Adjusting my expectations

  I often find myself feeling discouraged when I fail to meet a goal that I have set for myself. Part of accepting my limitations has meant lowering my expectations. This didn’t come about from a lack of self esteem or self worth. Instead it is because I realized that I needed to find waysContinue reading “Adjusting my expectations”

Break time is over

If you have followed my blog in the past you may have wondered why I hadn’t written anything for the past 5 months.  Well I am back to answer that question and fill you in on what is going on in my life.  If you look back at my past posts you would know thatContinue reading “Break time is over”

Validated

From my prior posts you know that I have been dealing with a mystery back pain.   This pain has come and gone, lasting only a day or two at the most for many years.  A year and a half ago it struck and stuck!  When I informed my doctor of this pain last yearContinue reading “Validated”

Finding relief again

Last December I posted about experimenting with THC as a way to cope with my pain.  The results were so amazing that I knew I would someday want to take this route full-time.  Nine months later I did just that.  Saturday morning, before going to the beach, we set out to get my Medicinal MarijuanaContinue reading “Finding relief again”

Make it rain!!

I have one thing to say to those who do not believe that climate and weather play an important part of a Fibromyalgia patients’ pain level, “Pooh on you!”.  For over a decade impending storms have caused me to lie in bed, unable to move, and sobbing as I waited for my pain to decrease.Continue reading “Make it rain!!”

Anxiety came for a ride

As I mentioned in my last post I attended an outdoor concert this past weekend.  There were two routes to choose from.  The first was one that I was familiar with and knew that taking it would result in heavy tourist traffic.  The second was one that our GPS suggested.  Not wanting to spend timeContinue reading “Anxiety came for a ride”

Robbing Peter to pay Paul

One of the most frustrating aspects of living with chronic pain is knowing that no matter how careful I plan an outing or how gently I treat my body, any activity outside of “normal” will result in excruciating pain.   Those who do not know my pain do not understand how activities like sitting forContinue reading “Robbing Peter to pay Paul”

My Mother’s Day Gift

I find myself making fewer plans and flying by the seat of my pants a lot lately. No matter how much I plan ahead, no matter how careful I am to give my body the rest it needs, plans just don’t seem to work out. Two months ago I planned a trip for my daughterContinue reading “My Mother’s Day Gift”

You must feel better…..

I have recently dropped a significant amount of weight.  I will share why and how another day.  This rant is about a ridiculous comment that keeps spewing out of everyone’s mouths when they see me.  Most people in my physical social circle only see me once or twice a month, if they are lucky.  BecauseContinue reading “You must feel better…..”

TV, the Internet, and Me

Prior to chronic illness hijacking my life I didn’t have much time for television.  I rarely got into a series because if I missed a week, I would be behind.  Sure I could have recorded an episode on my VHS, but it just seemed to much of a bother.  Yes, I know I just datedContinue reading “TV, the Internet, and Me”

The Young and the Restless Tackles an Invisible Disability

I am beyond thrilled that the most popular soap opera on American television has decided to have a character develop an invisible disability.  The Young and the Restless character Nikki Newman was recently diagnosed with MS.  So far I believe the writers are doing a good job showing how a physically painful condition slowly startsContinue reading “The Young and the Restless Tackles an Invisible Disability”

Deny or be Denied

My daughter has several severe allergies.  One of those is to red dye. That is ALL red dye.  She can not eat, drink, use soap, shampoo, or make-up that contains any amount of any numbered red dye. All it took was one bad reaction for her to realize that nothing would be worth experiencing thatContinue reading “Deny or be Denied”

I survived

For the first time in many years I survived a holiday weekend.  In the past I would fall into what I call a pain coma in the middle of the holiday or by the end of that day, and would remain in that state for days and sometimes weeks.  A pain coma is when myContinue reading “I survived”

Social media vacation

Soon after the holidays I found my depression growing deeper.I knew I needed to do something about my depression and since seeing a doctor of any type was financially out of the question as was obtaining any type of medication, I needed to figure out what was causing my train to derail. It didn’t takeContinue reading “Social media vacation”

Oh what a relief it was!

For the past two weeks I had been using THC in various forms to combat my pain.  It reduced my pain in a way that I have never experienced thru prescription medications.  No it didn’t cure me, but I felt alive and was able to do more than I had been able to do inContinue reading “Oh what a relief it was!”

I am in Pain. Are you listening?

Dear Doctors of the world, What part of I am in pain do you not understand? This past year I was in so much pain that I couldn’t even try to pretend that I was alright. I not only cried after every appointment, I also cried during them. Why? Because my pain level was offContinue reading “I am in Pain. Are you listening?”

Glad you could be here today

Hello friends, I have had the best two weeks (that is physically). I can’t remember another time in the past ten years that I have had so many good hours or days so close together. I will share why I have been feeling better later this week. But for now I want to share whatContinue reading “Glad you could be here today”

Sunday Morning Blues

I used to enjoy Sunday mornings. Going to church with my family, then we would join friends for brunch. Now I sit by myself waiting for my family to return from church. It’s not that I don’t want them to go, I would never ask them to stop living their lives just because I can’tContinue reading “Sunday Morning Blues”

Unpredictable

Unpredictable After ten years I am still befuddled by the unpredictability of my pain level and physical abilities. Some days I wake up feeling like I’m ready to tackle the world, only to have pain strike me down an hour later forcing me into bed for the rest of the day. Then there are daysContinue reading “Unpredictable”

When all else fails, BREATHE

I went to bed last night feeling like the dark cloud hovering over me was growing larger.  Woke up this morning feeling defeated.  That is until I checked my Twitter feed.  I want to thank my sweet spoonie friends that rallied the troops to suggest a good Rheumie in my area.  I can’t tell you how much thisContinue reading “When all else fails, BREATHE”

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