Whether you live with one or multiple chronic conditions, the story is the same, they are never predictable and we must make changes when necessary. I have a tendency to take on more projects or commitments when I am experiencing a “good” spell. This is fine, that is until my conditions pull the rug out from under me and I find myself having to cancel and feeling frustrated because I can’t keep up with the pace I had been. And that my friend is where I am currently finding myself.
Overall, the last two years were pretty good to me. By living within my physical limits and utilizing mobility aids I was able to do more than I had in a long time. During those “glory” days, I was able to increase the amount of projects as well as make and keep more commitments. Unfortunately, the past 7 months have not been good. My abdominal pain reached a level that is out of my control. I am exhausted. This pain is literally sucking the life out of me. I have been trying to keep up with the pace I set last year, but keep finding myself stressed out because it is impossible. I hesitated to make any changes because I knew that I would be seeing a surgeon soon and thought that maybe I could muddle through until I recovered and then everything could go back to normal.
However, this past week I was reminded that I can never go back to how things were. It stung a little as it has been many years since I came to accept that I would never be able to live the life I once had prior to my chronic life. Yet I never even considered the idea that I may never return to the life I had during a “good” spell. This doesn’t mean that I have given up hope that I will get past this rough patch, instead I see it as being realistic. I still have to wait to find out how soon my surgery will be scheduled, and then there is the recovery time to consider. Overall, the changes I am planning to make will leave me open to new opportunities when I do experience my next “good” spell.
Since December, I have been falling farther and farther behind and it finally caught up to me this past week when I no longer had posts scheduled for The Disabled Diva or Disneyability. Not only that, but I also lacked the energy to either produce new posts or at the very least just schedule old ones.
This may sound silly to some, but keeping up with 8 social media accounts is more than I can handle when I am experiencing an extended rough patch. To remedy this, I plan on permanently removing 2 accounts and putting another 2 on the shelf by only posting on them when I am up to it. I will continue to post on The Disabled Diva Twitter, Facebook, Instagram, and Pinterest pages. I will post on Google Plus and Tumblr as my body permits. The two that I will be ending are my Disneyability Twitter and Facebook pages. However, this does not mean that I will be discontinuing posting about Disneyland. Since I have learned that most of my Disneyland posts are referred from The Disabled Diva pages, it only makes sense to keep them together. So from this point on, all Disney related posts will be posted on The Disabled Diva pages along with my chronic posts. If you are following Disneyability on Twitter or Facebook, I invite you (if you are not already) to follow The Disabled Diva. One other change I will be making is that I will no longer be live tweeting from Disneyland. I will however still post recaps of my visits and I will continue to post live video from Disneyland on The Disabled Diva Facebook page instead of the Disneyability page.
So far this year I have had to cut back on the amount of time I spend at Disneyland; I have been leaving the house less than I was last year, have had to accept the reality of what I physically have the energy to follow through on, and accept help from others.
Besides the changes you made when you became chronically ill, what are some changes you have had to make to your chronic life so that you don’t feel like you are drowning?
Wishing you a day filled with gentle hugs and many reasons to smile,
Tagged: abdominal adhesions, changes, chronic illness, Chronic Life, chronic pain, degenerative disc disease, Disneyland, fibromyalgia, health, invisible disabilities, mental-health, MS, psoriatic arthritis, spoonie