Advertisements

Tag Archives: fibromyalgia

I Don’t Believe in That Disease

 

 

 

 

 

 

 

 

 

I used to think having to be retested for a disease whenever a new physician didn’t believe that I had it was frustrating.  I can’t tell you how many times I was told by a new doctor that they didn’t believe my diagnosis of psoriatic arthritis from another physician.  Each time they wasted my money and time by reordering all the same tests, that wow, surprise, had the same results.  Thankfully, they would accept their own results and move on.

My diagnosis of fibromyalgia has been more problematic. In fact it almost cost me my life……..

Soon after receiving my diagnosis of fibromyalgia, I began having abdominal pain. I began seeing my gynecologist way more than I ever did while pregnant with my daughter.  During one visit I mentioned my diagnosis of fibromyalgia and he said, and I quote “That’s not a real disease.”

Believe it or not, his thinking that fibromyalgia wasn’t a real illness actually helped me for the first two years.  Because he didn’t believe in it, he pushed my insurance provider to approve an exploratory surgery when all tests came back showing nothing wrong.  That surgery revealed that I had endometriosis and an extremely large ovarian cyst.  The cyst and adhesions had pulled my bladder, uterus, and left ovary towards my sidewall.  In addition, they not only pulled my left fallopian tube towards the sidewall, it had adhered and embedded itself into it!

The pain and symptoms returned within a year. Thankfully he still didn’t believe in my chronic illness and agreed to perform a hysterectomy.  That surgery revealed a belly full of adhesions and a bunch of ovarian cysts.  In addition to what was found in the prior surgery, adhesions were also pulling my rectum towards my sidewall.  So far so good, right?! In fact you may be wondering how this led to me almost losing my life. Less than six months later, the pain on my left side returned and……..

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

 

 

 

 

 

 

 

 

 

 

 

 

 

I was horrified when the pain returned.  My OBGYN had removed my uterus, ovaries, and fallopian tubes.  I had also had an appendectomy prior to the hysterectomy.  There wasn’t anything left that could be causing the pain that I was experiencing.  I returned to my gynecologist who after hearing about my pain, decided to blame my pain on fibromyalgia! The very disease he adamantly denied existence of became an easy way for him to get rid of a complicated patient.

Over the course of two years I went from one surgeon to another.  Not one would consider that I could still be experiencing problems from endometriosis or that it was possible that something went wrong with my hysterectomy.  One after the other opened my chart, without running any tests or performing any type of examination, and blamed fibromyalgia.

You may be thinking, wait a minute, those doctors believed that you had fibromyalgia!  I will never know whether they really believed that I had it or not, but I do know that they knew very little, if anything, about the disease.  When I would explain that his had never been one of my fibromyalgia symptoms, they would just say that they heard it was a symptom of it.  If they didn’t blame fibromyalgia, they told me that it was all in my head and that they would happily refer me to a psychiatrist.  Then they would close my file and leave the room…….

Two years, twenty surgeons, not one was willing to help me.  Each and everyone blamed an illness they knew little to nothing about and even denied until it became an easy scapegoat.  These men made me doubt my sanity, made everyone except for my husband and children think that I had lost my mind.  Friends and family believed that I was depressed, addicted to opioids (why else would someone go to the emergency room as much as I did), or that I wanted surgery for attention.  Funny thing about the last thing, is that all those who didn’t believe me, never helped out during the prior surgeries.  In the meantime my pain increased, I became weaker, and sicker.

Long story short, surgeon number twenty-one finally believed me and agreed to perform surgery.  What he found shocked me, the attending nurses, and the surgeon himself.  I had adhesions everywhere.  He had to scrape from my cervix up to my diaphragm. He also found that a large portion of my left fallopian tube had been left behind during the hysterectomy.  It was infected, covered in endometriosis, and was embedded into my sidewall.  Not only was it embedded into my sidewall, there was evidence of how it had adhered and embedded to other areas of the sidewall and was pulled out by adhesions.  If that wasn’t enough, my bowels were being strangled by adhesions.  But according to my original surgeon and 20 more, it was either fibromyalgia or in my head……..

 

 

 

 

 

 

 

 

 

 

 

 

 

 

My saga doesn’t end here. But the point of this post isn’t to share the entire story, but to demonstrate how if any of those surgeons had believed in or had any knowledge about fibromyalgia, I wouldn’t have had to suffer the way I did.  I have always despised my diagnosis of fibromyalgia and will continue to until doctors choose to learn more about it.  The ignorance of 22 surgeons almost cost me my life. As the surgeon who found the mess informed me, having my bowels strangled like they were would have killed me.

It doesn’t matter if a physician believes in fibromyalgia if they are not educated in it.

Have you ever been told that your disease isn’t real by a doctor?

Have serious unrelated symptoms/illnesses been overlooked because of your diagnosis of fibromyalgia or other disease?

The damage I suffered continues to haunt me and put my life at risk.  Don’t let the ignorance of one or twenty-one doctors put your life in danger. Had I given up, I wouldn’t be here to share my story with you today.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Advertisements

Weekend Recap Jan 27- Feb 1, 2019

 

 

 

 

 

 

 

 

Weekly recap for Jan 27 – Feb 1, 2019

Two Simple Ways to Use CBD Isolate

28 Ways to Practice Self-Care

Love Every Move and Stretch You Make

Love Yourself Enough to Schedule a Rest Day

The Disabled Diva’s Review of Earthley Elderberry Elixir

 

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

This drug free pain relief device has take my chronic pain management plan to a new level of awesomeness! Click here to see how and click here to learn more about this life changing piece of technology.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Two Simple Ways to Use CBD Isolate

 

 

 

 

 

 

 

 

I first began using CBD to combat chronic pain, anxiety, and depression in 2013. At that time the only forms I knew of and was comfortable using were tinctures, topicals, and edibles.  In the past year I gave two more forms a try and fell in love with them! Vaping and isolates have become my favorite forms of CBD.  What I love about using a CBD isolate is that there are many different ways to use it, it’s easy to measure, and since a little goes a long way it is also cost effective.  Here are two of my favorite ways to medicate with CBD isolates.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups. Any medical statements have not been evaluated by the FDA, and this product is not intended to diagnose, treat, or cure anything.

 

 

 

 

 

 

 

 

 

 

 

Straight up

The easiest and quickest way to consume a CBD isolate is to place it under your tongue.  It is flavorless and dissolves quickly.  Click here for milligram measuring spoons.  I have yet to experiment to see what dosage would work best for me for daytime use or to quiet an anxiety attack, but for night time muscle relaxation and calming I consume 25-30mgs.

 

 

 

 

 

 

 

 

 

 

 

Sprinkled

I haven’t tried cooking with it yet, as I have heard that if you cook at too high of a temperature the isolate loses effectiveness.  Instead I like to sprinkle it on a bedtime smoothie bowl or ice cream. I also like to add it to an evening cup of hot cocoa, but not until I give the cocoa a moment to cool off.  Again it has no flavor so it you don’t even notice it, that is until it kicks in!

My next project will be to make my own topical oil!

Anyways, if you are looking for an easy and affordable way to use CBD, I would recommend starting with an isolate.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

28 Ways to Practice Self-Care

 

 

 

 

 

 

 

 

Valentine’s day may be just a day, but I liked to love myself all month long.  Whether you are burnt out from living with one or more chronic illnesses, a workaholic, or both, here is a list of 28 ways to make some time and to do something just for YOU!!! Pick a few or do them all!

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

 

 

 

 

 

 

 

 

 

 

1. Drink plenty of water: I know this doesn’t sound like much of a “treat”, but it is for your body! Water helps maintain balance of your body fluids, energizes muscles, and makes your skin look good!

