began looking at alternative ways to make my dreams come true.  If a particular diagnosis is going to dictate that I can’t do something the way I have, I begin looking for other ways to continue what I am doing.  For example, working from bed doesn’t mean that I am working less than if I traveled to an office every day.  Nor does using a mobility aid make spending the day at Disneyland any less special than when I am on foot.

Currently, I am experiencing a flare up from abdominal adhesions.  Thankfully, my pain management plan is keeping pain from my other chronic illnesses under control, because combined my pain level would be off the charts.  However, the abdominal pain I am experiencing is forcing me to do things a little differently.  Here is how I continue to live while waiting for relief…..

  • I accept assistance
  • Allow for a flexible schedule
  • Use mobility aids
  • Cancel or turn down anything that will derail me from what most needs my attention and energy
  • Practice patience with myself and body
  • Listen to my body and give it what it demands
  • Breathe: I allow myself to enjoy small moments and to be okay with living differently than my friends and family.
  • I forgive myself for not being the perfect, pain free, super woman I wish I were.

What are you currently waiting for? Why and what can you do in the meantime?

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Chronic life Does the waiting ever end

How Charlie’s Angels Prepared Me to Live with a Chronic Illness

Pictured Charlie's Angels. Title: How charlie's angels prepared me to live with a chronic illness

 

 

 

 

 

 

 

How Charlie’s Angels Prepared Me to Live with a Chronic Illness

I may have been born in the late 60’s, but I am a child of the 70’s!

One of my favorite television shows of the seventies was Charlie’s Angels.  Not only did I never miss an episode, the following day I would make my friends act them out with me! For those of you who are not familiar with this show, Charlie had a private detective agency and he hired three sexy women that he called angels.  The original angels were Farrah Fawcett as Jill Munroe, Kate Jackson as Sabrina Duncan, and Jaclyn Smith as Kelly Garrett.  They were badass women kicking butt and uncovering mysteries.

I wanted to be an Angel, Jill in particular because, well, hello that hair!!!!!

Little did I know that a show about beautiful, strong, and intelligent women would also give me the “know how” I would need to surviving life with not just one, but multiple chronic illnesses!

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Look for clues

When I was diagnosed with fibromyalgia, psoriatic arthritis, psoriasis, degenerative disc disease, coccydynia, and endometriosis, I had no clue that each chronic illness would lead to a life of searching….

Searching for what you ask? What not would be easier to answer, but whether you have one chronic illness or a slew of them, the life of the chronically ill is spent searching for ways to relieve pain, new symptoms, reoccurrence of old symptoms, side-effects, and treatments. The chronically ill spend a lot of time investigating their bodies, the fluids that come out of them, their mental status, abilities and disabilities.

Thankfully Charlie’s Angels taught me to never give up and that there is always an explanation.  My doctors may have given up, but I will never give up searching for the source of my chronic illnesses.

Trust my instincts

Like any good detective, I have learned to trust my instincts.  I received my first chronic illness diagnosis in 2001 and since then I have had countless tests come back and show nothing wrong when I went in with a complaint of pain.  Thanks to my Angel training I knew not to accept that answer and kept pushing the issue and presenting new clues to my doctors.  In several cases, tests showed absolutely nothing wrong with me, but surgeries revealed the truth.  The findings of each surgery proved and validated my complaints by being something that no test could have ever revealed.

Trusting my instincts has saved my life countless times and will until I am no longer able to speak for myself.  I can never stress enough how important it is to be your own advocate!

Know when to fight

Like a well trained private eye, I know how to protect myself.  While I may not be punching or handcuffing my enemies, I have to fight to receive the care I deserve and need.  I have learned when fighting a doctor about a diagnosis or test is worth my time or not.  Sometimes my energy is better spent finding a new physician.

I have also learned to listen to my body.  It will let me know if the situation is urgent or if it can wait a little longer.  This instinct also helps me get through life.  I have learned what levels of pain and exhaustion can be pushed through and what cannot.

Teamwork works

Living alone, void of any assistance from others when you have a chronic illness is possible, but it’s not realistic.  Whether you are married or not, it is best to have a team.

First you need a medical team that is working together and not against each other.  They and you, need to be on the same page about treatment of the disease and pain.

Then you need your personal team.  You need someone that you can confide in, because trust me there are going to be days when you just need to vent your fears without terrifying your spouse/partner.  My husband is a fantastic team member that I don’t ever want to be without.  He has witnessed the horrific treatment from surgeons and has been there for me at the absolute worst moments of my illnesses.  Other teammates that are beneficial are folks to help with transportation, provide an occasional meal, or to tidy up your home when you are at your worst.   No matter what, you need someone in your life to make you laugh, because without laughter we are only left with sorrow.

Be sure to train one or more of your team to be your patient advocate.  You may not always be alert enough to express your requests or needs.  Having someone who can speak for you when you are unable is invaluable!!!

