Why I Am Afraid Of Making Holiday Plans With A Chronic Illness

Making holiday plans with chronic illness is no easy task and impossible for some. Here is why I am afraid to commit to any celebrations this year.

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It’s that time of year when everybody is busy making plans for the holidays. They are excitedly booking flights and planning menus.

There was a time when I looked forward to figuring out where we would travel and who would visit. But not now.

Now I dread it.

Making holiday plans with chronic illness is no easy task and impossible for some. Here is why I am afraid to commit to any celebrations this year.
Making holiday plans with chronic illness is no easy task and impossible for some. Here is why I am afraid to commit to any celebrations this year.

Disclaimer: This blog post contains affiliate links. I may earn a small commission to fund my coffee drinking habit if you use these links to make a purchase. You will not be charged extra, and you’ll keep me supplied with caffeine. It’s a win for everyone. I am not a medical professional, and nothing stated in this article should be mistaken for medical advice…

Why Holiday Plans Are Difficult With My Chronic Illnesses

Making plans with one or more chronic illnesses is extremely difficult. In my case, I have fibromyalgia, psoriasis, psoriatic arthritis (spondylitis), bowel endometriosis, abdominal scar tissue, and nerve damage from a surgical error to contend with.

While all are painful and unpredictable, I had been able to do more in past years after finding treatments that better help me manage fibromyalgia and psoriatic arthritis. But even then, I had to be extremely cautious in my planning.

This year, endometriosis and scar tissue on my bowels will prevent me from making plans. They tear, twist, and pull my internal organs and abdominal muscles. An update will be posted soon explaining some of the new pains I am dealing with.

Psoriasis and psoriatic arthritis treatment option
Psoriasis and Psoriatic Arthritis treatment options.

Travel

Travelling is a no-no this year. I could not endure the pain that a flight or long-distance car ride would create with my current abdominal situation.

Currently, I spend days recovering after riding in the car for an hour or two.

I could possibly travel if it were not for my abdominal pain. It would depend on how my body was responding to current treatments, but it would at least have been a possibility. In the past, when my abdominal pain was not at its current level, I could travel as long as I followed some rules. (Come back Monday to read my new article about surviving holidays with psoriatic arthritis).

Related Reading:
How to Survive the Holidays with Psoriatic Arthritis
The Disabled Diva’s Top 10 Travel Tips

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Ghost Host

Hosting a holiday celebration is also out of the question. I do not have the stamina to prepare, clean, or decorate. Sure, I could pay to have all the prep work done, but what good would that do when my current state of affairs has me bedridden?

What good is a hostess who can’t even appear at her own party? Or one that is in so much pain that all she does is scowl or sit in silence. Because that is what pain does to me. I try to smile. I try to participate in conversations. But pain blocks what I want to do and leaves me looking like the Grinch.

What My Holiday Plans Include

My holiday plans include spending time with people who won’t be offended when I sit in silence. They need to be okay with the fact that pain will limit my ability to converse.

The plans I have made are flexible. Meaning that they can change dates or end the celebration early if needed.

Avoiding my personal social media feed. I am depressed enough from the amount of pain I am in and lack of ability to do what I want. Seeing holiday posts about how gathering with family and friends is the most important part of the holidays will likely push me over the edge.

I wish things were different. Knowing how well I managed my other chronic illnesses before my abdominal mess went into overdrive frustrates me. To have achieved so much relief from a couple of very nasty chronic diseases and to have something that could have been prevented by my doctors be what effs my life up breaks my heart.

Are you or have you made holiday plans?

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Published by Cynthia Covert

Diagnosed in 2001 with psoriasis, followed by fibromyalgia, psoriatic arthritis, endometriosis, and later a botched hysterectomy turned her world upside down. Cynthia shares her experience, advice, and tips for how to make life with chronic pain easier and less painful.

2 thoughts on “Why I Am Afraid Of Making Holiday Plans With A Chronic Illness

  1. I have had to severely tailor my holiday plans as I don’t have the same energy. I am still getting to do all of hosting and seeing every one just better paced and more spread out so that I can recoup from parties

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