Advertisements

Why hurry?

In the early stages I detested the amount of time wasted in bed suffering from extra pain. I say extra because I haven’t experienced a pain free day in over 12 years. I would fret about all that needed to be done, what was still waiting for me to do, and all the things that I wanted to do. I would drive myself crazy, to the point that when my pain finally decreased to a level I thought was acceptable, I would attack my list like a mad woman. This would just knock me back down and in a few days I would do it all over again. It was an ugly vicious cycle. Hopefully it didn’t or doesn’t take you as long as it did me, but it took me 11 years to finally learn how to relax and enjoy my downtime and to not worry about what is not getting done. My days of playing catch up are over. Life is too short to spend all of my “good” hours and days tending to or worrying about what household chore is being neglected. Over the past year I have learned to embrace my down days. Sooner or later the chores will get done.

Will my house be immaculate? No, I will always have dust bunnies and some dirty dishes hanging around, but I don’t care. If I were to spend all my “good” days focused on my list I would never have any quality or fun time with my family. So the dishes sit in the sink, it more important for me to have a day at Disneyland creating memories with my family. Currently I am riding out a severe flare and wrote this because this morning I realized how relaxed my attitude has gotten regarding how long a flare lasts and that I stopped worrying about catching up afterwards. My house is not pristine nor is it a pig sty, it’s lived in by someone who values time spent with family more than having floors so clean that you need to wear sunglasses to avoid the glare.

Where is Snow White and all her cleaning critters when I need her?

Where is Snow White and all her cleaning critters when I need her?

In the past I would start tackling my to do list as soon as my pain began to decrease, no matter how little that amount was. But this would only make things worse and would extend my down time. Now I wait…. Obviously I can’t wait to be pain free, but I have learned to listen to my body and how to recognize when it’s ready to resume “normal” activities.

My down time is spent watching movie and TV series marathons via Netflix and Hulu. I spend more time socializing online during this time as well. My family has learned to treat my bedroom as the family room during long flares, keeping us connected and not leaving me feeling like I am lost on a deserted island.
In the past I spent my good days trying to keep up with the world while catching up on housework and other tasks. Of course I would be down for the count long before I made a noticeable dent in my list. This caused me unnecessary stress and to be a cranky witch. Currently my goals after a severe flare is to tackle ONE item on my to do list, do something fun with my family, and to do other activities that bring me and my family joy while I can physically handle it. I used to worry about having friends or family IMG_682287268722500seeing dust on my entertainment center and dishes in the sink if they were to drop by unannounced. No more, if it really bothers someone that drops by they are welcome to wash my dishes, dust, mop, etc… Basically I have accepted that my conditions are never going away, and that if I want to enjoy life I need to let go of the dream of being the perfect housewife, stop comparing myself to others, and HAVE FUN.

My advice to you? Relax! Don’t try to be a Super Hero! Be you! Find what gives you joy during your down time and during the days that aren’t so bad.

Till next time,

The Disabled Diva

disclosure

Advertisements

Tagged: , , , , , , , , , ,

6 thoughts on “Why hurry?

  1. Henrietta Handy June 11, 2014 at 2:08 pm Reply

    I understand perfectly. There are dishes in my sink and dust on my entertainment center, and the floors are un-vaccuumed, but life goes on. Netflix and Hulu are wonderful time spenders. It took me a long time to reach the same conclusion as you, longer than 12 years, but now I have learned how to do what chores I can without hurting myself and the TO DO list still gets done. Good post!

    Like

    • disableddiva1 June 11, 2014 at 2:12 pm Reply

      That’s awesome, hopefully others won’t take as long as we did to reach this point..;)

      Like

  2. Hanya Gordon June 24, 2014 at 4:50 pm Reply

    Relax! Don’t try to be a Super Hero! Be you! Find what gives you joy during your down time and during the days that aren’t so bad. GREAT ADVICE. Thank You. I need to learn this. Hx

    Like

  3. Alicia June 26, 2014 at 1:20 pm Reply

    Thank you. I needed to hear this today.

    Like

  4. melissagee8 July 10, 2014 at 9:08 am Reply

    Great advice. Find what gives you joy in your down time. Going through a flare myself right now, and trying to find things a to fill my time. Netflix binge watching is always a good one 😉

    Like

    • disableddiva1 July 10, 2014 at 10:20 am Reply

      Hope your flare doesn’t last too long..and you find something enjoyable to pass the time 🙂 gentle hugs!

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: