What COVID19 and Social Distancing have Returned to the Lives of the Chronically Ill

What COVID19 and Social Distancing have Returned to the Lives of the Chronically Ill

COVID19 and social distancing have taken a lot away from us, but there are a few things they have given the chronically ill that are worth celebrating!

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The Mandalorian Approach to Explaining What it is Like to Live with Fibromyalgia and Psoriatic Arthritis

the mandalorian approach

Have you watched The Mandalorian on Disney Plus? My family had a weekly date to watch it together. Afterward, we would discuss the episode or show in general. One thing that surprised me was how deeply I related to the Mandalorian whenever he was questioned about not removing his helmet. What does this have to do with living with fibromyalgia and psoriatic arthritis? Read on to find out!

Maintaining Mobility: Nine Things I Wished I had Been Told When Diagnosed with Fibromyalgia and Psoriatic Arthritis Part 9

HOW TO MAINTAIN MOBILITY WITH A CHRONIC ILLNESS

Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.

The Importance of Self-Care: Nine Things I Wished I had Been Told When Diagnosed with Fibromyalgia and Psoriatic Arthritis Part 8

THE IMPORTANCE OF SELF CARE WITH A CHRONIC ILLNESS

There two forms of self-care. There’s the fun kind that everybody likes and the not so fun kind that feels more like work than a good time. Today I am sharing the importance of both and why they should be discussed with newly diagnosed patients.

Assistance is Necessary: Nine Things I Wished I had Been Told When Diagnosed with Fibromyalgia and Psoriatic Arthritis Part 7

Assistance is Necessary WITH A CHRONIC ILLNESS

I can’t imagine anyone likes asking for help. I know I don’t. But as the pain and fatigue from fibromyalgia and psoriatic arthritis increased, I had no choice but to give in. I often wonder if it would have been such a painful process had I been warned at the time of my diagnosis. My guess is that….

Relationship Changes: Nine Things I Wished I had Been Told When Diagnosed with Fibromyalgia and Psoriatic Arthritis Part 6

Relationship Changes BECAUSE OF CHRONIC PAIN

I was caught off guard by the changes that took place in regards to my relationships with others. As a stay-at-home mother and wife my role was to care for everyone. But that all changed after my body was hijacked by fibromyalgia and psoriatic arthritis.

All Pain-Relief Options: Nine Things I Wished I had Been Told When Diagnosed with Fibromyalgia and Psoriatic Arthritis Part 5

All Pain Relief Options

To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is

The Importance of a Chronic Illness Health Journal: Nine Things I Wished I had Been Told When Diagnosed with Fibromyalgia and Psoriatic Arthritis Part 4

The Importance of a Chronic Illness Health Journal

For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.