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More tests, less answers

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The quest to figure out what is causing the pain in my belly is taking much longer than I had expected.  Of course not being able to poop in a timely manner didn’t help either.  So far an ultrasound revealed a mass in my liver.  Then like magic, the mass was no where to be seen in my MRI.  My stool sample eliminated my doctor’s first suspicion of an infection.  I guess my doctor thought I should have been jumping for joy that these tests were all coming back negative, instead he appeared to be annoyed when I reminded him that  my symptoms were still present.  In a way I am over joyed, it is not that I want a mass in my liver, or want a tumor or infection, but I do want an explanation.  Something has to be causing my nausea, vomiting,  diarrhea, constipation, bloating, and the horrible pain that feels like I have a litter of alien babies trying to claw their way out of my belly.

The next step was to check for stomach ulcers by scoping my esophagus and stomach.  Guess what?!  No ulcers were found and everything looked fine. My doctor’s suggestion???  Change my diet and come back if nothing changes!!! First off following their dietary suggestion will be easy since I only eat a few of the things on their NoNo list.  But I know that won’t be the end all.  Why?  Because of I have gone long periods of time not eating or drinking those items and still had all my symptoms present!!!  For now I guess I have no choice but to follow this plan and wait a few weeks before pressing them to continue testing.

I am trying hard to not let this added pain and discomfort from disrupting my life, but it is not that easy.  As much as I try to live around my symptoms and make allowances for them, the pain they cause can be too much to handle…. Not to mention that this pain is in addition to my chronic pain caused by Psoriatic Arthritis, Degenerative Disc Disease, and Fibromyalgia. How much pain is too much??!!!???

One interesting thing happened after my scope yesterday…. I was reminded of why I chose to treat my pain with marijuana.  The IV cocktail that was given to me to make me sleepy and keep me comfortable contained Demerol.  Demerol was one of the drugs that doctors used to give me for pain back when I treated my conditions with pharmaceutical medications.  As expected I was groggy after the procedure and went straight to bed after my husband drove me home.  My procedure was at 9:00am, I awoke from my nap at 4:00pm with a raging headache.  I forgot how sluggish I used to feel when I took prescription pain pills.  I forgot how much my head used to hurt.  I am so happy and thankful that I no longer have to live like that.

So the wait continues…..and I will keep doing what I always do….adjust my tolerance level and find new ways to work around my pain…….

The Disabled Diva

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