Live the life you have

Someone very near and dear to me has been living with various undiagnosed chronic pains and symptoms of many chronic pain conditions for close to two years.  There was a time when she and everyone else, including me, had hoped that she had something that was temporary or that could be cured.  But that doesn’tContinue reading “Live the life you have”

Cut it out!

Living in pain for as long as I have has redefined how I categorize my different pains.  There are the constant pains that I have just gotten used to and fully accept that they aren’t leaving.  Then there are the pains that come and go in extremes.  These are the ones that make me want toContinue reading “Cut it out!”

Filled with joy and guilt

I have no idea what is going on with me, but I have had the best week ever!!! It has been a long time since I have felt this good.  I know it won’t last, but I am making sure to enjoy every moment until then.  Then again maybe it will… who knows…. I hadContinue reading “Filled with joy and guilt”

When the body craves deep sleep and the brain only wants a cat nap!

 Living with chronic pain is exhausting.  Although I have conquered my night time sleeping battle, I still battle daytime fatigue, just not as often as I used to.  Pain related fatigue comes in many forms.  There are days when I am lucky if I am able to stay awake for an hour or two.  SomeContinue reading “When the body craves deep sleep and the brain only wants a cat nap!”

The Falling Game

How often do you fall?  I used to fall a lot more often than I currently do for no other reason than that I take more precautions than I used to.  I am the master of falling down stairs, up stairs, and off of curbs.  But my special talent is that of falling when standingContinue reading “The Falling Game”

Daily Betrayal

Have you struggled with explaining how it emotionally feels to live with chronic pain?  In the past I have referred to the Spoon Theory to explain how physically exhausting it is.  But that wasn’t enough.  Chronic pain also beats me up emotionally.  The best description I can give to explain how it feels emotionally is to askContinue reading “Daily Betrayal”

Peekaboo

I’ve been debating whether or not to share my most recent chronically ill related embarrassing moment.  I was so humiliated that I swore my husband and daughter to secrecy the moment it happened.  As days passed I realized that this is not the worst that has happened to me and that I have shared muchContinue reading “Peekaboo”

Mind Games

In my post To make or not to make, I shared how my bed must be made if I want to be productive.  Well this week I had to trick my brain into giving my body the rest it required.  The week started out with my head feeling like it was filled with sand.  IContinue reading “Mind Games”

What makes a handicapped stall accessible

Since I began using my wheelchair for the majority of my out of the house outings two years ago, I have learned that just because a restroom is labeled Handicap Accessible it doesn’t mean that it really is.  Sure it may have a stall that has enough space for a wheelchair and a caregiver toContinue reading “What makes a handicapped stall accessible”

My Inner Princess

Out of all the Disney Princesses, Cinderella is the one that I relate to the most.  We were both abused.  Yet neither of us ever complained or told anyone else.  Instead we sang songs that made our hearts feel lighter.   Not that I condone not speaking up, because I do believe that people should reach outContinue reading “My Inner Princess”

Letting go and going with the flow.

The most important advice that I have to share with people living with chronic pain or new to the pain game is this:  Learn to let go of preconceived notions of how something should be done, let go of traditions that you are physically no longer able to keep up with, and appreciate what youContinue reading “Letting go and going with the flow.”

To make or not to make

Do you make your bed?  Most of my life I never cared if my bed was made.  I figured why bother since it is just going to get messed up again at bed time.  I still felt this way even after chronic pain entered my life, because in the beginning I was still able to spendContinue reading “To make or not to make”

Snail speed

On a “good” day I move at the speed of a snail.  Because of my chronic conditions I function at 20 to 30% of what an average person does.  During an intense flare I am lucky if I function at 10%.  Throw in an illness like Bronchitis and my functioning level plummets to zero.  This is why I amContinue reading “Snail speed”

The Cleaning Fairy

Last week I received the most amazing gift ever.  A visit from the Cleaning Fairy!!!!  Yes, she does exist!!!!   I was sicker than normal and lacked the strength to do even the simplest of housework.  Knowing that I was expecting company my dear friend that lives hundreds of miles away in another state surprised the heck out of me byContinue reading “The Cleaning Fairy”

DMV Medical Forms FYI

Save time and money by making sure your physician properly fills out forms needed for the DMV and more.  I had a permanent Handicapped Placard when I lived in Arizona but didn’t bother getting one when I first moved to California.  I rarely left the house so it I didn’t feel the need for it. Continue reading “DMV Medical Forms FYI”

On the mend

This past week I discovered what was making me so sleepy the week prior.  Long story short, it turns out I have Bronchitis.  Nine days since it smacked me down and I am finally feeling like I am improving.  No where near “normal”, but there is definite improvement.  I would like to thank you allContinue reading “On the mend”

Under a sleep spell

I feel like I have been put under a sleeping spell, like Sleeping Beauty.  But unlike Sleeping Beauty, I don’t know what will break my spell.  It has been a while since I have been this sleepy.  I forgot how much I despise feeling so tired all the time.  I forgot just how much extremeContinue reading “Under a sleep spell”

Don’t do it!

Contemplating suicide?  Don’t do it!!! If your pain level has you thinking that you would be better off dead please call someone.  If you don’t have a friend or relative that you feel you can trust then please call the National Suicide Hotline 1-800-273-8255.  You can find International hotlines at this site: Suicide.org. I urgeContinue reading “Don’t do it!”

Can’t win them all

No matter how someone treats their chronic conditions, we can all agree that there are good days and there are bad.  Then there are the days that have us feeling as though we are being physically tortured.  Overall this has been the best winter that I have ever experienced.  Not too cold, not too hot,Continue reading “Can’t win them all”

My favorite therapy

Therapy and chronic pain/illnesses go hand in hand.  There is no way to go through life living in pain and not need some type of therapy.  We need physical therapy to give our bodies the strength to fight the pain and illness.  We need some sort of emotional therapy to keep from going mad fromContinue reading “My favorite therapy”

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