Welcoming Fall with mixed emotions

Someone forgot to inform Mother Nature that today was is the first day of fall, because it still feels like summer in sunny Southern California!  However there is a touch of fall in the air as our nights have been cooler and I am physically feeling the benefits of the shift in seasons.  Fall andContinue reading “Welcoming Fall with mixed emotions”

Protected: My two year MMJ anniversary.

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What the rides at Disneyland have taught me about my conditions

This morning someone sent me an analogy on Twitter comparing having Fibromyalgia and riding Space Mountain.  They tweeted that having Fibromyalgia and riding Space Mountain are the same as there are lots of ups and downs, tight curves, but no way to see them coming.  This is spot on!! However it is how we choose to face those ups, downs,Continue reading “What the rides at Disneyland have taught me about my conditions”

Imprisoned

This has been one of the craziest weeks of my life. Read Finding myself in his shoes to understand how it started.  This all began around 3AM on Tuesday and by Thursday we still were without answers as to why my husband was coughing up blood.  Thursday was not a good day.  Physically I wasContinue reading “Imprisoned”

Finding myself in his shoes

It has been a crazy week for my family.  It all started on Friday evening when my husband hurt his back while loading my wheelchair into our SUV.  Thankfully I have been feeling relatively better than normal and was able to care for him over the weekend.  Thankfully his back was feeling better by Monday,Continue reading “Finding myself in his shoes”

What makes a handicapped stall accessible

Since I began using my wheelchair for the majority of my out of the house outings two years ago, I have learned that just because a restroom is labeled Handicap Accessible it doesn’t mean that it really is.  Sure it may have a stall that has enough space for a wheelchair and a caregiver toContinue reading “What makes a handicapped stall accessible”

Snail speed

On a “good” day I move at the speed of a snail.  Because of my chronic conditions I function at 20 to 30% of what an average person does.  During an intense flare I am lucky if I function at 10%.  Throw in an illness like Bronchitis and my functioning level plummets to zero.  This is why I amContinue reading “Snail speed”

The Cleaning Fairy

Last week I received the most amazing gift ever.  A visit from the Cleaning Fairy!!!!  Yes, she does exist!!!!   I was sicker than normal and lacked the strength to do even the simplest of housework.  Knowing that I was expecting company my dear friend that lives hundreds of miles away in another state surprised the heck out of me byContinue reading “The Cleaning Fairy”

DMV Medical Forms FYI

Save time and money by making sure your physician properly fills out forms needed for the DMV and more.  I had a permanent Handicapped Placard when I lived in Arizona but didn’t bother getting one when I first moved to California.  I rarely left the house so it I didn’t feel the need for it. Continue reading “DMV Medical Forms FYI”

Can’t win them all

No matter how someone treats their chronic conditions, we can all agree that there are good days and there are bad.  Then there are the days that have us feeling as though we are being physically tortured.  Overall this has been the best winter that I have ever experienced.  Not too cold, not too hot,Continue reading “Can’t win them all”

My favorite therapy

Therapy and chronic pain/illnesses go hand in hand.  There is no way to go through life living in pain and not need some type of therapy.  We need physical therapy to give our bodies the strength to fight the pain and illness.  We need some sort of emotional therapy to keep from going mad fromContinue reading “My favorite therapy”

A fulfilled dream and squashed fears

  Who says dreams don’t come true?  Not me!!!  It been over 30 years since my very first trip to the Happiest Place on Earth. Some people think I am crazy for wanting to arrive early when I do visit. But one of the things I love about arriving prior to opening is seeing which families willContinue reading “A fulfilled dream and squashed fears”

My San Francisco Adventure

Having never been to San Francisco I was more than excited to join my husband on his business trip.  Because this was a business trip I knew there wouldn’t be much time for site seeing, but I didn’t care.  I am just thrilled to have had the opportunity to see and taste as much ofContinue reading “My San Francisco Adventure”

Reflections of a magical year

 2014 has definitely been a magical year for me.  No I was not cured nor was my pain less than normal.  What made this past year magical was that I allowed myself to have fun!  Living in pain means having very few days with a pain level low enough to tackle all the things thatContinue reading “Reflections of a magical year”

Disneyland through the eyes of a child

  It is not secret that Disneyland is my happy place and that I am always noticing something new or making new memories.  But it is seeing the park through the eyes of children that I think is amazing. Through the years I have been asked what is the best age to first take aContinue reading “Disneyland through the eyes of a child”

Best gift

What is the best gift you can give yourself this holiday season?  Try the gift of simplicity.  Long ago I would transform my home decor from one holiday to the next.  Each room went through a complete transformation.  This included the kitchen and bathrooms.  I am pretty sure the laundry room was the only oneContinue reading “Best gift”

Surviving Thanksgiving

Woo hoo!!! I survived another Thanksgiving!!!  I know most people feel this way, but chronic pain makes attending or hosting gatherings so much harder.  Thankfully I realized early on that I would be too busy the weeks prior to Thanksgiving to know better than to host this years Thanksgiving dinner.  I was even happier whenContinue reading “Surviving Thanksgiving”

Down’s and Disneyland

Last week my brother in-law, Tim,  came to California to spend some time at Disneyland with my husband, daughter, and me.  My brother in -law is not your typical 40 something man, he has Down’s Syndrome.  This mini vacation is the second that my husband and I have had with him at Disneyland.  The firstContinue reading “Down’s and Disneyland”

Month of Thanksgiving

All over social media people are sharing what they are thankful for each day during the month of November.  Because I always forget to post what I am thankful for and then feel the need to throw a bunch into one post, I decided that the easiest way would be to post all 30 daysContinue reading “Month of Thanksgiving”

Sometimes the pain is worth the risk.

I can barely move today….there isn’t one part of me that doesn’t hurt….. This is one of those times when I am unable  to blame anything or anyone for my extra pain.  This flare is totally my fault but totally worth it.  You see months ago we had planned on spending Halloween day at DisneylandContinue reading “Sometimes the pain is worth the risk.”

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