Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.
There two forms of self-care. There’s the fun kind that everybody likes and the not so fun kind that feels more like work than a good time. Today I am sharing the importance of both and why they should be discussed with newly diagnosed patients.
I can’t imagine anyone likes asking for help. I know I don’t. But as the pain and fatigue from fibromyalgia and psoriatic arthritis increased, I had no choice but to give in. I often wonder if it would have been such a painful process had I been warned at the time of my diagnosis. My guess is that….
I was caught off guard by the changes that took place in regards to my relationships with others. As a stay-at-home mother and wife my role was to care for everyone. But that all changed after my body was hijacked by fibromyalgia and psoriatic arthritis.
To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is
For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.
Let’s talk about sex!
Chronic pain from fibromyalgia and psoriatic arthritis will destroy your sex life unless you are willing to accept and make changes.
What needs to change?
Things that may need reevaluating are:
Our prescribed treatments aren’t going to help if we are struggling with our mental health. Reasons why therapy is important after receiving a chronic illness diagnosis.
Receiving a diagnosis of an autoimmune disease is overwhelming. There is so much to take in, especially if you have no knowledge about your diagnosed disease and weren’t expecting it.
There is nothing normal about living with multiple chronic illnesses. So why do we expect ourselves to adhere to a holiday schedule that many healthy people struggle to keep up with? Today I am sharing why holiday timelines don’t work with chronic illness/pain.
You’ll be both comfortable and the hit of your Thanksgiving celebration in these fun tees!
Instead of waiting until 2020 to set and reach health goals, I am doing it now with the help of a Pack Health coach!
For healthcare to work, we the patient, need to be heard. Find out what I am doing to give the medical community a better understanding of what is important to us.
How many times have had an appointment with a new doctor only to have them ignore, dismiss, or laugh at your symptoms and concerns? What if you could interview doctors before scheduling an appointment?
My favorite site for natural remedies has just released some amazing new products and a discount code to save big!
Tips for dealing with brain fog caused by fibromyalgia and other chronic illnesses.
Wearable pain relief devices to keep your chronic pain on the down low and you on the go!
This month we are scaring up healthy habits! No tricks just a bag full of treats for your body and mind.
There may not be a cure for my chronic illnesses, but one thing there is no shortage is terrible advice! People who have never heard of fibromyalgia and psoriatic arthritis suddenly become experts on how to “heal” my body. The most commonly shared advice is also the most dangerous. Today I am sharing three of the worst and how/why you should avoid them.
Accepting the need for a mobility aid is not an easy thing to do. Listening to asinine opinions from judgmental idiots is worse! I wish they would just do us all a favor and just STFU!