On a “good” day I move at the speed of a snail. Because of my chronic conditions I function at 20 to 30% of what an average person does. During an intense flare I am lucky if I function at 10%. Throw in an illness like Bronchitis and my functioning level plummets to zero. This is why I am such a freak about germs and being around sick people. Many of my able bodied friends have also been hit with Bronchitis this past month. The difference was that they were still able to fulfill commitments and go about their lives with minor disruption. I was not so lucky. Because of this many do not understand the severity and devastation that the chronically ill face when hit with what an average person considers to be a common illness. For over two weeks I was only able to hold my head up and leave my bed to go to the bathroom, or grab some saltines and a cup of coffee from the kitchen. Every few days I forced myself into the shower for no other reason than my hair was in desperate need of a washing. If I hadn’t I would be rocking dreadlocks by now or would have to shave my head because of the ratted mess my long mop had become.
Today marks the beginning of the fourth week of my battle with Bronchitis. Thanks to my dear friend’s generosity of sending a cleaning fairy, I have been able to give my body the rest it needs to heal. I was also able to enjoy my mom’s visit. The first two weeks I couldn’t leave my bed for more than a few minutes without wanting to vomit or pass out. By week three I was able to sit up for a few hours at a time. Yesterday I was able to have my husband take me to the grocery store and actually not feel ready to collapse by the time I reached the register. I am getting stronger every day, but I am still no where near my normal functioning level. I am desperate to resume moving at a snail’s speed, at least I was moving!! This past month I have had to cancel three planned Disney therapy days. Not being able to function normally is frustrating, but when I lack the strength to sit all day in my wheelchair at Disneyland it really pisses me off. For now I will be thankful that I am improving and work really hard to be patient with my body.
Wishing you a fabulous day, no matter what speed you move at!!!
The Disabled Diva