Category Archives: Health issues

How and why I am continuing to use straws despite California’s straw law.

Why I continue to use straws despite CALIFORNIA'S straw law

There are so many little things that either improve or make living as normally as possible despite having a chronic illness.

With California’s recent straw law, I’ve discovered how important plastic straws are to my own chronic life.

This post is not an environmental or political debate. Instead its purpose is to showcase why some people need plastic straws and to share some options for those who live in or plan to visit California.

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The Disabled Diva’s Blog Weekly Recap April 15-19, 2019

 

 

 

 

 

 

 

 

The Disabled Diva Blog Weekend Recap April 15-19, 2019

  1. Hospital Horrors: Leaving in more pain than I arrived in 
  2. Hospital Horrors Part 2: Desperate to be heard!
  3. Say Yes to a Foot Massage!
  4. How to Keep Bedrest From Ruining Your Life
  5. Make your bed more comfortable for under $50

Being put on bedrest (see post #2 for explanation) has put some kinks in my life… A little online shopping is smoothing them out…. Join The Disabled Diva’s Product Picks group on Facebook to find out what I purchased, why I purchased those items, and how they can help you too!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The Disabled Diva’s Blog Weekly Recap April 8-12, 2019

weekly recap april 8

 

 

 

 

 

 

 

The Disabled Diva Blog Weekend Recap April 8-12, 2019

  1. Why PEMF therapy is a part of my daily pain management plan
  2. Why I fear doctors, hospitals, and test results
  3. Make your bed more comfortable for under $50

Stay tuned!! Next week I will share another more recent awful emergency room experience, a misdiagnosis, and what let to a surprising yet fitting diagnosis…..

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Why I fear doctors, hospitals, and test results

Why I fear doctors, hospitals, and test results

 

 

 

 

 

 

 

 

Why I fear doctors, hospitals, and test results

Since my first chronic illness diagnosis in 2001, my life, that is my chronic life, has been nothing short of a nightmare.

I know my body well.  In fact I know better than any test or doctor.  Not to sound conceited, but not one test or scan has ever shown the destruction that has been taking place in my abdomen since 2003.  NOT ONE!! However, my theories have been validated in surgery and each surgery was proved necessary.

Before you suggest that my fears aren’t warranted, I need for you to understand something…… I do not have White Coat Syndrome, where patients experience a higher blood pressure reading when at the doctor’s office, it goes way beyond that.  My fears and phobias stem from incompetent care.  Not from just one doctor or surgeon, I am talking double digits!!!

In case that is not enough of an explanation, here is a list of some of the reasons I fear doctors, hospitals, and test results……

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How to plan the best summer vacation despite your chronic illness

How to plan the best summer vacation despite your chronic illness

 

 

 

 

 

 

 

 

Does the thought of taking a summer vacation get you excited or does it send chills down your spine?  I loved traveling before I became chronically ill.  In addition to yearly Disneyland vacations, I loved exploring new areas in other states or within the ones that I lived in.  Weekend road trips without a destination were my favorites.

Soon after chronic pain became a part of my daily life I began to loathe traveling. It wasn’t that I didn’t want to go exploring, instead it became too painful. Not only did my excursions increase my pain while away, it would take weeks and sometimes months to recover from them once I returned home. Not wanting to spend most of my time recovering I opted to stop traveling.

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Keeping My Chronic Illnesses Happy While Fighting an Infection

Keeping my chronic illnesses happy while fighting an infection

 

 

 

 

 

 

 

 

Keeping My Chronic Illnesses Happy While Fighting an Infection

If you are like me, every illness and injury that you experience comes with a side dish of unwanted flares from your chronic illnesses.  That has been my story for as long as I can remember… Until now….

For the first time in my entire chronic life, I have been able to keep my chronic illnesses from completely freaking out while I am recovering from an infection that is unrelated to fibromyalgia, psoriatic arthritis, psoriasis, degenerative disc disease, and abdominal adhesions.

How can this be?

In today’s very short post I am sharing how I am doing it…..

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Listen and obey

If I have learned anything about my body and living with multiple chronic illnesses, it is that I have to listen to my body’s demands.

If it wants to sleep, I sleep.  To help me sleep comfortably, not just for the moment, but to wake up with less pain I use a foam wedge, neck, full body, and knee pillow.  When using the full body pillow, I use the knee pillow for my ankles.  I literally hurts to have any part of my legs or feet to touch each other when I sleep, especially when I am running a fever.

Lying in bed for extended periods of time increases pain in my sacrum and spine.  To avoid any unnecessary pain, I run PEMF treatments on those areas with my Oska Pulse.

When fighting an illness outside of my chronic ones, I throw my regular schedule out the window.  I do not force myself to do more than I can handle, before I am ready to do it.

Stay ahead of the game

Besides allowing my body the rest and sleep that it requires, I make sure to address pain issues before they become a problem.

Dehydration only makes the situation worse, so I force myself to drink plenty of water.

To help keep my muscles relaxed I use Good Night Lotion on my legs and feet.  I alternate between  BioCBD+ topical oil and Earthley’s Arnica Salve to relieve pain from my temples down to my toes.

When I have the energy, I take a bath with hemp bath bombs for extra comfort.

To stay ahead of nausea, I vape my favorite cannabis strains with my new dry herb vaporizer (review coming soon).

The most important thing I do is to not stress out about the time my body needs to heal.  Stress is a huge trigger for most of my chronic illnesses.  By remaining calm and accepting that my life isn’t going to fall apart in the days my body needs to heal, I prevent further complications from the symptoms that stress triggers.

I may not have gotten ahead on the projects that I had hoped to over the past few days, but I have caught up on The Real Housewives of Beverly Hills, General Hospital, and Coronation Street.  I watch them all on HULU where I never have to worry about setting a DVR and am able to watch my favorite shows without commercials.  Click here if you want to try HULU for FREE for two weeks.

With each passing day I can feel myself getting better and stronger…

In the meantime, how do you keep your chronic illnesses calm while healing from an infection or injury?

 

 

 

HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

 

 

 

 

 

 

 

HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

Grab your binoculars, looking glasses, and detective kits, because today I am going to share how to spot someone who has a chronic illness!

Make sure you a have a pen and notepad ready to take notes, because what I am about to share will help you spot one of these mythical creatures with your own eyes!!

Are you ready to begin your chronic illness manhunt?

Then let’s get started……

Just kidding!

If you haven’t figured it out by now, I am just yanking your chain.

There is NO way to spot a person with a chronic illness without getting to know them.

I am sure you have heard the phrase “You don’t look sick”.

Those of us who ARE chronically ill despise this phrase.  Not because we don’t like looking well, but because that phrase is often used to downplay the severity of our disease.

Look at the picture below………

 

do I look sick?

 

 

 

 

 

 

 

 

 

 

This was taken at 9:30AM on March 17, 2019.

Do I look sick?

NO.

Yes, I am overweight and maybe appear a little tired, but for the most part there is no way, from just looking at that picture, to determine what chronic illnesses I have and which are flaring.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

What you don’t see

Here is what you don’t see:

  • A spider web of abdominal adhesions pulling and twisting the internal organs I have left.
  • What feels like my intestines being tied into a knot
  • The vomit I am forcing to keep down
  • Nausea
  • Contractions
  • Psoriasis that is breaking out on the areas of my body that are most stressed at the moment.
  • My Oska Pulse, under my shirt, reducing the amount of abdominal pain I must endure because of adhesions caused by years of endometriosis, surgical scarring, and pain from surgical errors.

 

What isn’t bothering me

This is what people assume is bothering me when I say I am having a rough day. These conditions that practically crippled me after 12 years are well managed. They do not and have not been a major issue in the past two years, yet that is the assumption the minute I share that I am struggling.

  • Psoriatic arthritis
  • Fibromyalgia
  • Degenerative disc disease
  • Coccydynia

The chronic pain that these chronic illnesses produced were why I spent so much of the first twelve years of my chronic life in bed.  They are why I couldn’t walk, stand, or sit for more than five minutes.  Thankfully I have an amazing pain management plan that addresses the pain and symptoms from these illnesses, making them minor issues compared to what is going on inside my abdomen.

What I choose to hide

  • Fear.
  • Fear of incurring more internal damage
  • Fear of living the rest of my life with pain that just can’t be explained
  • Fear of dying
  • Fear of never enjoying the freedom that a reprieve from all of my chronic illnesses allowed me to enjoy last year.

What to look for

There may not be an easy way to spot someone one with a chronic illness, but there a few signs.

  • Cancelling of plans: Yes, life happens, but if you notice that it is happening more often than not, it may be the result of a chronic illness.
  • Inability to hold back tears.  While many of us, the chronically ill, have developed a thick skin and don’t always wear our emotions on our sleeves, I for one can’t hold back tears when my pain is out of control or I am just plum exhausted from fighting it.
  • Manic behavior, such as wanting to do as much as possible in a short period of time because they fear not having much time left do to fear of life ending or pain returning.
  • Withdrawing from life.  Some people slowly pull away from their friends and family.

The signs won’t be the same from one person to the next.  We all handle our chronic illnesses differently.  How we handle the emotional ramifications will also change throughout the years as our diseases either go into remission or progress.

Don’t judge us by how we look….

Looks are deceiving….

 

 

 

 

 

 

 

 

 

 

 

 

 

HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

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