You may have noticed in the past few weeks that I haven’t been as active on social media as I am normally. The reason for this is…..
Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.
There two forms of self-care. There’s the fun kind that everybody likes and the not so fun kind that feels more like work than a good time. Today I am sharing the importance of both and why they should be discussed when newly diagnosed with chronic illnesses like fibromyalgia, psoriasis, and psoriatic arthritis.
I can’t imagine anyone likes asking for help. I know I don’t. But as the pain and fatigue from fibromyalgia and psoriatic arthritis increased, I had no choice but to give in. I often wonder if it would have been such a painful process had I been warned at the time of my diagnosis. My guess is that….
I was caught off guard by the changes that took place in regards to my relationships with others. As a stay-at-home mother and wife my role was to care for everyone. But that all changed after my body was hijacked by fibromyalgia and psoriatic arthritis.
To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is
For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.
Let’s talk about sex!
Chronic pain from fibromyalgia and psoriatic arthritis will destroy your sex life unless you are willing to accept and make changes.
What needs to change?
Things that may need reevaluating are:
Our prescribed treatments aren’t going to help if we are struggling with our mental health. Reasons why therapy is important after receiving a chronic illness diagnosis.
Receiving a diagnosis of an autoimmune disease is overwhelming. There is so much to take in, especially if you have no knowledge about your diagnosed disease and weren’t expecting it.
Whether you have a chronic illness like fibromyalgia, autoimmune arthritis, or any other condition that has caused you to struggle with balance, these canes will have you looking sharp while remaining on your feet!
There is nothing normal about living with multiple chronic illnesses. So why do we expect ourselves to adhere to a holiday schedule that many healthy people struggle to keep up with? Today I am sharing why holiday timelines don’t work with chronic illness/pain.
This month we are scaring up healthy habits! No tricks just a bag full of treats for your body and mind.
Looking for Halloween themed clothing that is both cute and comfortable? Here are some suggestions that will bring some magic to your holiday wardrobe!
There may not be a cure for my chronic illnesses, but one thing there is no shortage is terrible advice! People who have never heard of fibromyalgia and psoriatic arthritis suddenly become experts on how to “heal” my body. The most commonly shared advice is also the most dangerous. Today I am sharing three of the worst and how/why you should avoid them.
Living with chronic pain can be difficult, but with careful planning you can enjoy your life despite your chronic pain!
Vacations typically provide us with an escape from our normal lives. And even if just for a few days, we are able to forget about our worries and escape from the life that is wearing us down. However, if we are not careful, our escape to Fantasyland could make returning to reality more painful than before. What the heck am I talking about? Read on…….
Everyone likes hearing that they did a good job or that their work made someone else’s life better, right? Sure, but when you have been continuously doubted, made fun of, or shamed because of your chronic illness, accepting a compliment isn’t so easy.
Mother Earth needs to calm the f*ck down! I have had on ongoing migraine since the morning of the first earthquake on July 4th. I experienced relief after it struck, but it returned the following morning. The next period of relief came right after the second one on the evening of the 5th. I woke with a more intense migraine on the 6th and it refuses to leave
Whether you live in California or are planning to vacation here, everyone should know what to do in case of an earthquake. The first thing is to forget everything Hollywood has shown you in movies and on TV!