Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.
There two forms of self-care. There’s the fun kind that everybody likes and the not so fun kind that feels more like work than a good time. Today I am sharing the importance of both and why they should be discussed with newly diagnosed patients.
I can’t imagine anyone likes asking for help. I know I don’t. But as the pain and fatigue from fibromyalgia and psoriatic arthritis increased, I had no choice but to give in. I often wonder if it would have been such a painful process had I been warned at the time of my diagnosis. My guess is that….
I was caught off guard by the changes that took place in regards to my relationships with others. As a stay-at-home mother and wife my role was to care for everyone. But that all changed after my body was hijacked by fibromyalgia and psoriatic arthritis.
To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is
For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.
Let’s talk about sex!
Chronic pain from fibromyalgia and psoriatic arthritis will destroy your sex life unless you are willing to accept and make changes.
What needs to change?
Things that may need reevaluating are:
Our prescribed treatments aren’t going to help if we are struggling with our mental health. Reasons why therapy is important after receiving a chronic illness diagnosis.
Receiving a diagnosis of an autoimmune disease is overwhelming. There is so much to take in, especially if you have no knowledge about your diagnosed disease and weren’t expecting it.
Cold winter weather can be brutal to our skin! Here are some suggestions to help keep your skin moisturized and healthy all season long!
There is nothing normal about living with multiple chronic illnesses. So why do we expect ourselves to adhere to a holiday schedule that many healthy people struggle to keep up with? Today I am sharing why holiday timelines don’t work with chronic illness/pain.
Hand tremors or lack of strength from multiple sclerosis, Parkinson’s disease, arthritis, fibromyalgia, or other illness may find themselves losing their independence. Today I am sharing eleven products that may help them maintain their independence
Instead of waiting until 2020 to set and reach health goals, I am doing it now with the help of a Pack Health coach!
The Disabled Diva’s Product picks for Sept. 9-13 2019
The Disabled Diva’s Product picks for bathroom safety!
Living with chronic pain can be difficult, but with careful planning you can enjoy your life despite your chronic pain!
Meet the mobility aid that is going to make getting of the house out easier than ever before!
Vacations typically provide us with an escape from our normal lives. And even if just for a few days, we are able to forget about our worries and escape from the life that is wearing us down. However, if we are not careful, our escape to Fantasyland could make returning to reality more painful than before. What the heck am I talking about? Read on…….
*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in […]
Heatwave Hell *Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I […]