 

 

 

 

 

 

 

 

 

 

2. Take a bubble bath: Fill your tub, light some candles, turn on some soothing music, and relax.

 

 

 

 

 

 

 

 

 

 

3. Call a friend: Carve out time to have a phone date with a friend. Hearing my besties voice at least once a month makes up for us not being able to hang out in person. Whether your friend lives nearby or out of state, a phone date is an easy way to make time for each other.

 

 

 

 

 

 

 

 

 

 

4. Go stargazing: Go outside and watch the stars.  If you have the energy, get out of the city.  Go where the stars shine bright.  For fun, try to spot various constellations. Click here for a guide to help you find the constellations. 

 

 

 

 

 

 

 

 

 

 

5. Enjoy a cup of hot chocolate:  Want to know how I make my hot chocolate extra special?  I add 30mgs of CBD isolate to my cup and then I top if off with whipped cream and chocolate shavings.

 

 

 

 

 

 

 

 

 

 

6. Spend some time in the sun:  I get that not everyone lives where it is nice enough to sit outside during the month of February, but there are still ways to soak up some sunshine.  If you can’t sit outside, try siting by a window that allows the sun to pour into your home.  Open your curtains, let light into your house. Not enough?  Click here to learn more about a heat lamp that helps to improve circulation!

 

 

 

 

 

 

 

 

 

 

7. Start a journal: Journaling can be done in various ways.  You can use it as a way to share your life story with future generations, to release your fears or anger, to keep track of your daily wins, or to learn more about your body and behavior to possibly prevent some nasty flares.

 

 

 

 

 

 

 

 

 

 

8. Take a nap: Yes, I know that those of you with chronic illnesses take a lot of naps.  But when was the last time you took one just because you wanted to?

 

 

 

 

 

 

 

 

 

 

9. Warm your pajamas in the dryer for a few minutes before putting them on.

 

 

 

 

 

 

 

 

 

 

10. Get dressed up for no reason: During the years that were spent in bed and even now with working from home, I don’t really have a reason to dress up.  Every once in a while I will put on a fancy dress just to feel good about myself, even though I have no plans to leave the house.

 

 

 

 

 

 

 

 

 

 

11. Spend the day in your pajamas for no reason:  If you are like I was before getting my chronic pain mostly under control, you probably spend most of your days in your pajamas.  However, have you done it because you wanted to?  I find there is a huge difference in how I feel about myself when I am being forced by my illnesses to do something rather than when I choose to do the same thing.

 

 

 

 

 

 

 

 

 

 

12. Donate items you no longer use:  I used to decorate my home with all kinds of knickknacks and trinkets.  But after chronic pain entered my life, I didn’t have the energy to keep up with dusting or cleaning all the items I had out.  Nor did I have the energy to sort through drawers or closets trying to find what I needed.  Purging my home of what I no longer used and decluttering my space simplified my life.  It takes less time and energy to clean and I no longer have to go hunting for the items I do use.

 

 

 

 

 

 

 

 

 

 

13. Exercise:  Whether it be going for a run, walk, practicing yoga, or tai chi, do something good for your body.  There are many options for doing yoga while seated.  Click here to see if this form of exercise might work for you.  If chronic pain is preventing you from exercising or you are looking for an alternative to opioids, click her to check out a drug free pain relief option that took my pain management plan to a whole new level of awesome.

 

 

 

 

 

 

 

 

 

 

14. Get a mani-pedi:  Make an appointment at your local salon/spa or do it yourself.  Having well manicured finger and toe nails always makes me feel better about myself.

 

 

 

 

 

 

 

 

 

 

15. Plan a spa day:  Book yourself a day or afternoon at a spa.  Schedule a facial, massage, or both.  Can’t afford a spa day?  Invite a friend over or have one by yourself at home.  Purchase face masks, soak your feet, sip champagne, and nibble on some fruits and cheese!

 

 

 

 

 

 

 

 

 

 

16. Read a book:  When is the last time that you made time to get lost in a book?  Re-read a favorite or dive into a new one.  Click here for my recommendation!

 

 

 

 

 

 

 

 

 

 

17. Dance:  Turn up your favorite song and dance!!! I do this at least once a week.  It’s a great way to let go of physical stress, burn some calories, and an opportunity to just let myself go wild.

 

 

 

 

 

 

 

 

 

 

18. Enjoy a smoothie:  It doesn’t matter if you make it yourself or pick one up from Juice it Up, treat your body and taste buds to a delicious smoothie.  Just make sure to take the time to savor and enjoy it.

 

 

 

 

 

 

 

 

 

 

19. Binge your favorite show:  Spend a day doing nothing but binge watching your favorite show.  I prefer binge watching over viewing a series once a week.  It’s like watching a long movie! Click here to get 2 weeks of Hulu FREE!

 

 

 

 

 

 

 

 

 

 

20. Make a memory jar:  Throughout the year, whenever I have a moment that makes me smile or jump with joy, I jot it down and place it in what I call my joy jar.  Then at the end of the year, I go through it and am once again reminded of the good in my life.  Click here to learn more about it and how to make your own.

 

 

 

 

 

 

 

 

 

 

21. Write yourself a love letter:  It is easy to forget what we like about ourselves.  Take some time to write a letter reminding yourself of all the reasons you love you!

 

 

 

 

 

 

 

 

 

 

22. Watch a comedy:  When I need to escape, I like to get lost in a comedy.  Sometimes laughter really is the best medicine.  Click here to see which comedy is my first choice.

 

 

 

 

 

 

 

 

 

 

23. Make time for a hobby or try a new one:  When is the last time you enjoyed your hobby?  Maybe you gave it up or were forced to because your body wouldn’t allow you to do it anymore.  Either way, make time to resume a hobby or try something new.  Who knows, it may provide a distraction from pain.

 

 

 

 

 

 

 

 

 

 

24.  Tidy up one corner of a room:  Fully cleaning a room is typically too much for the chronically ill. Instead, try doing a corner of one room today, then another tomorrow, and so on.  In time you will have tackled every corner without killing yourself and you will go to bed each night with a sense of accomplishment.

 

 

 

 

 

 

 

 

 

 

25. Take a social media break:  Every once in a while I take mini social media breaks.  Sometimes it is just a day, but when I find that my social media feed is fueling my anxiety and depression I take two or more days off.  I don’t make a big deal about it, in fact I never announce it.  I just don’t open the app, post, or comment.

 

 

 

 

 

 

 

 

 

 

26. Create an uplifting playlist:  Fill your playlist with songs that make you smile, tap your toes, dance, and sing out loud!

 

 

 

 

 

 

 

 

 

 

27. Have a good cry:  Most people would never know this about me, but I love a good cry.  I love having the house to myself, watching a sappy movie, and just letting myself bawl like a baby.  Having an occasional cry is why I am able to be as happy as I am most days.  It is liberating to release the anger and sadness that chronic illness cause.  Can’t get time alone?  Grab a Bluetooth speaker, crank some tunes, take a long shower, and let those tears flow!!

 

 

 

 

 

 

 

 

 

 

28. Unfollow toxic people on social media:  Stop following people who are always angry, picking fights, or are emotionally abusive.  You become what you are exposed to the most.  Instead, follow people who inspire and uplift you.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Love Every Move and Stretch You Make

 

 

 

 

 

 

 

 

February is the month of love! It’s a time to express your love to someone special.  A time to spoil them or give them a gift that will make them feel all warm and fuzzy inside.  But what about you? Shouldn’t you show yourself some love?  I think so and that is why I have themed my Fitness Buddy February Challenge around loving ourselves.

Think about the last time you were sick or injured……. I am assuming that exercising took a back seat to resting and healing, as it should.  If you are like me, not being able to exercise drove you bonkers and you couldn’t wait to return to your fitness routine.  What? You don’t enjoy working out?  Ok, maybe you weren’t chomping at the bit to go for a 2 mile run, but I bet you wanted to get back to your normal level of activity.