Thanks to the skills I learned from Charlie’s Angels, I continue to fight pain, solve symptom mysteries, and refuse to give up!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The Disabled Diva’s Blog Weekend Recap March 4, 2019

 

 

 

 

 

 

 

 

 

The Disabled Diva’s Blog Weekend Recap!

March 4-8, 2019

Tears: I hold them back, until pain pushes them out

Spring Clean Your Chronic Life

Mobility Aids: Everybody uses them

What I have learned from using PEMF daily for two years!

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Hey psoriatic arthritis buddies or caregivers!!!

Could you please spare a few minutes to take a survey that will help create beneficial programs for the psoriatic disease community?
Click here to take survey
Thank you!

 

 

 

Spring Clean Your Chronic Life

 

 

 

 

 

 

 

Think spring cleaning only involves giving your home a good cleaning?

Think again!

Disinfect Your Diet

Clean up your personal care products

Spruce up your view!

Spring Cleaning doesn’t have to be painful

Sanitize your social circle

Five ways to make your home chronically safe and friendly

Scrub away negative thoughts

Spring Clean your social media feed

Cleanse your calendar!

 

 

Spring Clean: Spruce up your view!

 

 

 

 

 

 

 

What does spring cleaning mean to you?

For some it may be a time to put away their winter gear and start pulling out their outdoor stuff.  Others may think of it as a time to go through the house and garage gathering items no longer needed or used and then donating them to charity.  Of course there is the traditional thought of spring cleaning which is to give your home a full no inch, nook, or cranny missed cleaning.

Today I am going to present you with a spring cleaning idea that you may not have thought of…….

Sprucing up your view!

Here are three views that you should consider sprucing up this spring!

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Outdoors

What do you see when you look out the window near where you spend most of your time?  If you see trash, abandoned or inoperable vehicles, or anything that doesn’t make you feel good to look at, it is time for a change.  Moving is one option, but not always the best, easiest, or affordable.

So what can you do to change your view?  Hang curtains with a print that brings you joy, but don’t cover the entire window.  Instead of hanging the rod at the top of the window, hang it halfway.  That way you will still get the natural light your body and mind both need, without having to look out on a scene that makes you cringe.

 

 

 

 

 

 

 

 

 

 

Another option is to rearrange your furniture so that it gives you another angle to look out that window.  By moving my bed from one wall to another in a former home, I swapped my view of a traffic light for one of a beautiful tree filled with flowers in the spring.

Indoors

If your chronic pain from chronic illnesses such as fibromyalgia, psoriatic arthritis, lupus, or MS is high, you probably spend most of your time in you bedroom or in the living area.  I know that is where my time is spent when my pain is not being managed well or when I am recovering from an injury.

Look around the room/area that you spend the most of your time in.  Does it make you feel anxious, agitated, angry, or annoyed?  It shouldn’t.  The place you spend the majority of your time in should be a place that makes you happy, that calms you, that provides comfort and peace.  If that doesn’t sound like the area that you spend the most of you time in, it is time for a change!

First, clean it up!  Avoid having piles of items that need to be put away.  If you really can’t keep up with putting things away, use pretty baskets to collect and store the items in until you can.

Second, make it comfortable! Do you have somewhere comfortable to sit?  Could you use some new bedding? If the area is dull and dreary looking, brighten it up with vibrant colors and prints.

Last but not least, give yourself something to look at! Whether it be a piece of artwork or real/artificial flowers, find something to have on your walls or shelves that brings you joy.

Mental

Now time for the view we would rather not think about….. our view on living with our chronic illness(es).  How do you view your life?  Do you think it sucks, is miserable, or not worth living?  It is time to get some help.  I am not saying that you have to be positive all the time, I am not.  But, the difference between having a bad moment and life is that with a bad life you can’t find things to be thankful for, to like, or enjoy.  The thing is, life with a painful chronic illness can include joy.

I have said this before and I will say it again, there is no shame in seeing a therapist!!! Too many people think they can handle everything on their own, but they are wrong.  Therapy has been an important part of my dealing with past abuse and my chronic illnesses.  If your insurance provider doesn’t provide adequate mental health coverage, is expensive, or you just don’t have the physical strength to go out to see a therapist, I highly recommend Online-Therapy.com. Their therapist provide the therapy you need when and where you need it most.

Other tips to help clean up how you view your life includes, but is not limited to, the following:

  • End each day listing what you WERE able to do
  • Create realistic plans, not plans that require you to be 100%
  • Be gracious to your body for what it can do
  • If you must focus on what you can’t do, do it only to find a new way to perform that task or activity.  Find an alternative solution.
  • Practice showing yourself compassion

Therapy when you need it, where you want it…. ****** Save 20% when you click here to enroll.

 

 

 

 

Which of your views needs sprucing up?

 

%d bloggers like this: