Press play to listen to My Chronic Life October 2021 Update or continue reading.
September was a time of transition. I was doing more and discovering new limits.
October was full of surprises. Just not the kind that I expected.
What was life with fibromyalgia, psoriatic arthritis, psoriasis, bowel endometriosis, and adhesions like this month? Well, let me tell you!
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To my surprise, the majority of October was spent in bed!!
Part of me wishes that it were fibromyalgia and psoriatic arthritis flares that had knocked me down. Not that I want them to act up, but that I know what to expect. I can typically feel those flares coming on and how long they will last. In addition, I know how to decrease the pain they inflict.
Both PsA and fibro respond well to PEMF therapy. When treatment is applied to my spine at the beginning of one of those flares, I can cut back on the amount of cannabis needed for pain relief and sleep.
I did have a little psoriasis flare on my upper arms and belly. However, that was expected as that is how my body reacts to trauma. And holy moly, was there a lot of trauma!! But as I said, those chronic conditions were pretty well behaved considering everything else my body was going through.
The month began with more tearing of adhesions from my bowels and abdominal muscles. In addition, the adhesions were also restricting several areas of my intestines.
Here We Go Again
Mid-month, one of the restricted areas broke free. Unfortunately, breaking free is extremely painful, but it’s the best thing that could happen in the end. When it broke free, I passed a large blood clot with my stool. Terrifying, yet also it is part of the process that I have become accustomed to. This is not the first time I have experienced this, but it is the first time I am sharing it with anyone outside of my house or medical team.
Basically, what happens is when my intestines are restricted, blood clots form, and once free, they pass through. The last time this happened, I passed three large blood clots within three weeks. So even though I passed one, I am still in pain weeks after. On a positive note, I experienced relief, slowly began regaining strength, and returned to some of my favorite activities. How long the relief lasts is anybody’s guess. The longest I have experienced relief is three years, and the shortest span was three weeks. Currently, I am still waiting for the other areas to release their clots.
My October 2021 Restrictions
My activity level was extremely limited throughout October. I couldn’t drive. I tried, but halfway home suffered what felt like a sheet of adhesions ripping from my internal organs, rib cage, muscles, and bladder. As you might have guessed, I haven’t driven since.
Since that episode, I haven’t been able to sit without inflammation in the area or pulling of my bladder and intestines for more than 30 minutes a DAY! As you can imagine, outings are pure hell!
I did get out for Halloween. We had purchased tickets to the Oogie Boogie Bash at Disneyland for Halloween night months ago. There was no way I was going to miss it. So I rode there with the passenger seat fully reclined, medicated heavily for pain, and pushed through the day. The first 5 hours weren’t as bad as they could have been. And even though I could tell that the inflammation and pain were getting worse throughout the remainder of the night, I was medicated well enough to not care.
The next day I woke feeling like I had just had major abdominal surgery. No, I take that back. It was worse than waking up from abdominal surgery. My intestines and bladder felt like they had been removed, ran through a meat grinder, and then put back inside my body. My ribs felt like they had been spread not just a part sideways but also stretched from top to bottom. And if that wasn’t enough, my muscles were tired and sore.
My Chronic Pain Life Treatments for October 2021
This is a list of chronic pain treatments and products I used this month.
- PEMF Therapy – The device I use is Oska Pulse.
Oska Pulse is a non-invasive pulsed electromagnetic therapy device intended to relieve or reduce all major types of pain, including back, shoulder, neck, knee, muscle, and joint.
(Disclosure: this is an affiliate link, and I will receive a commission if you decide to purchase from Oska, Inc. using this link. This link also offers a discount on the cost of the device when you checkout. )
- Red LED Light and Heat Therapy
- Solis 1100 Pain Management System
- Arnica Salve
- Good Night Lotion
- Cannabis (Homemade edibles)
- Liver Love Tincture
- Warm Water Exercise
- Power Wheelchair
- Grocery Delivery
The Rest of The Story
I accepted a few new sponsored projects and met all of my deadlines to my delight and surprise. So that’s a WIN in my book!
I spent less time at Disneyland, which was a bummer. However, Halloween day and night made up for it. We currently hold 3 reservations for November. I am praying my body will allow me to enjoy them without severe increases of pain afterward. I have given up rides. In fact, the only attraction I went on during the Halloween party was the Pixar Pal A Round Ferris wheel. I remained in my wheelchair in one of the non-swinging gondolas.
That was my October!
How did your chronic illness behave during October?
If you are new to my blog or chronic life series, you can read it from the beginning here.