Next I want you to think about your attitude as you were gaining strength, but not just quite near where you wanted to be.  Did not being able to reach your pre-injury/sickness goals frustrate you?  Were you angry with your body?  Did having to go slower or only do half of what you wanted make you want to give up?  If so, that is what this challenge is all about.

A few of us were sick in December and a lot of our group had a tough January. One thing I noticed as people were on the upswing, was that they expressed frustration and disappointment about what they did achieve when it wasn’t what they were used to doing.  BTW, I was guilty of doing this too.  In fact, it was my own comments that drew my attention to this problem.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

 

 

 

 

 

 

 

 

 

 

For the month of February, my fitness buddies and I are going to get a lesson in loving every step and stretch our bodies make. Typically, participants of my challenges earn entries for the drawings by posting their results and meeting their goals….. This month I am adding an extra entry for being proud of what they were able to accomplish whether they met their goal or not.  Check out the rules below and if you are not a member already and would like to participate, click here to join The Disabled Diva’s Fitness Buddies.

Love every step and stretch you make challenge

This challenge has three phases and will last for a total of three weeks.

Week one

Feb. 4-10

Declare a daily goal. Accepted goals are daily steps or number of exercise minutes. Each evening before you go to bed or no later than 8AM PST the following morning, comment on the daily check in post with your results.  For this week and this week only, meeting your goal and just posting your results will NOT earn you an entry to the drawing and screenshots from your fitness trackers are not mandatory. The only way to earn an entry for week one is to post your results with a positive statement.  Example: “I love that my body allowed me to walk for as long as it did today” “I would like to thank my muscles for allowing me to swim for 20 minutes today”  I don’t care if you were only able to take 550 steps or stretch for 5 minutes, I want you to be thankful and to express appreciation to your body for whatever it allows you to do that week.  Each positive entry earns an entry.  Each participant has the opportunity to earn 7 entries.  The challenge ends on 2/10 at 11:59pm PST.

The drawing for week one will take place live in The Disabled Diva’s Fitness Buddies Group on 2/12.   Winner gets to choose from a $5 Starbucks or Amazon eGift card.

PEMF therapy with Oska Pulse has taken my pain management plan to a whole new level! Click here to see how it has improved my chronic life and click here to learn more about the device and how it may help you too! BTW My discount code DIVA will save you $55.00 when entered at checkout!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Week Two

Feb. 11-17

Declare your daily goal.  Do nothing if you are keeping the same goal as week one.  If you want to adjust your goal, declare your new goal on the main challenge post located in the group announcements.  Each day, comment with a positive comment and a screenshot of your fitness tracker results each evening before bed or no later than 8am PST the following morning on the designated daily check in post.  If you are not using a tracker you will only be eligible to earn 1 entry per day for your positive comment.  Those providing proof of activity with a tracker screenshot have the opportunity to earn 2 points per day,  1 for speaking positively about your results and posting your screenshot, and 1 for meeting your daily goal.

Week two ends on 2/17 at 11:59pm PST.  The drawing for week one will take place live in The Disabled Diva’s Fitness Buddies Group on 2/19. There will be 2 prizes. Winners may choose a $5 eGift card from Starbucks or Amazon.

Need a fitness tracker?

Click here for options for every budget, including free apps for your phone.

Week Three

Feb. 18-24

Declare your daily goal. Do nothing if you are keeping the same goal as the prior week. If you want to adjust your goal, declare your new one on the main challenge post located in the group announcements. Each day comment with a positive comment and a screenshot of your fitness tracker results each evening before bed or no later than 8am PST the following morning on the designated daily check in post. If you are not using a tracker you will be eligible to earn 1 entry per day for a positive comment about your own results. Those providing proof of activity with a tracker screenshot have the opportunity to earn 2 points per day, 1 for speaking positively about your results and posting your screenshot, and a second for meeting your daily goal.

