Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.
There two forms of self-care. There’s the fun kind that everybody likes and the not so fun kind that feels more like work than a good time. Today I am sharing the importance of both and why they should be discussed with newly diagnosed patients.
I can’t imagine anyone likes asking for help. I know I don’t. But as the pain and fatigue from fibromyalgia and psoriatic arthritis increased, I had no choice but to give in. I often wonder if it would have been such a painful process had I been warned at the time of my diagnosis. My guess is that….
I was caught off guard by the changes that took place in regards to my relationships with others. As a stay-at-home mother and wife my role was to care for everyone. But that all changed after my body was hijacked by fibromyalgia and psoriatic arthritis.
To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is
For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.
Let’s talk about sex!
Chronic pain from fibromyalgia and psoriatic arthritis will destroy your sex life unless you are willing to accept and make changes.
What needs to change?
Things that may need reevaluating are:
Our prescribed treatments aren’t going to help if we are struggling with our mental health. Reasons why therapy is important after receiving a chronic illness diagnosis.
Receiving a diagnosis of an autoimmune disease is overwhelming. There is so much to take in, especially if you have no knowledge about your diagnosed disease and weren’t expecting it.
There is nothing normal about living with multiple chronic illnesses. So why do we expect ourselves to adhere to a holiday schedule that many healthy people struggle to keep up with? Today I am sharing why holiday timelines don’t work with chronic illness/pain.
Instead of waiting until 2020 to set and reach health goals, I am doing it now with the help of a Pack Health coach!
How many times have had an appointment with a new doctor only to have them ignore, dismiss, or laugh at your symptoms and concerns? What if you could interview doctors before scheduling an appointment?
Part of my self-care practice includes recognizing what I have to be thankful for. Join me this November by giving thanks all month long!
My favorite site for natural remedies has just released some amazing new products and a discount code to save big!
Tips for dealing with brain fog caused by fibromyalgia and other chronic illnesses.
This month we are scaring up healthy habits! No tricks just a bag full of treats for your body and mind.
The pain and fatigue from fibromyalgia does more than inflict pain, it often causes people to give up their careers. Find out if it is possible to continue doing what you do or if it is time to move on.
The body isn’t the only thing fibromyalgia inflicts pain on. Find out the toll it takes on our mental health and what we can do to protect it.
Whether it be from lack of energy, muscle weakness, nerve pain, joint pain, or one of the many other life interfering symptoms, there will come a time when using a mobility aid becomes a necessity.
Respect of friends, family, and everyone in between was one the last things I thought I would lose after my diagnosis of fibromyalgia. Find out why it happened and what can be done to hang on to what you can!