Healthwise my body has taken a bit of a nosedive this month. Thankfully, I don’t need to be in tip-top shape to enjoy my life or follow through with my plans. Sheryl’s prompts for February’s A Chronic Voice linkup are looking, playing, joining, invigorating, and ditching. All things that can be done even with the hurdles that my chronic illnesses are creating. Read on as I uncover what I am looking at, playing, joining, invigorated by, and ditching despite interference from fibromyalgia, abdominal adhesions, and psoriatic arthritis.
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Looking at all the possibilities
This month is a month of planning. I am planning where to plant my garden and what I want to grow. A lot of time is being spent looking at seeds and learning what can be planted near each other.
This month I am looking for better ways to work around my #chronicillnessTweet
As I mentioned above, I am off to a rough start this month. For those new to my blog, I have on and off abdominal pain and issues that are the result of a botched hysterectomy that took place in 2005. Long story short, adhesions from endometriosis and part of a fallopian tube were left behind, became infected, buried itself into my sidewall, and the adhesions attached themselves to and began strangling my bowels.
My last surgery to address the issue took place in 2008. Even though I have had ongoing issues, no surgeon will touch me. One reason is because of how many abdominal surgeries I have had. The other is, and I agree with, that the adhesions will just return. The longest period of relief has been a year and the shortest only lasting three weeks. It is something that I have had to learn to accept and live with.
With that said I am looking for tips, products, and ideas to make my garden easy to manage while dealing with physical limitations and surprise flares. I have enlisted help from my family so that caring for our garden doesn’t fall solely on me. My husband is excited to put together a drip system so that I don’t have to worry about watering.
What I have been playing
Over the holidays my daughter bought a game from Star Wars Galaxy Edge at Disneyland. The game is called Sabacc. It’s a ton of fun and we recommend that you check it out!
Now that I have moved past the beginning phase of my new more relaxed lifestyle, I am finding I have more time to enjoy with my family. Sunday evenings are no longer spent frantically worrying if I have everything ready to tackle my work week. They are now spent watching a movie or playing games with my husband and daughter.
It is important that I make time to play. #chronicillness doesn’t have to take everything from me!Tweet
Not filling last weekend with activities that I knew my body couldn’t handle allowed me to conserve energy. That energy was then put to good use on Monday. As a result, I was able to have lunch with my son who was in town to perform at a convention in Anaheim.
And as always, I am putting a few days aside this month to play at Disneyland.
Planning to join
I spend very little time on social media. As the past few months have shown, it was taking too much of my time and interfering with my life. With that said, I do pop in now and then. On one occasion I saw a post for yoga on the beach.
Finding balance in plans that are set in stone and flying by the seat of my pants! #chroniclifeTweet
I plan to join this group at least once or twice a month. My participation will rely on my ability to drive and move my body without having to medicate for pain. I have a handle on the pain from fibromyalgia and psoriatic arthritis thanks to pemf therapy. It is the ripping and pulling that is taking place in my abdomen that will dictate whether or not I can handle the drive and activity.
Even though yoga is something I can do from home, doing it at the beach is the best. The ocean is my calming place. It is where my mind and body both relax and let go of whatever is weighing them down.
I am invigorated by
Well, you could say that the weather in southern California has been invigorating! We started the month with an 80-degree heatwave and two days later dipped into the ’50s with nighttime freeze warnings.
I am most invigorated by the calmness that is my life. I know it sounds odd, but the improvements slowing down has made in my life have encouraged and invigorated me to examine other areas of my life that could use some slowing down.
What I am ditching this month
Last but not least, I am ditching preconceived notions of what my life should look like. Some of these ideas come from people who don’t understand the complexity of living with multiple chronic illnesses. Others stem from those who still believe that if they force their bodies to function like they did before their diagnosis, they will be perceived as normal. Then there are my own notions of what I thought I would be doing in my fifties.
I am also ditching the guilt that comes with ditching a frantic lifestyle. Gone is the guilt of doing things during hours that aren’t considered the norm. So what if I am not a nine to five kind of gal!
One last thing I am ditching is a bag full of self-doubt. I can’t tell you how many times I talked myself out of trying something because of how deeply I doubted my ability. But no more, I have had enough of that! If I have learned anything from all my years of living with my chronic illnesses and pain, it is that I can do whatever I set my sights on. Of course, that means taking my symptoms and pain into consideration by making modifications and working with/around them.
What are you looking at, playing, joining, invigorated by, and ditching this month?
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