BONUS ENTRIES All participants have the opportunity to earn bonus points for replying to other participant’s results with an encouraging comment.  For example, if five other people post their results and you reply to them with words of praise, you will earn five extra points, 1 per person you reply to, for that day.  ALL GROUP MEMBERS MAY EARN POINTS FOR THE BONUS POINTS, EVEN IF THEY DON’T POST ACTIVITY RESULTS! Bonus entries can only be earned in week three.

Week three ends on 2/24 at 11:59pm PST. The drawing for week one will take place live in The Disabled Diva’s Fitness Buddies Group on 2/26. There are three prizes for week three,  one $5 Starbucks eGift card and two $5 Amazon eGift cards.

All prizes will be delivered via email. This challenge is not affiliated with Facebook, Amazon, or Starbucks.  Prizes are purchased from affiliate commissions, book sales, and donations.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Love Yourself Enough to Schedule a Rest Day

 

 

 

 

 

 

 

 

 

 

When is the last time that you rested?

I am not talking about spending the day in bed because your chronic illness flared and made leaving it impossible.

What I am talking about is, when did you last choose a day to relax, give your body a break, allow yourself to chill out in front of the television for no reason other than you wanted to?

The problem with having multiple chronic illnesses, is that until I got my pain under control two years ago, all my downtime was dictated by chronic pain.  Between 2001 and 2017, fibromyalgia, psoriatic arthritis, psoriasis, endometriosis, degenerative disc disease, and coccydynia decided when I would be active or when I was able to leave the house or bed.

I felt like I had no control of the time in between.  I felt like all eyes were on me and that unless I was completely unable to leave my bed, I would be judged for not pushing myself to catch up on everything that I fell behind on while stuck in bed.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Therapy when you need it, where you want it…. Save 20% when you register via this link.

 

 

 

 

 

The bad part about that way of thinking was that I wasn’t showing any love or consideration for myself.  My life became a fulltime punishment.  If I was in bed, I was being punished by my chronic illnesses.  If I was able to get out of bed, I was punished for the time when I couldn’t get out.  Over time I became bitter towards not only my family, but friends, acquaintances, and pretty much anybody who was alive.

My life completely changed in 2013. With my doctors unwilling to help me manage my chronic pain, I had to look elsewhere.  At the time I couldn’t see it, but it was actually a blessing in disguise as the route I chose was a natural and alternative one that really did change my life.  Click here to learn more about my pain management plan.  But the changes in my life were more than medicinal, I also began implementing many changes to how I lived and my attitude towards my body and chronic illnesses.  Discover what those changes were and how you can make them too in my eBook Make Pain Your Bitch: How to Dominate Your Chronic Life. 

 

 

 

 

 

 

 

 

 

One important change was to allow myself to take a day “off” from life. To do whatever I wanted, even if that meant doing nothing but binge shows on Netflix or Hulu all day.  I had to love myself enough to not feel like everything I did was a punishment.  A day of planned rest may not always rejuvenate me physically, but it sure does wonder for my mental state.  Rest days allow me to clear my head, to breathe, to remember that I will be of no use if I continue to run myself into the ground.

A funny thing happened after I began allowing myself to enjoy life, I fell in love with living again.  I will always be chronically ill.  Yes, my chronic pain has been well managed for the past two years and continues to be, but there are no guarantees that this will always be the case.  I don’t know what the future holds.  What I do know is that no matter what my diseases decide to throw my way, no matter what new illnesses or injuries I accrue, I will never punish myself or my body the way that I did before.

I love myself enough to schedule rest days.

Do you?

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Weekly Recap January 21-25 2019

 

 

 

 

 

 

 

Life can be tough, but so are you!

CBD: Does the form you choose make a difference?

How to protect your immune system during flu season

Migraine Eclipse?

5 Benefits of Walking Indoors

The Disabled Diva’s Pain Management Plan

How to treat lower back pain at home and on the go

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

%d bloggers like this: