In the past, I was on the go from the moment I left home to go on vacation until the moment I arrived home. After chronic illnesses entered my life, I began scheduling downtime prior to and following my trips. However, this was not enough after my conditions progressed. In the past year, I have realized how important it is to NOT schedule outings or expect my body to be willing to leave my bed for a minimum of a day or two after arriving at my destination. Whether by train, plane, or automobile, traveling takes a toll on a chronically ill body. After two days of riding in a car, my body is thanking me for not scheduling anything that requires leaving the hotel for the next few days. Typically I would start scheduling outings for the second day, but because I have four fun-filled days planned with family at the end of the week, I knew I needed to take precautions.
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Recently a fellow spoonie posed a question online. She asked if she should share the details of her struggle because some people have rudely questioned her disability. They say that she is just fishing for attention. Anyone who suffers from chronic conditions like Fibromyalgia, Psoriatic Arthritis, Lupus, Lymes, MS, Endometriosis, etc… knows that the struggle is real. We also know that most blogs don’t express the whole truth, including mine. I am not suggesting that we are saying we are sick when we are not, because that is not the case. While I do share quite a bit about my struggle, many times I omit the really ugly aspects of my conditions. I don’t necessarily do it purposefully; it’s just that sometimes I don’t want to be reminded of how bad it can be. Living with painful chronic conditions is exhausting, both physically and emotionally. A day doesn’t go by without us experiencing some sort of pain or complication. We
read more Spoonies are like snowflakes, each has a different story to tell