To expect millions of people who are as different from each other as the sun and moon are to find relief from one, two, or even three options is absolutely ridiculous! What we need are pain management plans that address us individually, not as group.
The problem is
For doctors and patients to have a better understanding of how the disease progressing, what could be triggering symptoms/pain, and the impact it is having on the patient’s life they both need to see the full story, not just one day or week of the patient’s life.
Let’s talk about sex!
Chronic pain from fibromyalgia and psoriatic arthritis will destroy your sex life unless you are willing to accept and make changes.
What needs to change?
Things that may need reevaluating are:
How many times have had an appointment with a new doctor only to have them ignore, dismiss, or laugh at your symptoms and concerns? What if you could interview doctors before scheduling an appointment?
Vacations typically provide us with an escape from our normal lives. And even if just for a few days, we are able to forget about our worries and escape from the life that is wearing us down. However, if we are not careful, our escape to Fantasyland could make returning to reality more painful than before. What the heck am I talking about? Read on…….
For the past two and a half years, my body’s ability has been nothing but amazing to me. To think that in 2012 I was unable to sit, stand, or walk for more than 5 minutes without bursting into tears because the pain was so intense or that by doing so I would experience blindingContinue reading “About Last Night”
Everyone likes hearing that they did a good job or that their work made someone else’s life better, right? Sure, but when you have been continuously doubted, made fun of, or shamed because of your chronic illness, accepting a compliment isn’t so easy.
Mother Earth needs to calm the f*ck down! I have had on ongoing migraine since the morning of the first earthquake on July 4th. I experienced relief after it struck, but it returned the following morning. The next period of relief came right after the second one on the evening of the 5th. I woke with a more intense migraine on the 6th and it refuses to leave
20 years of living with chronic pain have taught me that no plan is complete without a backup plan! Today was the perfect example. Wanting to spend the 4th of July at Disneyland but not wanting to exhaust myself with a full day visit, my husband and I decided we’d enjoy 4-5 evening hours thereContinue reading “The Importance of a Backup Plan”
Your chronic pain/illness journey is as unique as your fingerprint. Just like your fingerprint, no one is going to experience the exact same thing, even if they have all the same illnesses/pains. How each body reacts to treatment, allergies, access to different types of treatments, nutritional intake, climate, support, mental health, and so many otherContinue reading “Your Chronic Illness/Pain Journey is as Unique as Your Fingerprint!”
Heatwave Hell How well does your body tolerate heat? Do extreme temperatures leave you begging for mercy? You’d think that living in Arizona for a large portion of my life would have made me heat resilient. And it was true for a good chunk of my time there, that is until fibromyalgia, psoriasis, and psoriaticContinue reading “Heatwave Hell”
Has anyone attempted to comfort you by saying “At least you don’t have…”? Have you comforted yourself with the same thought? he thing is, no matter how you end this phrase, it is never okay to say, not even to yourself! And here is why!
You see this young girl lying on a park bench, what is your first thought?
Don’t tell me what you think I want to hear or what you know would be most acceptable to be said, but tell me what your true first thought was………