How to plan the best summer vacation despite your chronic illness

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How to plan the best summer vacation despite your chronic illness

Does the thought of taking a summer vacation get you excited or does it send chills down your spine?Β  I loved traveling before I became chronically ill.Β  In addition to yearly Disneyland vacations, I loved exploring new areas in other states or within the ones that I lived in.Β  Weekend road trips without a destination were my favorites.
Soon after chronic pain became a part of my daily life I began to loathe traveling.

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unpack your unrealistic vacation expectations

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Unpack Your Unrealistic Vacation Expectations

Living with multiple chronic conditions has changed many things in my life, including what I expect from a vacation.Β Psoriatic arthritis, fibromyalgia, and endometriosis often create havoc before, during, and after each trip.Β  I may not be able to escape my conditions for a week, but I can still have a fabulous getaway by having realistic expectations.Β  Here are five unrealistic vacation expectations and how I turned them around.

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Vacation Downtime

In the past, I was on the go from the moment I left home to go on vacation until the moment I arrived home.Β  After chronic illnesses entered my life, I began scheduling downtime prior to and following my trips.Β  However, this was not enough after my conditions progressed. In the past year, I have realized how important it is to NOT schedule outings or expect my body to be willing to leave my bed for a minimumΒ of aΒ day or twoΒ after arriving at my destination.Β  Whether by train, plane, or automobile, traveling takes a toll on a chronically ill body. After two days of riding in a car, my body is thanking me for not scheduling anything that requires leaving the hotel for the next few days.Β  Typically I would start scheduling outings for the second day, but because I have four fun-filled days planned with family at the end of the week, I knew I needed to take precautions.

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Spoonies are like snowflakes, each has a different story to tell

Recently a fellow spoonie posed a question online.Β  She asked if she should share the details of her struggle because some people have rudely questioned her disability.Β  They say that she is just fishing for attention.Β  Anyone who suffers from chronic conditions like Fibromyalgia, Psoriatic Arthritis, Lupus, Lymes, MS, Endometriosis, etc… knows that the struggle is real.Β  We also know that most blogs don’t express the whole truth, including mine.Β  I am not suggesting that we are saying we are sick when we are not, because that is not the case.Β  While I do share quite a bit about my struggle, many times I omit the really ugly aspects of my conditions.Β  I don’t necessarily do it purposefully; it’s just that sometimes I don’t want to be reminded of how bad it can be. Living with painful chronic conditions is exhausting, both physically and emotionally.Β  A day doesn’t go by without us experiencing some sort of pain or complication.Β  We

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