COVID19 and social distancing have taken a lot away from us, but there are a few things they have given the chronically ill that are worth celebrating!
In this month’s linkup I share what I am looking at, playing, joining, invigorated by, and ditching to make living with my chronic illnesses easier, less painful, and more fun!
Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.
There two forms of self-care. There’s the fun kind that everybody likes and the not so fun kind that feels more like work than a good time. Today I am sharing the importance of both and why they should be discussed with newly diagnosed patients.
I can’t imagine anyone likes asking for help. I know I don’t. But as the pain and fatigue from fibromyalgia and psoriatic arthritis increased, I had no choice but to give in. I often wonder if it would have been such a painful process had I been warned at the time of my diagnosis. My guess is that….
I was caught off guard by the changes that took place in regards to my relationships with others. As a stay-at-home mother and wife my role was to care for everyone. But that all changed after my body was hijacked by fibromyalgia and psoriatic arthritis.
To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is
For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.
Let’s talk about sex!
Chronic pain from fibromyalgia and psoriatic arthritis will destroy your sex life unless you are willing to accept and make changes.
What needs to change?
Things that may need reevaluating are:
Our prescribed treatments aren’t going to help if we are struggling with our mental health. Reasons why therapy is important after receiving a chronic illness diagnosis.
Receiving a diagnosis of an autoimmune disease is overwhelming. There is so much to take in, especially if you have no knowledge about your diagnosed disease and weren’t expecting it.
This month we are scaring up healthy habits! No tricks just a bag full of treats for your body and mind.
The Disabled Diva’s Product picks for Sept. 9-13 2019
Living with chronic pain can be difficult, but with careful planning you can enjoy your life despite your chronic pain!
For the past two and a half years, my body’s ability has been nothing but amazing to me. To think that in 2012 I was unable to sit, stand, or walk for more than 5 […]
Stay on target! Have you joined The Disabled Diva’s Fitness Buddy group on Facebook? If not, it is time you joined the fun! Current members, scroll below to read this month’s challenge rules. This group […]
Personal review of Magic Muscle Ease from Earthley.
The Disabled Diva Blog recap May 27, 2020. Take a peek into my on the go chronic pain relief bag and get tips to improve your summer vacation.
This month’s challenge is titled The Love Of You! Everything we do this month is to do something that shows love for you and your body.
This group is for anyone who needs a little accountability and encouragement to help them stick to their fitness goals. You could have fibromyalgia, an autoimmune disease, arthritis, diabetes, MS, or any other chronic illness. In fact, you don’t even need to be ill. I needed motivation and encouragement before I was chronically ill just as much as I do now!