Category Archives: Fibromyalgia Awareness

Fibro Farts

 

 

 

 

 

 

 

Fibro Farts

You may have heard of fibro fog, but what about fibro farts?

That’s right friends! We have yet another “F” word to contend with!

So what’s the deal?

Many people who have fibromyalgia also suffer from excessive bloating and gas.  Mine is also caused by adhesions that have wrapped themselves around my digestive system. There are many reasons inside and outside of the digestive tract that can cause it to become inflamed or obstructed.

The body living with fibromyalgia is always inflamed, which makes it work overtime.  So sporting a Buddha-belly shouldn’t really be such a surprise.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

How to avoid them

  • Drink water
  • Watch what you eat and avoid foods that are known to cause inflammation such as sugar, wheat, and artificial sweeteners.
  • Exercise

 

 

 

 

 

 

 

 

 

 

Let it blow!

Let’s get real, there are going to be times when we stray from our diets or just want to indulge a little….  Also, as every fibro warrior out there knows, this wretched disease doesn’t need a reason to make us miserable, it does a great job on its own.  So no matter how careful you are, you may still end up with a case of the fibro farts.  Here are a few ways to let them blow in style!

  • Embrace an expandable wardrobe: Choose clothing that look and feel good whether your belly is flat or bloated.
  • Let them blow!  Don’t hold them in! Worried about someone hearing or smelling them? Step into a large group or find a quiet corner and let loose.
  • Invest in panties or disposable fart filters
  • Don’t worry, everyone passes gas, you won’t be the first or the last to let one rip!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Telling me that it could be worse won’t make me feel better

 

 

 

 

 

 

 

How many times have you explained your chronic illness to someone and their response was “It could be worse”?

I would be a millionaire if I had even a penny for every time I was told this.

I don’t believe that the majority of people who say this to us, do it with the intention of hurting.  I truly believe that they think they are offering words of comfort.

However, the reality is that those words, no matter what intention they were said with, cut deep into the heart of someone living with a chronic illness.  And here is why saying “It could be worse” should be avoided:

  • It makes the chronically ill person feel that their illness isn’t as important, painful, or difficult to deal with as a terminal diagnosis.
  • Those words are often misheard and translated into “Stop your whining, you can complain when you have a serious disease”

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups

 

 

 

 

 

 

 

 

 

 

 

The truth is that things could always be worse.  Even for someone receiving a terminal diagnosis, things could always be worse.

I am just as guilty as anybody else who has uttered those words. However, after being cut by them for so many years, I have come up with ways to say them without invalidating the severity of what someone is going through. For example: When the words “It could be worse” pass through my lips I follow up with…..

  • , but that doesn’t make what you are going through any less terrifying.  How are you coping?
  • , but that isn’t here nor there…. What do you need from me? How can I help you?

When followed with a validating comment and question, I am less apt to throw up walls or to emotionally shut down.  Instead, I feel safer to open up and have a discussion.

 

 

 

 

 

 

 

 

 

 

 

 

If you have someone in your life who likes to remind you of how much worse things could be, talk to them.  Share how it makes you feel and offer alternative words for them to communicate with.  It may feel awkward at first, but the more we talk to our friends and family about what they say, the better we all get at communicating with each other.  Just remember, to talk, not yell or attack!  Not everyone will get it.  In that case, just let it go….. because seriously, there is so much more to worry about when you are fighting chronic illnesses like fibromyalgia, psoriatic arthritis, psoriasis, degenerative disc disease, and abdominal adhesions.

How do you react to hearing “It could be worse”?

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Weekend Recap February 4-8, 2019

 

 

 

 

 

 

Here is a rundown of this week’s articles!

Read what you missed and share what you liked!

 

 

 

 

 

Love is Stupid

In this article, Donna helps us overcome our insecurities and to recognize that we are worthy of being loved. Click here to read.

 

 

 

 

 

 

I Don’t Believe in That Disease

Have you ever had a doctor who didn’t believe in your chronic illness?  I have.  Having doctors who either didn’t believe that fibromyalgia was a real disease or that were totally uneducated in this disease put my life at risk when I was faced with an unrelated life threatening health issue.  Click here to find out what happened.

 

 

 

 

 

The Benefits of Charcoal Soap

My daughter and I have recently started washing our faces with charcoal soap.  Her for acne and eczema, and I for psoriasis and smoother, tighter skin.  Click here to find out what benefits there are to washing with charcoal soap and which brand we recommend.

 

 

 

 

 

 

Online Medical Marijuana Recommendations: Convenient or a Waste of Time?

Have you heard of doctors offering online medical marijuana recommendations?  I didn’t until last year!  Click here to learn about my experience and to see if this service is available in your area.

 

 

 

 

 

Why a Diagnosis is a Reason to Celebrate!

No one in their right mind would celebrate receiving a diagnosis of a disease that is incurable, right?! Or should they??!!!  Click here to find out why each of mine were a reason to celebrate.

 

 

 

 

 

28 Ways to Practice Self-Care

Click here for 28 ideas to help you love yourself this month!

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

PEMF therapy with Oska Pulse has taken my pain management plan to a whole new level! Click here to see how it has improved my chronic life and click here to learn more about the device and how it may help you too! BTW My discount code DIVA will save you $55.00 when entered at checkout!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I Don’t Believe in That Disease

 

 

 

 

 

 

 

 

 

I used to think having to be retested for a disease whenever a new physician didn’t believe that I had it was frustrating.  I can’t tell you how many times I was told by a new doctor that they didn’t believe my diagnosis of psoriatic arthritis from another physician.  Each time they wasted my money and time by reordering all the same tests, that wow, surprise, had the same results.  Thankfully, they would accept their own results and move on.

My diagnosis of fibromyalgia has been more problematic. In fact it almost cost me my life……..

Soon after receiving my diagnosis of fibromyalgia, I began having abdominal pain. I began seeing my gynecologist way more than I ever did while pregnant with my daughter.  During one visit I mentioned my diagnosis of fibromyalgia and he said, and I quote “That’s not a real disease.”

Believe it or not, his thinking that fibromyalgia wasn’t a real illness actually helped me for the first two years.  Because he didn’t believe in it, he pushed my insurance provider to approve an exploratory surgery when all tests came back showing nothing wrong.  That surgery revealed that I had endometriosis and an extremely large ovarian cyst.  The cyst and adhesions had pulled my bladder, uterus, and left ovary towards my sidewall.  In addition, they not only pulled my left fallopian tube towards the sidewall, it had adhered and embedded itself into it!

The pain and symptoms returned within a year. Thankfully he still didn’t believe in my chronic illness and agreed to perform a hysterectomy.  That surgery revealed a belly full of adhesions and a bunch of ovarian cysts.  In addition to what was found in the prior surgery, adhesions were also pulling my rectum towards my sidewall.  So far so good, right?! In fact you may be wondering how this led to me almost losing my life. Less than six months later, the pain on my left side returned and……..

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

 

 

 

 

 

 

 

 

 

 

 

 

 

I was horrified when the pain returned.  My OBGYN had removed my uterus, ovaries, and fallopian tubes.  I had also had an appendectomy prior to the hysterectomy.  There wasn’t anything left that could be causing the pain that I was experiencing.  I returned to my gynecologist who after hearing about my pain, decided to blame my pain on fibromyalgia! The very disease he adamantly denied existence of became an easy way for him to get rid of a complicated patient.

Over the course of two years I went from one surgeon to another.  Not one would consider that I could still be experiencing problems from endometriosis or that it was possible that something went wrong with my hysterectomy.  One after the other opened my chart, without running any tests or performing any type of examination, and blamed fibromyalgia.

You may be thinking, wait a minute, those doctors believed that you had fibromyalgia!  I will never know whether they really believed that I had it or not, but I do know that they knew very little, if anything, about the disease.  When I would explain that his had never been one of my fibromyalgia symptoms, they would just say that they heard it was a symptom of it.  If they didn’t blame fibromyalgia, they told me that it was all in my head and that they would happily refer me to a psychiatrist.  Then they would close my file and leave the room…….

Two years, twenty surgeons, not one was willing to help me.  Each and everyone blamed an illness they knew little to nothing about and even denied until it became an easy scapegoat.  These men made me doubt my sanity, made everyone except for my husband and children think that I had lost my mind.  Friends and family believed that I was depressed, addicted to opioids (why else would someone go to the emergency room as much as I did), or that I wanted surgery for attention.  Funny thing about the last thing, is that all those who didn’t believe me, never helped out during the prior surgeries.  In the meantime my pain increased, I became weaker, and sicker.

Long story short, surgeon number twenty-one finally believed me and agreed to perform surgery.  What he found shocked me, the attending nurses, and the surgeon himself.  I had adhesions everywhere.  He had to scrape from my cervix up to my diaphragm. He also found that a large portion of my left fallopian tube had been left behind during the hysterectomy.  It was infected, covered in endometriosis, and was embedded into my sidewall.  Not only was it embedded into my sidewall, there was evidence of how it had adhered and embedded to other areas of the sidewall and was pulled out by adhesions.  If that wasn’t enough, my bowels were being strangled by adhesions.  But according to my original surgeon and 20 more, it was either fibromyalgia or in my head……..

 

 

 

 

 

 

 

 

 

 

 

 

 

 

My saga doesn’t end here. But the point of this post isn’t to share the entire story, but to demonstrate how if any of those surgeons had believed in or had any knowledge about fibromyalgia, I wouldn’t have had to suffer the way I did.  I have always despised my diagnosis of fibromyalgia and will continue to until doctors choose to learn more about it.  The ignorance of 22 surgeons almost cost me my life. As the surgeon who found the mess informed me, having my bowels strangled like they were would have killed me.

It doesn’t matter if a physician believes in fibromyalgia if they are not educated in it.

Have you ever been told that your disease isn’t real by a doctor?

Have serious unrelated symptoms/illnesses been overlooked because of your diagnosis of fibromyalgia or other disease?

The damage I suffered continues to haunt me and put my life at risk.  Don’t let the ignorance of one or twenty-one doctors put your life in danger. Had I given up, I wouldn’t be here to share my story with you today.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Kicking rain pain down the storm drain with PEMF therapy

 

 

 

 

 

 

 

 

 

As I shared on Facebook and Instagram Tuesday night, once again PEMF therapy saved the day!!  Southern California is experiencing a wet, cold week and my body isn’t happy.  Since adding PEMF therapy with Oska Pulse to my daily pain management plan, I have been able to greatly reduce how poorly my body reacts to the pressure that pushes storms in.  However, multiple storms still rock my world a bit.

*Disclosure: This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Since Saturday, I have been able to keep the pain I typically experience from fibromyalgia and psoriatic arthritis when storms occur by running PEMF treatments up and down my spine.  Around 4pm on Tuesday, an unbearable pain overtook my collarbone.  It seriously felt like a toddler was jumping up and down on it!! With tears in my eyes, I scrambled to figure out how to relieve it.  Besides still having some work that I needed to finish, it was too early for me to medicate with cannabis.  My topical CBD oil relaxed the muscle, but it wasn’t touching the bone pain.  Then it hit me, duh!! Put Oska Pulse on it!!!! Ninety minutes later and the pain was gone!!! Not only did I achieve complete relief, I did without any medications.  I honestly have no idea how I ever lived without my Oska Pulse.

 

 

 

 

 

 

 

 

 

 

 

 

 

In case you haven’t heard, Oska Pulse has been improved! Instead of only having the capability to run 30 minute treatments, it now runs for 90 FULL MINUTES!!! So while I had to hit the on button three times to go through 90 minutes of treatments, those who order the new version only have to hit it once!

Want to know all the different conditions and symptoms that PEMF therapy is able to help?  Click here for a list that includes third party medical reports.

Curious about how the device works?  Click here to see a demonstration.

Find out how it has changed my life by clicking here and reading my series.

Last but not least, don’t forget that discount code DIVA will save you $55.00! 

Click here to order yours today!  And then you too will feel well enough to play on Snapchat and take silly pictures all night long.

 

Pin me!

 

 

 

 

 

 

 

 

 

 

 

September is Pain Awareness Month

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September is pain awareness month.

Throughout the month I will be sharing different ways to reduce or alleviate chronic pain.

*Disclosure: This post contains affiliate links, meaning that at no additional cost to you, I earn a commission when you make a purchase thru my links.

