I obviously knew that living with fibromyalgia included intense physical pain. But what I didn’t expect was that it would and could get worse!
*Disclosure: I am NOT a medical professional and am NOT issuing medical advice. Everything stated is my own experience and personal opinions. This post includes affiliate links. Meaning that at no additional cost to you, I receive a commission when you make a purchase through my links.
Pain, pain, and more pain
I feel confident in saying that I don’t have to explain the pain that fibromyalgia inflicts upon the human body, because you wouldn’t have been diagnosed without it.
With that said, it is a pain that is difficult to explain to anyone who doesn’t have this wretched disease. At any moment, it can affect one or two areas or the entire body. The pain is felt deep inside and on our skin. It’s in our joints, muscles, bones, and nerves. No two days are ever alike.
Between 2003 and 2013, I had a few lower pain days, but never did I experience a no pain day. I tell you this not to discourage you, but to let you know that there is hope if you are willing to go outside the box.
You see, during that time period, I solely treated fibromyalgia with prescription medication. Why? Because that is all my insurance would cover. Yet, not one prescription, not even my pain medication helped to improve my life, instead, they led me on a path of destruction.
By 2012, I was unable to stand, walk, or sit for more than five minutes. When I attempted to do so, I would experience blinding migraines and/or my body would mimic stroke symptoms. I had had enough!Tweet
That’s when I took control of my body and healthcare. Click here to read about five ways that I successfully combat pain from fibromyalgia and here for my full pain management plan. I have good and bad days, but none are as bad as they were when I treated pain with pharmaceutical medications.
What to expect
- To be denied pain medication.
- For medications approved for fibromyalgia by the FDA to do little if anything. Based on the number of people I see posting about how horrible they feel, the amount of those who do experience relief from a prescription is few.
- You can expect to be told to exercise and get more sleep. Neither of which is possible until you are able to decrease your pain level.
- Loads of information and support from bloggers like myself and other fibromyalgia bloggers at Chronic Illness Bloggers.
The Rest of the Story
The cost of living with fibromyalgia goes beyond finances. Nothing I read at the time of my diagnosis could have prepared me for the high cost of living with fibromyalgia.
Click below to read the rest of the series