Finding a chronic illness community support group can feel overwhelming. While there are many to choose from, not all are active. There are some we don’t vibe with, and that’s okay. But don’t stop looking.
The beauty of online community groups is that you can be a member of as many as you wish. Choosing a support group is like buying a new car. Test them out and if one doesn’t work out, try another.
The list of groups I have provided below is from bloggers, advocates, and online health communities that I know and trust. And whether you choose to join mine, theirs, or all of them, my wish is that you find the support and encouragement needed to survive life with chronic illness.
Disclaimer: This blog post contains affiliate links. I may earn a small commission to fund my coffee drinking habit if you use these links to make a purchase. You will not be charged extra, and you’ll keep me supplied with caffeine. It’s a win for everyone. I am not a medical professional, and nothing stated in this article should be mistaken for medical advice…
General Chronic Illness Communtiy Support
The Disabled Diva Chronic Pain Fighters
Although my blog focuses on life with fibromyalgia, psoriasis, psoriatic arthritis, and endometriosis, the group discussions are relatable to most chronic illnesses. The group’s purpose is to provide support, encouragement, and resources needed to live a life we like despite our chronic illnesses and pain.
Join here!
Carenity
An online patient community where patients can find information about their chronic illness while connecting with and sharing their journey with others.
Join here!
Hope Amid the Pain (Women with Chronic Pain and Illness Support Group)
This group is a safe place for women battling chronic pain and illness to find support, encouragement, and hope. Join here!
The Pyjama Interviews
This group, run by The Pjyama Interviews Podcast, is only for women who want a positive, empowered relationship with themselves while experiencing serious illness and/or living with chronic illness. Our community is full of very real women who continue to navigate the extreme demands of serious illness, who turn up every day to courageously face diagnosis, treatment, and survivorship. Join here.
Medical Musings with Friends
In January 2017, Sam started this group for women or men who are just wanting the hand of friendship as they journey the often lonely & difficult path of chronic illness. Join here.
Chronic Illness Social Pod
A social media share and support group specifically for chronic illness bloggers. Join here.
Yoga for the Chronic Life
Melissa is a yoga teacher, mindfulness coach and has been sharing practical tools, information, support, and hope for several years. Using mindful movement, breathing, and meditation, we learn practical tools and techniques that we can use anywhere, anytime to reduce and relieve fibromyalgia and chronic pain. In this group, we learn about how these tools can help us in our journey, try out some and support each other in our goals. Join here.
Chronic Illness Specific Support
ADHD
Smart Girls with ADHD
Hi ADHD ladies! This closed group is for awesome, successful, smart, strong adult women with diagnosed ADHD. Let’s get rid of the stigma and start talking about it! Join here.
Celiac and Food Allergy
Celiac & Food Allergy Family Support with Strength and Sunshine
This is a support group run by Strength and Sunshine for families dealing with and parents of children with celiac disease and food allergies. The purpose of this group is to share advice, support and encouragement, tips, and gluten-free/allergy-free recipes among members.
Transitioning and navigating life with celiac disease, as well as food allergies, can be stressful and difficult not only in the beginning but throughout. This is a safe space to ask questions without judgment and get support 24/7 from a community that understands. Join here.
Endometriosis
Endometriosis Health and Information Community
This Health Union group provides opportunities to meet others like yourself, share your story, discuss the challenges of living with endometriosis, and more. Join here.
Gastroparesis
Gastroparesis Support Group
Ms. Sherry Schwalm started this group to help her daughter, Lauren, and others communicate and support each other through the ups and downs of Gastroparesis. The group has grown by leaps and bounds over the years, but one thing has not changed: our mission. This group is a welcoming and safe place for all to come and share their concerns, joys, heartaches, questions, and helpful information. Join here.
Fibromyalgia
FIBRO CONNECT
This is a safe place where people with fibromyalgia can ask questions and connect with each other. Join here.
Pregnancy and Parenting with Fibromyalgia
This is a safe, supportive group for women considering, trying to conceive, pregnant, nursing, and parenting with chronic pain, chronic pain, fibromyalgia. Join here.
Fibromyalgia And Ankylosing Spondylitis in Women
To help women cope, share stories, and give hope to others in the same situation. Our mission statement is to support and inform while helping women understand the difference between Fibromyalgia and Ankylosing Spondylitis. Join here!
Immune Deficiency
Immune Deficiency Support Group
This Immune Deficiency Support group is an Educational, Motivational, and Supportive group for Primary and Secondary Immunodeficiency Patients and Parents of Children under the age of 21that are diagnosed and living with Primary /Secondary Immune Deficiencies ONLY! Join here.
MCTD – Mixed Connective Tissue Disease
MCTD – Mixed Connective Tissue Disease Facebook Group
This group is for all people with the MCTD diagnosis. Join here.
Migraine
Migraine Health and Community Information
This Health Union group provides opportunities to meet others like yourself, discuss the challenges of living with migraine, and more. Join here.
Psoriasis
Plaque Psoriasis Health Information and Community
This Health Union community includes conversation forums and an opportunity to share your story and chat with other psoriasis patients and advocates. Join here.
Psoriatic Arthritis
Psoriatic-Arthritis Health Information and Community
This Health Union community includes conversation forums and an opportunity to share your story and chat with other psoriatic arthritis patients and advocates. Since it began, I have been a community member and have met some fantastic people. Join here.
Psoriatic Arthritis Community: Support, Resources & Discussion
This Facebook group is hosted by WebMD. Cynthia, The Disabled Diva, shares valuable information and strikes up conversations about life with psoriatic arthritis as one of their moderators. Join here.
Sjögren’s and Lupus
Sjogren’s And Lupus Warriors
A place to educate, inspire and empower individuals living with Sjögren’s Disease, Lupus, and other inflammatory autoimmune diseases. Join here.
Type 2 Diabetes
Type 2 Diabetes Support Group
Whether you were just diagnosed or have been living with Type 2 Diabetes for years, this group is for you! We are here to support and encourage each other as we navigate life with Type 2 Diabetes. Join here.
Type 2 Diabetes Health Community
This Health Union community includes conversation forums and an opportunity to share your story and chat with other Type 2 Diabetes patients and advocates. Join here.
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Do you have your own chronic illness community support group or are you a member of one that you would like to suggest?
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