Endometriosis resources should be provided to women long before they are diagnosed. Had I known more about this painful and debilitating illness before my hysterectomy, I could have saved myself and body a lot of heartache and pain.
In the Endometriosis Awareness Month post I shared on March 1, 2020, I explained why awareness about this illness was and still is so important to me. Most people assume that it is only women of child-bearing age that are afflicted with this illness. But that is not true. I am a 51-year-old woman who is still battling this most horrific disease. The sad part is that because of surgical errors and over 20 surgeons who have neglected to address it promptly, I will continue to battle it until the day I die.
That is why I am ramping up my endometriosis advocacy. My hope is that with the right information, women will be able to find skilled surgeons and not have to live the rest of their lives in the pain that I do.
#OneinTen women have #endometriosis
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Disclaimer: This blog post contains affiliate links. I may earn a small commission to fund my coffee drinking habit if you use these links to make a purchase. You will not be charged extra, and you’ll keep me supplied in caffeine. It’s a win for everyone.
Endometriosis Resources I Wish I Had Before My Hysterectomy
Endo Stats is a website filled with valuable information. I have learned so much from their site and know that you will too!
Endo Girls Blog: Kate and Laura share their history and battle with endometriosis along with some fabulous information about the disease and tips for finding a surgeon.
Other Endometriosis Blogs I Recommend
Erica from Celiac and the Beast shares her story and why she chose to have a hysterectomy.
Ambre from Living with Dysautonomia shares her experience and how she was unprepared for how it would also affect her emotionally.
#Endometriosis can take away a woman’s ability to be intimate with her partner
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Rachael from Accessible Rach shares her heartbreaking battle with endometriosis.
Be sure to visit all of the blogs listed above. I know that there are many more out there, so if you have or know of one, please share the link in the comments. As time permits, I will add them to this list.
#Endometriosis can take away a woman’s ability to escape #pain
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Endometriosis Top 10 Clinics in the United States
Because of the errors made by two surgeons, I hesitate to suggest any clinic, hospital, or surgeon for endometriosis. I do, however, suggest researching each one. Your research should include state board complaints and actions, plus patient reviews.
Top Ten Endometriosis Clinics in the United States
I had a total of three surgeons address endometriosis throughout my journey. The first performed the exploratory surgery, which revealed that I had endometriosis. He also later performed my hysterectomy. My second surgeon is who found the mess the first one left behind. And the third finished the clean-up but made a few additional surgical errors. Two of the three and the hospitals/clinics they practiced out of are not on the list above. Unfortunately, the third is. All I will say is that it is in Arizona. Let my bad experience be a warning that even the most reputable surgeons are capable of making disastrous surgical errors.
#Endometriosis can take away a woman’s ability to have a child
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As I am sure most women who have or continue to live with this pain pray that their daughters never have to know this kind of physical and emotional agony. Thanks to endometriosis resources like those above, they at least have more information than what was available to me.