The cost of living with fibromyalgia goes beyond finances. Nothing I read at the time of my diagnosis could have prepared me for the high cost of living with fibromyalgia. That is why I wrote this article. Scroll down to see what you should prepare for.
This is part three of my seven part series.
Social life? What’s that?
*Disclosure: I am NOT a medical professional and am NOT issuing medical advice. Everything stated are my own experience and personal opinions. This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links. The proceeds earned fund the giveaways I host in my Facebook groups.
Fibromyalgia turned this social butterfly into a hermit crab!
When your body is consumed with pain from the top of your head to the ends of your toes, the last thing you want to do is to meet a friend for coffee or spend an evening out on the town.
Until I was able to gain control over my pain, holding a conversation was difficult. Brain fog stole my words and jumbled my thoughts. Prescription medications clouded my brain and increased the intensity of fibro fog. While I have experienced significant improvements in the past seven years, I still experience occasional foggy-brained moments.
It sucks to forget your words. You become self-conscience and worry about saying the wrong word, the complete opposite of what you meant, and/or annoying people by not being able to finish your sentence.
Conversations weren’t the only reason I stopped socializing, physical pain put the kibosh on the majority of my plans.
It’s not that I didn’t want to meet a friend for a cup of coffee. Instead, it was having to get dressed, to wear shoes and not slippers, to forgo pain medication in order to drive, the stress of wondering how long I could sit upright, the worry of will the seating be comfortable, and knowing that I would return home with a pain level that would send the average person to the emergency room.
It was knowing that if I strayed from my simple routine, my family would be the ones to suffer.
The result of an outing was needing hours and more typically days to recover from. This meant not being able to prepare meals or pick up clutter around the house.
Another reason your social life will suffer is because of you! You will get tired of being told to get better or listening to the “expert” opinions of those who have never been chronically ill.
You will tire of being pitied and if not careful, resentful of those who do not live with chronic pain. And last but not least, feeling like you have to continuously prove and explain your illness to others is exhausting!
What to expect
- People will call and come around less.
- People to say “Let’s get together when you’re better”
- People to get bored with you being sick.
- People to have absolutely no understanding of what you are living with.
- People will doubt your diagnosis.
- For people to continuously try to heal you.
- To feel like you are always being watched and observed.
- To feel guilty for not being able to do what you used to.
While I expected people who were not close to me to react this way, I was surprised by the number of what I had thought were close friends and family.
By now you probably need to hear some good news! The good news is, even before you find a way to get your pain under control, there are ways to deal with everything mentioned above. I share how I dealt with what others thought, my own insecurities, and improved my social life, plus how to apply what I did to your life in my eBook Make Pain Your Bitch: How to Dominate Your Chronic Life. Click here to claim your FREE copy today!
pain/” target=”_blank” rel=”noreferrer noopener”>Five Ways to Reduce Fibromyalgia Pain
Click below to read the rest of the series
- Doctor Trouble
- Pain, Pain, and More Pain
- Social Life
- Mental Health