What you see versus what’s really going on in my chronic life may surprise you.
Take a look at the photo above.
What do you see?
If I was someone who wasn’t with me at the time I might assume that she:
- is not using a mobility aid
- has full mobility
- has the energy to spend all day at a theme park
- is having fun with her daughter
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Only one of those observations is true!
- My rollator is parked next to the photographer.
- My hip almost dislocated while attempting this pose, my pemf device is under my shirt providing treatment to my spine and ribcage allowing me to be on my feet, and my knee was swelling from walking.
- I did NOT spend an entire day at the park or on my feet. That evening, we spent 4 hours in the park and I periodically sat down to rest my body. I can do a full day, but that requires my wheelchair until my pre-injury stamina returns.
- Yes, I had a blast with my daughter. I love that after so many years of suffering from debilitating pain, my daily
I love that after so many years of suffering from debilitating pain, my daily chronic pain from fibromyalgia, psoriatic arthritis, psoriasis, and degenerative disc disease is lower than it has ever been.
My real chronic life. I’m not lucky nor have I been cured.
What I am is someone who refused to believe her doctors when they said I was as good as I would ever be or that nothing could be done.
I refused to accept that there was only one way to combat my chronic pain. It took a long time and hard work to know my body and searched out the sources of my pain.
I tried new things. Not everything worked, but what did work, worked wonders.
I didn’t go from not being able to stand, sit or walk for 5 minutes, and having to be driven everywhere in 2012 to where I am today waiting on a miracle.
I worked hard and continue to do so in order to maintain a lower pain level
What’s the point of this post?
Don’t make assumptions, look deeper, ask questions, try something different, and most importantly, NEVER GIVE UP!!
Disclosure: I am not a medical professional. I am not issuing medical advice. Only you can decide what is best for you. As always, be sure to discuss changes to your pain management plan with your medical team.