One of my favorite pain relief options is PEMF therapy with Oska Pulse from Oska Wellness. Here are a few reasons that I love this wonderful little piece of technology. It is convenient; I am able to administer treatment wherever and whenever I choose. There are no side-effects! How many pain relief treatments have you tried that didn’t create more issues?! Last but not least, it WORKS!! My beautiful blue device reduces and eliminates inflammation and pain like nothing I have ever tried before. Since combining it with the other components of my pain management plan, I have been able to achieve relief I never thought possible and have been living a full and active life. But don’t just take my word for it, check out what others have to say on their testimonial page.
Another reason I love Oska Wellness is that they are committed to helping people feel better! This month and this month only, Oska Wellness will be donating $10 to the National Fibromyalgia and Chronic Pain Association for every Oska Pulse sold! This foundation works to unite patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.

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And it gets better! When you enter promo code DIVA at checkout or purchase through this link, you SAVE $55!!! So, you save money, the Fibromyalgia and Chronic Pain Association gets a donation, and you will benefit from the best pain and inflammation reducing product available!!

Still not convinced that Oska Pulse is right for you?

Join my Alternative Pain Fighting Forum where I have tons of third party reports about the device.

Click here to discover how it has helped me. I began documenting my progress on my blog soon after I began using it daily.

And last but not least….. click here to visit Oska Wellness yourself!

Don’t forget DIVA saves you $55!

SeptemberisPain AwarenessMonth pin

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Retiring My Wheelchair

 

For those of you that are new to my blog, I have been chronically ill for 18 years.  I have been diagnosed with fibromyalgia, psoriasis, psoriatic arthritis, endometriosis, and degenerative disc disease.  When I was first diagnosed my doctors never warned me that I might end up having to rely on mobility aids to get around.  Nor was I told to emotionally prepare myself for the possibility of becoming dependent on my family and friends in order to leave the house.  Yet 7 years into my chronic life that is exactly what happened.

Long story short

How far or long I could walk without experiencing excruciating pain decreased as each year passed by.  By 2007 I required use of a wheelchair for all major outings like a day at Disneyland or the zoo.  At the same time I had to also begin using a walker to maintain balance and to have a place to sit and rest my feet often for all other outings.  Then in 2012 my dependence on mobility aids reached a new level.  My walker began gathering dust because my body required that I use my wheelchair for every outing.  This meant that my family and friends had to push me around church, the grocery store, and restaurants.  The daily pain I was experiencing in the bones and muscles of my feet, hips, sacrum, and spine was horrific.  My doctors were of no help.  They said that I would never improve and the only thing they could do was to continue addressing each symptom with another pill.

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Not giving up without a fight

My doctor’s plan was the same as it had been for 12 years, more pills.  Not once during that period did I ever experience any kind of relief.  Although I accepted my body’s needs and did everything I could to meet its demands, I refused to continue treating my chronic illnesses and pain the way I had been which was obviously NOT working.

*Disclosure: I am not a medical professional. I am NOT issuing medical advice. I am only sharing my experience. This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.

Step one of my plan was to stop all of my pharmaceutical treatments and to give my body time to completely rid them from my system.  My second step was to begin treating my diseases with MMJ (medical marijuana).  This included a combination of THC and CBD.  The rest of my treatment plan included but was not limited to using ice packs, heating pads, and massage therapy.  While not all of my friends or family were supportive, I had enough support to give it a try.  Looking back over the past few years,  it is clear that I would have been missing out on a better life if I had allowed the opinions of others and the stigma of using MMJ prevent me from trying it.

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Strange things are happening

Two major improvements occurred immediately.  The first was regaining the use of my pointer finger and thumb on my right hand.  In the years prior I had lost full use of those digits because of joint inflammation.  Within months of using MMJ daily, I not only regained usage, I could make a loose fist without pain! A year later, I was able to make a tight fist.  The second extraordinary improvement was in regards to sleep.  Before MMJ I was lucky to get 4 hours of sleep per night and that was only when I could sleep.  It became normal for me to experience 2-4 sleepless nights per week.  As soon as I began medicating with marijuana I began experiencing what is known as restorative sleep.  I was sleeping 8-10 hours per night and my sleepless nights decreased to 1 or 2 per month. Reaching a restorative sleep level resulted in my having more energy during the day.  But that’s not all! By the time I entered my 5th year of medicating with marijuana my body surprised me by allowing me go grocery shopping at least once a week without having to use a mobility aid.  However, that wasn’t good enough for me, I wanted MORE!

 

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CBD vape is just one of my favorite products from Bio CBD+.  Click here see them all!

 

The Game Changer

In December of 2016 I was asked to try Oska Pulse, an electronic and wearable device that uses pulsed electromagnetic fields to reduce pain and promote healing.  I was skeptical, because let’s face it, if this type of therapy could really work my doctors would have surely suggested it, right?  While hesitant to believe that this device could improve my life and health, I figured I had nothing to lose by trying it.  I began by only using it for a couple of hours a day, a few days a week.  After a two months I noticed that it was doing more than reducing inflammation and pain in my knee.  My stamina was increasing and my daily pain levels were dropping.  This combination allowed me to begin exercising more frequently.  I began using it for 10 hours a day, every day, in March of 2017 and that was when I discovered how amazing this device really is.  I wasn’t the only one, friends and family who have witnessed most or all of my chronic life were equally astonished.  Within the first month of using it daily I experienced relief from abdominal pain due to adhesions from endometriosis and surgical scarring.  This was after 14 years of living with horrific pain as the adhesions pulled and ripped from my abdominal sidewall and internal organs. Today that pain feels like a distant memory. That relief alone was enough to make a believer out of me.  But there was more! A few months later the pain that had consumed my feet since 1999 had disappeared.  The next improvement was one that not one of my doctors thought would ever improve.  Yet after 3 months of daily PEMF treatments with Oska Pulse, the non-stop agonizing pain that had invaded my spine, sacrum, and hips in 2011 was gone!!! Since then PEMF therapy along with MMJ, ice, heat, massage, dietary changes, and exercising has made it possible to heal a torn abdominal muscle without surgery and is why………. Wait for it………… As of January 2018 I am no longer dependent on my wheelchair or need to be pushed around!!!

Let’s get real

Have I been healed? NO! I still have flares, just not as many and the duration of them has also drastically decreased.  I still experience pain, but my daily pain levels are significantly lower than they have ever been.  Before MMJ my daily pain level was stuck between 8-10.  After I began medicating with marijuana it lowered to 6-9.  Since adding daily PEMF treatments my daily pain level fluctuates between zero and 5.  That’s right, I actually experience pain free days!  In the past month my family and I began going on daily power walks and last week I did something that I never thought I would ever be able to do again.  Last Wednesday my daughter and I started our morning by driving to Newport Beach.  While there we walked up and down the boardwalk and pier.  After we strolled through the streets dreaming about which beach house we would live in if we won the lottery.

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A year ago that would have been the end of my day and I would have paid for it with days of bedrest. While extraordinary compared to where I was in the months leading up to where I was a year ago, it was nothing compared to what happened next.  From the beach we drove to Disneyland where we spent a couple of hours riding our favorite thrill rides, Space Mountain and Thunder Mountain.  The remarkable thing is that I did this all on foot!!! No wheelchair! While I needed my walker for our second adventure of the day, it was the first time since 2006 that I was able to spend more than 30 minutes on my feet at Disneyland.  Never in my wildest dreams did I think this would ever be possible.  While waiting in line for Thunder Mountain, my daughter expressed how strange it felt to be with me in the standard queue versus the handicapped queue (I left my walker at the exit of the ride).  Tears welled up in my eyes because while it felt fantastic to be in the “normal” queue, after so many years of having to use the handicap entrances it felt odd to me too.

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Promo code DIVA will save you $55. While I am an affiliate for Oska Pulse, that is NOT why I share my story. I share my experience with this device because I want everyone to feel as good as I do.

Are you experiencing improvements in regards to your chronic pain and symptoms or are you continually getting worse?  Do you want to try something different?

To learn more about PEMF therapy with Oska Pulse I invite you to visit my friends at Oska Wellness.  When you are ready to give it a try my discount code DIVA will save you $55. **Update> As of January 8, 2019, the Oska Pulse pain relief device now comes with a treatment span of 90 minutes!

How will Oska Pulse help you?  The only way to know is to give it a try! You have nothing to lose except pain.

How I treat my chronic illnesses is just one of the many changes that needed to take place in order for me to begin dominating my chronic life.  Find out what the rest were and how they will improve your life in my book: Make Pain Your Bitch: How to Dominate Your Chronic Life.

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